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Mental Ill-Health in Mothers Caring for Offspring with Intellectual Disabilities at Different Stages of Caregiving: Secondary Data Analysis and Data Linkage of Administrative and Health Records

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Title: Mental Ill-Health in Mothers Caring for Offspring with Intellectual Disabilities at Different Stages of Caregiving: Secondary Data Analysis and Data Linkage of Administrative and Health Records
Language: English
Authors: Deborah Cairns (ORCID 0000-0002-2626-1554), Kirsty Dunn, Robin Young, Nicola Greenlaw, Sally Ann Cooper, Jill P. Pell, Ewelina Rydzewska
Source: Journal of Applied Research in Intellectual Disabilities. 2026 39(1).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 11
Publication Date: 2026
Document Type: Journal Articles
Reports - Research
Descriptors: Mental Disorders, Mothers, Child Rearing, Parent Child Relationship, Children, Intellectual Disability, Data Analysis, Case Records, Special Health Problems, Mental Health Programs
DOI: 10.1111/jar.70200
ISSN: 1360-2322
1468-3148
Abstract: Background: Little research has investigated maternal-carer mental ill-health at different stages of care-giving, including following the death of offspring with intellectual disabilities. Methods: Population cohort study of 9787 mothers of offspring with intellectual disabilities, matched with 30,235 mothers of offspring without intellectual disabilities. Results: Mental ill-health was significantly higher for mothers of offspring with intellectual disabilities (OR = 1.28, 95% CI [1.22-1.34]) than mothers of offspring without intellectual disabilities and at different stages: child (OR = 1.40, 95% CI [1.30-1.51]), adult (OR = 1.22 95% CI [1.14-1.29]) but not older adults (OR = 1.22, 95% CI [0.91-1.65]). Mothers with a mental health diagnosis, compared to those without, were significantly more likely to have long-term health problems, poorer health and socioeconomic circumstances (e.g., greater neighbourhood deprivation) (all at p < 0.0001). No difference was found between mothers' mental health whose offspring with/without intellectual disabilities died (p = 0.68). Conclusions: This study provides unique insights into factors associated with the mental health of maternal carers and the need for services to better meet their needs.
Abstractor: As Provided
Entry Date: 2026
Accession Number: EJ1497855
Database: ERIC
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  Data: &lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Deborah+Cairns%22&quot;&gt;Deborah Cairns&lt;/searchLink&gt; (ORCID &lt;externalLink term=&quot;https://orcid.org/0000-0002-2626-1554&quot;&gt;0000-0002-2626-1554&lt;/externalLink&gt;)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Kirsty+Dunn%22&quot;&gt;Kirsty Dunn&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Robin+Young%22&quot;&gt;Robin Young&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Nicola+Greenlaw%22&quot;&gt;Nicola Greenlaw&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Sally+Ann+Cooper%22&quot;&gt;Sally Ann Cooper&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Jill+P%2E+Pell%22&quot;&gt;Jill P. Pell&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Ewelina+Rydzewska%22&quot;&gt;Ewelina Rydzewska&lt;/searchLink&gt;
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  Data: Wiley. Available from: John Wiley &amp; Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: 11
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– Name: DOI
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  Data: 10.1111/jar.70200
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  Data: Background: Little research has investigated maternal-carer mental ill-health at different stages of care-giving, including following the death of offspring with intellectual disabilities. Methods: Population cohort study of 9787 mothers of offspring with intellectual disabilities, matched with 30,235 mothers of offspring without intellectual disabilities. Results: Mental ill-health was significantly higher for mothers of offspring with intellectual disabilities (OR = 1.28, 95% CI [1.22-1.34]) than mothers of offspring without intellectual disabilities and at different stages: child (OR = 1.40, 95% CI [1.30-1.51]), adult (OR = 1.22 95% CI [1.14-1.29]) but not older adults (OR = 1.22, 95% CI [0.91-1.65]). Mothers with a mental health diagnosis, compared to those without, were significantly more likely to have long-term health problems, poorer health and socioeconomic circumstances (e.g., greater neighbourhood deprivation) (all at p &lt; 0.0001). No difference was found between mothers&#39; mental health whose offspring with/without intellectual disabilities died (p = 0.68). Conclusions: This study provides unique insights into factors associated with the mental health of maternal carers and the need for services to better meet their needs.
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  Data: 2026
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      – SubjectFull: Mental Disorders
        Type: general
      – SubjectFull: Mothers
        Type: general
      – SubjectFull: Child Rearing
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      – SubjectFull: Parent Child Relationship
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      – SubjectFull: Intellectual Disability
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      – TitleFull: Mental Ill-Health in Mothers Caring for Offspring with Intellectual Disabilities at Different Stages of Caregiving: Secondary Data Analysis and Data Linkage of Administrative and Health Records
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