The Perspectives of Agents Working in Positions of Authority within Health Sector Organisations Regarding the Involvement of Experts by Experience with an Intellectual Disability: An Exploratory Study

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Bibliographic Details
Title: The Perspectives of Agents Working in Positions of Authority within Health Sector Organisations Regarding the Involvement of Experts by Experience with an Intellectual Disability: An Exploratory Study
Language: English
Authors: Kim J. H. M. van den Bogaard, Mireille G. D. de Beer, Noud Frielink, Petri J. C. M. Embregts (ORCID 0000-0003-3567-1528)
Source: Journal of Intellectual & Developmental Disability. 2024 49(3):276-285.
Availability: Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 10
Publication Date: 2024
Document Type: Journal Articles
Reports - Research
Descriptors: Allied Health Personnel, Administrative Organization, Health Services, Expertise, Experience, Intellectual Disability, Attitudes, Inclusion, Policy, Foreign Countries
Geographic Terms: Netherlands
DOI: 10.3109/13668250.2023.2275943
ISSN: 1366-8250
1469-9532
Abstract: Background: In this study, agents working in positions of authority within health sector organisations shared their perspectives concerning both the involvement of experts by experience with intellectual disabilities within their own organisations and their recommendations as to how best to involve experts by experience in policy and practice. Method: Using purposive sampling, eight agents were selected for semi-structured interviews. The interviews were analysed using thematic analysis. Results: The results indicated the importance of involving experts by experience. However, they also highlighted several barriers such as a lack of emphasis on genuine attention, insufficient visibility and recognition of expertise, and a lack of support for sustainable inclusion. Conclusions: Agents are willing to involve experts by experience in health sector organisations, but practical challenges hindered them from actually doing so. This study emphasises the importance to find solutions for better inclusion in policies.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1435546
Database: ERIC
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