Search Results - "van Rossum MAJ"

Patterns of etanercept use in juvenile idiopathic arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry.

Authors: Beukelman, Timothy Lougee, Aimee Matsouaka, Roland A. et al.

Source: Pediatric Rheumatology. 8/21/2021, Vol. 19 Issue 1, p1-10. 10p.

Integration of palliative care into phase I oncology trials: A qualitative interview study with patients, informal caregivers, and healthcare providers.

Authors: Daenen, Frederick van Driessche, Anne Scherrens, Anne-Lore et al.

Source: PLoS ONE. 5/5/2026, Vol. 21 Issue 5, p1-16. 16p.

Truth and dare: patients dare to tell the truth when using PROMs in clinical practice.

Authors: Haverman L Luijten MAJ Blackford AL et al.

Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2024 Dec; Vol. 33 (12), pp. 3299-3307. Date of Electronic Publication: 2024 Oct 03.

Publication Type: Journal Article

Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

Development of a validated PROM set for children with tinnitus using the Patient-Reported Outcomes Measurement Information System – Protocol for the 'Tinnitus in Children' (TinC) study.

Authors: Fuchten, Denise Stegeman, Inge Smit, Adriana L.

Source: PLoS ONE. 10/16/2025, Vol. 20 Issue 10, p1-8. 8p.

Health-related quality of life of children with first onset steroid-sensitive nephrotic syndrome.

Authors: Veltkamp, Floor Teela, Lorynn Luijten, Michiel A. J. et al.

Source: European Journal of Pediatrics. Oct2023, Vol. 182 Issue 10, p4605-4614. 10p. 2 Charts, 2 Graphs.

Meningococcal ACWY conjugate vaccine immunogenicity in adolescents with primary or secondary immune deficiencies, a prospective observational cohort study.

Authors: Ohm, Milou van Straalen, Joeri W de Joode-Smink, Gerrie et al.

Source: Pediatric Rheumatology. 7/20/2023, Vol. 21 Issue 1, p1-6. 6p.

Reliability of CEUS and MRI for grading knee-joint inflammation in juvenile idiopathic arthritis.

Authors: Dias SC Ferreira CC Santos I et al.

Source: European radiology [Eur Radiol] 2026 May 15. Date of Electronic Publication: 2026 May 15.

Publication Type: Journal Article

Journal Info: Publisher: Springer International Country of Publication: Germany NLM ID: 9114774 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1432-1084 (Electronic) Linking ISSN: 09387994 NLM ISO Abbreviation: Eur Radiol Subsets: MEDLINE

Persistent osteoarticular pain in children: early clinical and laboratory findings suggestive of acute lymphoblastic leukemia (a multicenter case-control study of 147 patients).

Authors: Louvigné, Mathilde Rakotonjanahary, Josué Goumy, Laurence et al.

Source: Pediatric Rheumatology. 1/2/2020, Vol. 18 Issue 1, p1-8. 8p.

Approaches and outcomes of adalimumab discontinuation in patients with well-controlled inflammatory arthritis: a systematic search and review.

Authors: Balay-Dustrude, Erin Fennell, Jessica Baszis, Kevin et al.

Source: Pediatric Rheumatology. 12/30/2024, Vol. 22 Issue 1, p1-14. 14p.

Clinical diagnosis of the monogenic Ehlers-Danlos syndromes.

Authors: van Dijk MD, PhD, Fleur S. Angwin, Chloe Demirdas MD, Ph.D., Serwet et al.

Source: Medizinische Genetik. Dec2024, Vol. 36 Issue 4, p225-234. 10p.

Physical fitness in children with Marfan and Loeys-Dietz syndrome: associations between cardiovascular parameters, systemic manifestations, fatigue, and pain.

Authors: Warnink-Kavelaars, Jessica de Koning, Lisanne E. van der Hulst, Annelies E. et al.

Source: European Journal of Pediatrics. May2024, Vol. 183 Issue 5, p2421-2429. 9p.

Real-world comparison of the effects of etanercept and adalimumab on well-being in non-systemic juvenile idiopathic arthritis: a propensity score matched cohort study.

Authors: van Straalen, Joeri W. de Roock, Sytze Giancane, Gabriella et al.

Source: Pediatric Rheumatology. 11/14/2022, Vol. 20 Issue 1, p1-11. 11p.

Factors that influence school attendance and participation in children and adolescents with juvenile idiopathic arthritis - a systematic review of the literature.

Authors: Spillane, Tom Murray, Kieran

Source: Pediatric Rheumatology. 5/8/2025, Vol. 23 Issue 1, p1-9. 9p.

Imaging assessment of children presenting with suspected or known juvenile idiopathic arthritis: ESSR-ESPR points to consider.

Authors: Hemke, Robert Herregods, Nele Jaremko, Jacob L. et al.

Source: European Radiology. Oct2020, Vol. 30 Issue 10, p5237-5249. 13p. 6 Black and White Photographs, 3 Charts.

Subjects: Juvenile idiopathic arthritis, Rheumatism, Early diagnosis, Inflammation, Temporomandibular joint, Macrophage activation syndrome, Ultrasonic imaging, Research evaluation, Magnetic resonance imaging, Radiography, Radionuclide imaging, Research funding

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review.

Authors: Scott, Hannah May Braybrook, Debbie Harðardóttir, Daney et al.

Source: Health & Quality of Life Outcomes. 7/3/2023, Vol. 21 Issue 1, p1-46. 46p.

Temporo-mandibular joint alterations in juvenile idiopathic arthritis and young-onset inflammatory arthropathies: a magnetic resonance imaging study with ultrasound comparison.

Authors: Lercara A Martino S Crepaldi G et al.

Source: Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2026 Apr 30; Vol. 24 (1). Date of Electronic Publication: 2026 Apr 30.

Publication Type: Journal Article; Comparative Study

Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101248897 Publication Model: Electronic Cited Medium: Internet ISSN: 1546-0096 (Electronic) Linking ISSN: 15460096 NLM ISO Abbreviation: Pediatr Rheumatol Online J Subsets: MEDLINE

Genetic diagnosis of the Ehlers-Danlos syndromes.

Authors: Zschocke Ph.D., Johannes Demirdas MD, Ph.D., Serwet van Dijk MD, PhD, Fleur S.

Source: Medizinische Genetik. Dec2024, Vol. 36 Issue 4, p235-245. 11p.

Routine use of patient-reported experience and outcome measures for children and young people: a scoping review.

Authors: Alarilla, Anne Terrell, Katharine Kelly, Paula et al.

Source: Systematic Reviews. 11/28/2024, Vol. 13 Issue 1, p1-41. 41p.

Remote Symptom Monitoring With Ecological Momentary Computerized Adaptive Testing: Pilot Cohort Study of a Platform for Frequent, Low-Burden, and Personalized Patient-Reported Outcome Measures.

Authors: Harrison, Conrad Trickett, Ryan Wormald, Justin et al.

Source: Journal of Medical Internet Research. 2023, Vol. 25 Issue 1, p1-13. 13p.

Economic evaluation of infliximab, synthetic triple therapy and methotrexate in the treatment of newly diagnosed juvenile idiopathic arthritis.

Authors: Tarkiainen, Maarit Tynjälä, Pirjo Vähäsalo, Paula et al.

Source: Pediatric Rheumatology. 11/16/2022, Vol. 20 Issue 1, p1-8. 8p.