Measuring What Matters to Individuals with Angelman Syndrome and Their Families: Development of a Patient-Centered Disease Concept Model. - Willgoss T; Cassater D; Connor S; Krishnan ML; Miller MT; Dias-Barbosa C; Phillips D; McCormack J; Bird LM; Burdine RD; Claridge S; Bichell TJ (Child psychiatry and human development, 2021)