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Development of an mHealth Application for Self-Management of Post-Stroke Aphasia: Protocol for Experience-Based Co-Design, User Experience Testing, Feasibility Field Test and Process Evaluation

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Title: Development of an mHealth Application for Self-Management of Post-Stroke Aphasia: Protocol for Experience-Based Co-Design, User Experience Testing, Feasibility Field Test and Process Evaluation
Language: English
Authors: Sarah J. Wallace, Zheng Yen Ng, Bridget Burton, Megan Isaacs, Ryan Deslandes, Gopal Sinh, Kim Barron, Phill Jamieson, Kirstine A. Shrubsole, David A. Copland, Janet Wiles, Victoria J. Palmer (ORCID 0000-0001-7212-932X), Pippa Evans, Kyla Hudson, Anthony J. Angwin, Annie J. Hill, Barbra H. B. Timmer, Matthew J. Gullo, Jessica H. Campbell (ORCID 0000-0003-1759-4012), Peter Worthy (ORCID 0000-0002-9124-1330)
Source: International Journal of Language & Communication Disorders. 2025 60(6).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 8
Publication Date: 2025
Document Type: Journal Articles
Reports - Descriptive
Descriptors: Neurological Impairments, Aphasia, Rehabilitation, Speech Therapy, Computer Oriented Programs, Handheld Devices, Self Management, Health Programs, Cooperative Planning, Intervention, Design, Evaluation Methods, Usability, Research Design, Stakeholders
DOI: 10.1111/1460-6984.70162
ISSN: 1368-2822
1460-6984
Abstract: Background: Speech and language therapy for post-stroke aphasia (language/communication impairment) improves language and communication in the short-term; however, access to therapy is limited, and effects are not always maintained. Mobile Health (mHealth) applications may support long-term therapy access and maintenance of gains. We present a protocol for the co-design and evaluation of a novel mHealth application for self-managed aphasia therapy. Methods: An mHealth application will be developed using Experience-Based Co-Design and Human-Centred Design with people with aphasia (PWA), significant others (SO) and health professionals (HPs). Focus groups will explore self-management experiences and establish co-design priorities using the nominal group technique (n = 10-15 each group). The prototype will be co-designed in eight workshops (n = 4 each group) and evaluated via adapted user-experience (UX) testing. UX testing will use pluralistic walk-throughs, think-aloud evaluations and measures of satisfaction (SUS) and acceptance/intended use (UTAUT-2) (PWA n = 10, SO n = 5, HP n = 10). Feasibility and preliminary efficacy (primary outcomes of treatment adherence and goal attainment) will be assessed through a 4-week field test, followed by focus groups (PWA and SO, n = 20 each). A process evaluation will assess factors influencing (1) the process and outcomes of research involvement, and (2) the functioning and acceptability of the prototype application. Discussion: Outcomes will include a prototype co-designed mHealth application for self-management of post-stroke aphasia and evidence of acceptability, usability and preliminary efficacy. The process evaluation will increase understanding of the adjustments required to support meaningful participation of PWA in co-design, and future directions for application development and scale-up.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1490023
Database: ERIC
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  Data: Development of an mHealth Application for Self-Management of Post-Stroke Aphasia: Protocol for Experience-Based Co-Design, User Experience Testing, Feasibility Field Test and Process Evaluation
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  Data: <searchLink fieldCode="AR" term="%22Sarah+J%2E+Wallace%22">Sarah J. Wallace</searchLink><br /><searchLink fieldCode="AR" term="%22Zheng+Yen+Ng%22">Zheng Yen Ng</searchLink><br /><searchLink fieldCode="AR" term="%22Bridget+Burton%22">Bridget Burton</searchLink><br /><searchLink fieldCode="AR" term="%22Megan+Isaacs%22">Megan Isaacs</searchLink><br /><searchLink fieldCode="AR" term="%22Ryan+Deslandes%22">Ryan Deslandes</searchLink><br /><searchLink fieldCode="AR" term="%22Gopal+Sinh%22">Gopal Sinh</searchLink><br /><searchLink fieldCode="AR" term="%22Kim+Barron%22">Kim Barron</searchLink><br /><searchLink fieldCode="AR" term="%22Phill+Jamieson%22">Phill Jamieson</searchLink><br /><searchLink fieldCode="AR" term="%22Kirstine+A%2E+Shrubsole%22">Kirstine A. Shrubsole</searchLink><br /><searchLink fieldCode="AR" term="%22David+A%2E+Copland%22">David A. Copland</searchLink><br /><searchLink fieldCode="AR" term="%22Janet+Wiles%22">Janet