Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
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| Title: | Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US. |
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| Authors: | Sanderson SC; Department of Behavioural Science and Health, University College London, London WC1E 6BT, UK; Great Ormond Street Hospital, London WC1N 3JH, UK; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA. Electronic address: saskia.sanderson@ucl.ac.uk., Brothers KB; Department of Pediatrics, University of Louisville, Louisville, KY 40202, USA. Electronic address: kyle.brothers@louisville.edu., Mercaldo ND; Department of Biostatistics, Vanderbilt University, Nashville, TN 37203, USA., Clayton EW; Center for Biomedical Ethics and Society, Vanderbilt University, Nashville, TN 37203, USA., Antommaria AHM; Ethics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA., Aufox SA; Center for Genetic Medicine, Northwestern University, Chicago, IL 60611, USA., Brilliant MH; Center for Human Genetics, Marshfield Clinic Research Foundation, Marshfield, WI 54449, USA., Campos D; Department of Biomedical and Health Informatics, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA., Carrell DS; Group Health Research Institute, Seattle, WA 98101, USA., Connolly J; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA., Conway P; Essentia Institute of Rural Health, Duluth, MN 55805, USA., Fullerton SM; Department of Bioethics and Humanities, University of Washington, Seattle, WA 98195, USA., Garrison NA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, WA 98101, USA; Department of Pediatrics, Division of Bioethics, University of Washington, Seattle, WA 98101, USA., Horowitz CR; Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA., Jarvik GP; Department of Genome Sciences, University of Washington, Seattle, WA 98195, USA., Kaufman D; Division of Genomics and Society, National Human Genome Research Institute, Bethesda, MD 20892, USA., Kitchner TE; Center for Human Genetics, Marshfield Clinic Research Foundation, Marshfield, WI 54449, USA., Li R; Division of Genomic Medicine, National Human Genome Research Institute, Bethesda, MD 20892, USA., Ludman EJ; Group Health Research Institute, Seattle, WA 98101, USA., McCarty CA; Essentia Institute of Rural Health, Duluth, MN 55805, USA., McCormick JB; Biomedical Ethics Program, Mayo Clinic, Rochester, MN 55905, USA., McManus VD; Biomedical Informatics Research Center, Marshfield Clinic Research Foundation, Marshfield, WI 54449, USA., Myers MF; Genetic Counseling Graduate Program, Cincinnati Children's Hospital Medical Center and University of Cincinnati, Cincinnati, OH 45229, USA., Scrol A; Group Health Research Institute, Seattle, WA 98101, USA., Williams JL; Genomic Medicine Institute, Geisinger Health System, Danville, PA 17822, USA., Shrubsole MJ; Vanderbilt Epidemiology Center, Vanderbilt University Medical Center, Nashville, TN 37203, USA., Schildcrout JS; Department of Biostatistics, Vanderbilt University, Nashville, TN 37203, USA., Smith ME; Center for Genetic Medicine, Northwestern University, Chicago, IL 60611, USA., Holm IA; Division of Genetics and Genomics and the Manton Center for Orphan Diseases Research, Boston Children's Hospital, Boston, MA 02115, USA. |
| Source: | American journal of human genetics [Am J Hum Genet] 2017 Mar 02; Vol. 100 (3), pp. 414-427. Date of Electronic Publication: 2017 Feb 09. |
| Publication Type: | Journal Article; Multicenter Study; Randomized Controlled Trial |
| Journal Info: | Publisher: Cell Press Country of Publication: United States NLM ID: 0370475 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1537-6605 (Electronic) Linking ISSN: 00029297 NLM ISO Abbreviation: Am J Hum Genet Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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