Search Results - "Audhya, Ivana"

Caregiver-reported Patient Experiences with Duchenne Muscular Dystrophy: Qualitative In-trial Interviews 1 Year After Delandistrogene Moxeparvovec in the Pivotal EMBARK Trial.

Authors: Audhya, Ivana Nacson, Alise B. Gooch, Katherine et al.

Source: Neurology & Therapy. Feb2026, Vol. 15 Issue 1, p41-60. 20p.

Exploring the relationship between North Star Ambulatory Assessment and Health Utilities Index scores in Duchenne muscular dystrophy.

Authors: Audhya, Ivana Rogula, Basia Szabo, Shelagh M. et al.

Source: Health & Quality of Life Outcomes. 7/19/2023, Vol. 21 Issue 1, p1-10. 10p.

Factors associated with the health-related quality of life among people with Duchenne muscular dystrophy: a study using the Health Utilities Index (HUI).

Authors: Szabo, Shelagh M. Audhya, Ivana F. Rogula, Basia et al.

Source: Health & Quality of Life Outcomes. 6/11/2022, Vol. 20 Issue 1, p1-10. 10p.

Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review.

Authors: Szabo, Shelagh M. Audhya, Ivana F. Malone, Daniel C. et al.

Source: Quality of Life Research. Mar2020, Vol. 29 Issue 3, p593-605. 13p. 1 Diagram, 4 Charts, 2 Graphs.

Subjects: Duchenne muscular dystrophy, Meta-analysis, Arm

Household costs in the United States for accommodating functional impairments associated with Duchenne muscular dystrophy: results from a caregiver survey.

Authors: Innis, Bryan Jarvis, John Renteria, Taylor et al.

Source: Orphanet Journal of Rare Diseases. 6/12/2025, Vol. 20 Issue 1, p1-13. 13p.

Caregiver Global Impression Observations from EMBARK: A Phase 3 Study Evaluating Delandistrogene Moxeparvovec in Ambulatory Patients with Duchenne Muscular Dystrophy.

Authors: McDonald, Craig M. Elkins, Jacob S. Dharmarajan, Sai et al.

Source: Neurology & Therapy. Feb2025, Vol. 14 Issue 1, p211-225. 15p.

Caregiver risk preferences for delaying loss of ambulation in Duchenne muscular dystrophy in the United States.

Authors: Shafrin, Jason Zawadzki, Nadine Marin, Moises et al.

Source: Current Medical Research & Opinion. Aug2025, Vol. 41 Issue 8, p1499-1509. 11p.

Psychometric evaluation of the PROMIS parent proxy mobility item bank for use in Duchenne muscular dystrophy.

Authors: Lowes, Linda Pax Le Reun, Corinne M. Alfano, Lindsay N. et al.

Source: Developmental Medicine & Child Neurology. Jul2025, Vol. 67 Issue 7, p918-929. 12p.

TRENDS FROM THE FIELD. Quantifying the Altruism Value for a Rare Pediatric Disease: Duchenne Muscular Dystrophy.

Authors: Shafrin, Jason Thahir, Suhail Klimchak, Alexa C. et al.

Source: American Journal of Managed Care. May2025, Vol. 31 Issue 5, p240-244. 5p.

Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks.

Authors: Schwartz, Carolyn E. Stark, Roland B. Cella, David et al.

Source: Orphanet Journal of Rare Diseases. 11/22/2021, Vol. 16 Issue 1, p1-14. 14p.

EE226 Household Costs and Other Societal Impacts for Individuals With Duchenne Muscular Dystrophy Stratified by Upper Limb Impairment: Results From a Caregiver Survey.

Authors: Innis, Bryan Jarvis, John Renteria, Taylor et al.

Source: Value in Health. 2025 Supplement 1, Vol. 28 Issue 6, pS103-S104. 2p.

EE121 Characterizing the Impact of Work Productivity of Patients With DMD and Their Caregivers: A Societal Perspective.

Authors: Innis, Bryan Henry, Alasdair D. Klimchak, Alexa et al.

Source: Value in Health. 2025 Supplement 1, Vol. 28 Issue 6, pS84-S84. 1p.

Psychometric analysis of the patient-reported outcomes measurement information system parent proxy physical function-upper extremity item bank for children with Duchenne muscular dystrophy.

