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Three Years on from 'Stay at Home': Perspectives of People with Intellectual Disabilities about the Ongoing Impact of the COVID-19 Pandemic

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Title: Three Years on from 'Stay at Home': Perspectives of People with Intellectual Disabilities about the Ongoing Impact of the COVID-19 Pandemic
Language: English
Authors: Jodie Rawles (ORCID 0000-0001-8642-6050), Sue Caton (ORCID 0000-0001-9013-8721), Dawn Cavanagh, Chris Hatton (ORCID 0000-0001-8781-8486), Richard P. Hastings, Coronavirus and People with Learning Disabilities Study Team
Source: Journal of Applied Research in Intellectual Disabilities. 2025 38(4).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 11
Publication Date: 2025
Document Type: Journal Articles
Reports - Research
Descriptors: Intellectual Disability, COVID-19, Pandemics, Attitudes, Experience, Aspiration, Group Homes, Political Attitudes, Barriers, Psychological Patterns, Life Satisfaction, Foreign Countries
Geographic Terms: United Kingdom (England)
DOI: 10.1111/jar.70076
ISSN: 1360-2322
1468-3148
Abstract: Background: People with intellectual disabilities were disproportionately negatively affected during the COVID-19 pandemic, but there has been limited research about the perceived longer-term impact. Methods: Data were collected through a two-stage narrative interview process with eight adults with intellectual disabilities. Participants told their story about their lives at the time of the first lockdown in 2020, what their lives were like 3 years later, and what they hoped for the future. A second interview filled any gaps in the narrative. Data were analysed thematically. Results: Four themes were identified--navigating disruptions to meaningful activities; unique challenges associated with residing in group-living environments; anger at the Government; barriers to moving forward. Conclusions: The themes identified reflect powerful emotional memories of challenging experiences during the COVID-19 pandemic. Life continues to be difficult for many due to ongoing difficulties in getting the right support.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1481526
Database: ERIC
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  Data: Three Years on from 'Stay at Home': Perspectives of People with Intellectual Disabilities about the Ongoing Impact of the COVID-19 Pandemic
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  Data: <searchLink fieldCode="AR" term="%22Jodie+Rawles%22">Jodie Rawles</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-8642-6050">0000-0001-8642-6050</externalLink>)<br /><searchLink fieldCode="AR" term="%22Sue+Caton%22">Sue Caton</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-9013-8721">0000-0001-9013-8721</externalLink>)<br /><searchLink fieldCode="AR" term="%22Dawn+Cavanagh%22">Dawn Cavanagh</searchLink><br /><searchLink fieldCode="AR" term="%22Chris+Hatton%22">Chris Hatton</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-8781-8486">0000-0001-8781-8486</externalLink>)<br /><searchLink fieldCode="AR" term="%22Richard+P%2E+Hastings%22">Richard P. Hastings</searchLink><br /><searchLink fieldCode="AR" term="%22Coronavirus+and+People+with+Learning+Disabilities+Study+Team%22">Coronavirus and People with Learning Disabilities Study Team</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22"><i>Journal of Applied Research in Intellectual Disabilities</i></searchLink>. 2025 38(4).
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: <searchLink fieldCode="DE" term="%22Intellectual+Disability%22">Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22COVID-19%22">COVID-19</searchLink><br /><searchLink fieldCode="DE" term="%22Pandemics%22">Pandemics</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes%22">Attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Aspiration%22">Aspiration</searchLink><br /><searchLink fieldCode="DE" term="%22Group+Homes%22">Group Homes</searchLink><br /><searchLink fieldCode="DE" term="%22Political+Attitudes%22">Political Attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Barriers%22">Barriers</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+Patterns%22">Psychological Patterns</searchLink><br /><searchLink fieldCode="DE" term="%22Life+Satisfaction%22">Life Satisfaction</searchLink><br /><searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22United+Kingdom+%28England%29%22">United Kingdom (England)</searchLink>
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  Data: 10.1111/jar.70076
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  Data: 1360-2322<br />1468-3148
– Name: Abstract
  Label: Abstract
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  Data: Background: People with intellectual disabilities were disproportionately negatively affected during the COVID-19 pandemic, but there has been limited research about the perceived longer-term impact. Methods: Data were collected through a two-stage narrative interview process with eight adults with intellectual disabilities. Participants told their story about their lives at the time of the first lockdown in 2020, what their lives were like 3 years later, and what they hoped for the future. A second interview filled any gaps in the narrative. Data were analysed thematically. Results: Four themes were identified--navigating disruptions to meaningful activities; unique challenges associated with residing in group-living environments; anger at the Government; barriers to moving forward. Conclusions: The themes identified reflect powerful emotional memories of challenging experiences during the COVID-19 pandemic. Life continues to be difficult for many due to ongoing difficulties in getting the right support.
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      – SubjectFull: Intellectual Disability
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