Co-Designing a Novel Service Delivery Pathway to Increase Access to Autism Identification and Care within a Non-Profit Community Organization Serving Culturally and Linguistically Diverse Families
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| Title: | Co-Designing a Novel Service Delivery Pathway to Increase Access to Autism Identification and Care within a Non-Profit Community Organization Serving Culturally and Linguistically Diverse Families |
|---|---|
| Language: | English |
| Authors: | Shana M. Attar (ORCID |
| Source: | Autism: The International Journal of Research and Practice. 2025 29(8):2097-2110. |
| Availability: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 14 |
| Publication Date: | 2025 |
| Sponsoring Agency: | National Center for Advancing Translational Sciences (NCATS) (DHHS/NIH) |
| Contract Number: | UL1TR002319 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Delivery Systems, Identification, Autism Spectrum Disorders, Nonprofit Organizations, Community Organizations, Developmental Delays, Early Intervention, Access to Health Care, Multilingualism, Design, Language Minorities, Coping, Child Rearing, Partnerships in Education, African Languages, Foreign Countries |
| Geographic Terms: | Africa |
| DOI: | 10.1177/13623613251335702 |
| ISSN: | 1362-3613 1461-7005 |
| Abstract: | Culturally and linguistically diverse families experience greater challenges accessing timely, autism-specialized care relative to non-culturally and linguistically diverse families, and ultimately experience less optimal health outcomes. Alternative pathways to access autism care for culturally and linguistically diverse families are needed; however, the features of a novel pathway remain unclear. A co-design process was used with a culturally embedded non-profit community organization to develop a novel service delivery pathway for increasing access to autism services for culturally and linguistically diverse families in the United States. Twenty-three individuals participated in eight, 2-hour co-design sessions. Participants included front-line staff (seven non-specialist providers), management leaders (two program supervisors and two organization directors), and eight end-users (caregivers) from seven understudied cultural and linguistic groups (i.e. Somali Mai Mai, Swahili, Arabic, Dari/Pashto, French, Amharic, and Tigrinya) and four autism specialists. The co-design identified five key design features: respecting diversity, prioritizing caregiver agency, increasing accessibility, minimizing stigma, and maximizing feasibility. These features informed the co-development of a novel pathway to access autism identification and care for culturally and linguistically diverse families that pairs navigation services with the dissemination of brief, culturally sensitive, and evidence-based parenting and coping strategies. This power-sharing, community-academic partnership may serve as a model for improving equity in autism care. |
| Abstractor: | As Provided |
| Entry Date: | 2025 |
| Accession Number: | EJ1476876 |
| Database: | ERIC |
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