Authors: Lowes LP Le Reun CM Ciobanu T et al.

Source: Frontiers in neurology [Front Neurol] 2025 May 13; Vol. 16, pp. 1481825. Date of Electronic Publication: 2025 May 13 (Print Publication: 2025).

Publication Type: Journal Article

Journal Info: Publisher: Frontiers Research Foundation Country of Publication: Switzerland NLM ID: 101546899 Publication Model: eCollection Cited Medium: Print ISSN: 1664-2295 (Print) Linking ISSN: 16642295 NLM ISO Abbreviation: Front Neurol Subsets: PubMed not MEDLINE

The Balancing Act of Paid Work and Caregiving in Duchenne Muscular Dystrophy (DMD): Results from a Cross-sectional Survey.

Authors: Dunne JS Szabo SM Gooch KL et al.

Source: Advances in therapy [Adv Ther] 2026 Feb; Vol. 43 (2), pp. 866-879. Date of Electronic Publication: 2025 Dec 29.

Publication Type: Journal Article

Journal Info: Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther Subsets: MEDLINE

Current Challenges of Using Patient-Level Claims and Electronic Health Record Data for the Longitudinal Evaluation of Duchenne Muscular Dystrophy Outcomes.

Authors: Gooch KL Audhya I Ricchetti-Masterson K et al.

Source: Advances in therapy [Adv Ther] 2024 Sep; Vol. 41 (9), pp. 3615-3632. Date of Electronic Publication: 2024 Jul 30.

Publication Type: Journal Article; Research Support, Non-U.S. Gov't

Journal Info: Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther Subsets: MEDLINE

"You Take This Day by Day, Come What May": A Qualitative Study of the Psychosocial Impacts of Living with Duchenne Muscular Dystrophy.

Authors: Bever A Audhya I Szabo SM et al.

Source: Advances in therapy [Adv Ther] 2024 Jun; Vol. 41 (6), pp. 2460-2476. Date of Electronic Publication: 2024 May 06.

Publication Type: Journal Article; Research Support, Non-U.S. Gov't

Journal Info: Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther Subsets: MEDLINE

Comparing Preferences for Disease Profiles: A Discrete Choice Experiment from a US Societal Perspective.

Authors: Johnston KM Audhya IF Dunne J et al.

Source: Applied health economics and health policy [Appl Health Econ Health Policy] 2024 May; Vol. 22 (3), pp. 343-352. Date of Electronic Publication: 2024 Jan 23.

Publication Type: Journal Article

Journal Info: Publisher: Open Mind Journals Ltd Country of Publication: New Zealand NLM ID: 101150314 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1179-1896 (Electronic) Linking ISSN: 11755652 NLM ISO Abbreviation: Appl Health Econ Health Policy Subsets: MEDLINE

Concept Elicitation Interviews and Conceptual Model to Understand the Patient Experience of Limb Girdle Muscular Dystrophy.

Authors: Johnston K Casstevens C Patel VP et al.

Source: Advances in therapy [Adv Ther] 2023 May; Vol. 40 (5), pp. 2296-2310. Date of Electronic Publication: 2023 Mar 14.

Publication Type: Journal Article; Research Support, Non-U.S. Gov't

Journal Info: Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther

Progression to Loss of Ambulation Among Patients with Autosomal Recessive Limb-girdle Muscular Dystrophy: A Systematic Review.

Authors: Audhya IF Cheung A Szabo SM et al.

Source: Journal of neuromuscular diseases [J Neuromuscul Dis] 2022; Vol. 9 (4), pp. 477-492.

Publication Type: Systematic Review; Journal Article

Journal Info: Publisher: SAGE Publications Country of Publication: United States NLM ID: 101649948 Publication Model: Print Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE

QALYs and ambulatory status: societal preferences for healthcare decision making.

Authors: Freath LL Curry AS Cork DMW et al.

Source: Journal of medical economics [J Med Econ] 2022 Jan-Dec; Vol. 25 (1), pp. 888-893.

Publication Type: Journal Article; Review

Journal Info: Publisher: Taylor & Francis Country of Publication: England NLM ID: 9892255 Publication Model: Print Cited Medium: Internet ISSN: 1941-837X (Electronic) Linking ISSN: 13696998 NLM ISO Abbreviation: J Med Econ Subsets: MEDLINE