Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research
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| Title: | Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research |
|---|---|
| Language: | English |
| Authors: | Passmore, Susan R., Jamison, Amelia M., Abdelwadoud, Moaz, Rogers, Taylor B., Wiggan, Morgan, Mullins, Daniel C., Thomas, Stephen B. |
| Source: | Field Methods. May 2021 33(2):159-174. |
| Availability: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 16 |
| Publication Date: | 2021 |
| Sponsoring Agency: | National Center for Advancing Translational Sciences (NCATS) (NIH), Clinical and Translational Science Awards (CTSA) Program |
| Contract Number: | UL1TR002373 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | African Americans, Participation, Vignettes, Influences, Decision Making, Genetics, Medical Research, Qualitative Research |
| DOI: | 10.1177/1525822X20982089 |
| ISSN: | 1525-822X |
| Abstract: | To explore the willingness to participate in genomics research among African Americans, we developed a technique specifically suited to a relaxed social setting. The "Qualitative Story Deck," (QSD) is a gamified, structured elicitation technique that allows for the spontaneous creation of scenarios with variable attributes. We used the QSD to create research scenarios that varied on four details (race/ethnicity of the researcher, research goal, biospecimen requested, and institutional affiliation). Participants created scenarios by randomly choosing cards from these categories and provided: (1) a judgment about their willingness to participate in the research project represented; and (2) their thought process in reaching a decision. The QSD has applicability to topics involving decision making or in cases where it would be beneficial to provide vignettes with alternate attributes. Additional benefits include rapid rapport building, applicability to little known or sensitive topics, and suitability for both qualitative and quantitative analyses. |
| Abstractor: | As Provided |
| Entry Date: | 2021 |
| Accession Number: | EJ1293992 |
| Database: | ERIC |
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