Self-Injury and the Treatment Gap: An Interdisciplinary Exploration of Beliefs about Causal Variables and Treatment Goals among Caregivers, Researchers, and Clinicians

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Bibliographic Details
Title: Self-Injury and the Treatment Gap: An Interdisciplinary Exploration of Beliefs about Causal Variables and Treatment Goals among Caregivers, Researchers, and Clinicians
Language: English
Authors: Caroline L. Roberts (ORCID 0000-0002-1846-9654), Madilyn Larsh, Frank Symons (ORCID 0000-0001-9833-4807)
Source: Journal of Mental Health Research in Intellectual Disabilities. 2025 18(3):280-300.
Availability: Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 21
Publication Date: 2025
Sponsoring Agency: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) (DHHS/NIH)
Contract Number: HD044763
Document Type: Journal Articles
Reports - Research
Descriptors: Self Destructive Behavior, Intellectual Disability, Developmental Disabilities, Family Attitudes, Caregiver Attitudes, Researchers, Allied Health Personnel, Attitudes, Intervention, Expertise, Behavior Modification, Comorbidity, Risk, Early Intervention, Quality of Life, Personal Autonomy, Beliefs
DOI: 10.1080/19315864.2024.2424744
ISSN: 1931-5864
1931-5872
Abstract: Introduction: There is a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive it. One contributing factor may be a multiplicity of beliefs about the nature of SIB and its treatment. Methods: Using reflexive thematic analysis, we interviewed and integrated two knowledge sources--the perspectives of family caregivers for individuals with SIB and IDD and the perspectives of clinicians and researchers who treat and study self-injury. Results: We present results from two primary belief categories: perceptions of causal variables and treatment goals. Conclusion: By contextualizing the current paradigms of research and practice in self-injury as siloed depending on whether an individual does or does not have IDD, we discuss ways to deepen our understanding of the process of treatment provision for self-injurious behavior to inform efforts to close the treatment gap.
Abstractor: As Provided
Entry Date: 2026
Accession Number: EJ1502876
Database: ERIC
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