Wiles</searchLink><br /><searchLink fieldCode="AR" term="%22Victoria+J%2E+Palmer%22">Victoria J. Palmer</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-7212-932X">0000-0001-7212-932X</externalLink>)<br /><searchLink fieldCode="AR" term="%22Pippa+Evans%22">Pippa Evans</searchLink><br /><searchLink fieldCode="AR" term="%22Kyla+Hudson%22">Kyla Hudson</searchLink><br /><searchLink fieldCode="AR" term="%22Anthony+J%2E+Angwin%22">Anthony J. Angwin</searchLink><br /><searchLink fieldCode="AR" term="%22Annie+J%2E+Hill%22">Annie J. Hill</searchLink><br /><searchLink fieldCode="AR" term="%22Barbra+H%2E+B%2E+Timmer%22">Barbra H. B. Timmer</searchLink><br /><searchLink fieldCode="AR" term="%22Matthew+J%2E+Gullo%22">Matthew J. Gullo</searchLink><br /><searchLink fieldCode="AR" term="%22Jessica+H%2E+Campbell%22">Jessica H. Campbell</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-1759-4012">0000-0003-1759-4012</externalLink>)<br /><searchLink fieldCode="AR" term="%22Peter+Worthy%22">Peter Worthy</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-9124-1330">0000-0002-9124-1330</externalLink>)
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: <searchLink fieldCode="DE" term="%22Neurological+Impairments%22">Neurological Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Aphasia%22">Aphasia</searchLink><br /><searchLink fieldCode="DE" term="%22Rehabilitation%22">Rehabilitation</searchLink><br /><searchLink fieldCode="DE" term="%22Speech+Therapy%22">Speech Therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Computer+Oriented+Programs%22">Computer Oriented Programs</searchLink><br /><searchLink fieldCode="DE" term="%22Handheld+Devices%22">Handheld Devices</searchLink><br /><searchLink fieldCode="DE" term="%22Self+Management%22">Self Management</searchLink><br /><searchLink fieldCode="DE" term="%22Health+Programs%22">Health Programs</searchLink><br /><searchLink fieldCode="DE" term="%22Cooperative+Planning%22">Cooperative Planning</searchLink><br /><searchLink fieldCode="DE" term="%22Intervention%22">Intervention</searchLink><br /><searchLink fieldCode="DE" term="%22Design%22">Design</searchLink><br /><searchLink fieldCode="DE" term="%22Evaluation+Methods%22">Evaluation Methods</searchLink><br /><searchLink fieldCode="DE" term="%22Usability%22">Usability</searchLink><br /><searchLink fieldCode="DE" term="%22Research+Design%22">Research Design</searchLink><br /><searchLink fieldCode="DE" term="%22Stakeholders%22">Stakeholders</searchLink>
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  Data: 10.1111/1460-6984.70162
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  Data: 1368-2822<br />1460-6984
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  Data: Background: Speech and language therapy for post-stroke aphasia (language/communication impairment) improves language and communication in the short-term; however, access to therapy is limited, and effects are not always maintained. Mobile Health (mHealth) applications may support long-term therapy access and maintenance of gains. We present a protocol for the co-design and evaluation of a novel mHealth application for self-managed aphasia therapy. Methods: An mHealth application will be developed using Experience-Based Co-Design and Human-Centred Design with people with aphasia (PWA), significant others (SO) and health professionals (HPs). Focus groups will explore self-management experiences and establish co-design priorities using the nominal group technique (n = 10-15 each group). The prototype will be co-designed in eight workshops (n = 4 each group) and evaluated via adapted user-experience (UX) testing. UX testing will use pluralistic walk-throughs, think-aloud evaluations and measures of satisfaction (SUS) and acceptance/intended use (UTAUT-2) (PWA n = 10, SO n = 5, HP n = 10). Feasibility and preliminary efficacy (primary outcomes of treatment adherence and goal attainment) will be assessed through a 4-week field test, followed by focus groups (PWA and SO, n = 20 each). A process evaluation will assess factors influencing (1) the process and outcomes of research involvement, and (2) the functioning and acceptability of the prototype application. Discussion: Outcomes will include a prototype co-designed mHealth application for self-management of post-stroke aphasia and evidence of acceptability, usability and preliminary efficacy. The process evaluation will increase understanding of the adjustments required to support meaningful participation of PWA in co-design, and future directions for application development and scale-up.
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