Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care: An Exploratory Qualitative Study.
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| Title: | Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care: An Exploratory Qualitative Study. |
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| Authors: | Kuzlu Ayyildiz, Tülay1, Kurt, Aylin2 aylinkurt67@gmail.com, Topan, Aysel1, Kulakçı Altıntaş, Hülya1, Veren, Funda1, Üstüner Top, Fadime3 |
| Source: | Omega: Journal of Death & Dying. Nov2024, Vol. 90 Issue 1, p59-72. 14p. |
| Subject Terms: | *Qualitative research, *Content analysis, *Psychological adaptation, *Research, Palliative treatment, Interviewing, Services for caregivers, Thematic analysis, Psychology of parents, Social support |
| Geographic Terms: | Türkiye |
| Abstract: | We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were identified: The problems in the process of acceptance, the difficulties of being at the hospital, the expectations from the health staff, the coping strategies. The families had difficulties in coping with the end-of-life of their children. Future researches may focus on the effectiveness of family-centered care and the experience of parents with its implementation. The findings suggest that social support resources and coping strategies can play an important role in the acceptance of the child's disease process and maintenance of palliative care effectively. [ABSTRACT FROM AUTHOR] |
| Copyright of Omega: Journal of Death & Dying is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Education Research Complete |
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| Abstract: | We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were identified: The problems in the process of acceptance, the difficulties of being at the hospital, the expectations from the health staff, the coping strategies. The families had difficulties in coping with the end-of-life of their children. Future researches may focus on the effectiveness of family-centered care and the experience of parents with its implementation. The findings suggest that social support resources and coping strategies can play an important role in the acceptance of the child's disease process and maintenance of palliative care effectively. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 00302228 |
| DOI: | 10.1177/00302228221097291 |
