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The value-based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.

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Title: The value-based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.
Authors: Cortesi PA; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy., Fornari C; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy., Conti S; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy., Pollio B; Regional Reference Centre for Inherited Bleeding and Thrombotic Disorders, Transfusion Medicine, 'Regina Margherita' Children Hospital, Turin, Italy., Boccalandro E; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy., Buzzi A; Fondazione Paracelso, Milan, Italy., Carulli C; Orthopaedic Clinic, University of Florence, Florence, Italy., Coppola A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., De Cristofaro R; Haemorrhagic and Thrombotic Disease Service, Fondazione Policlinico Universitario 'A. Gemelli' IRCCS, Rome, Italy., Di Minno MND; Department of Clinical Medicine and Surgery, Regional Reference Center for Coagulation Disorders, Federico II University, Naples, Italy., Dolan G; Guys' and St Thomas' NHS Trust, London, UK., Ferri Grazzi E; Federation of Haemophilia Associations (FedEmo), Milan, Italy., Fornari A; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.; Neurology, Public Health and Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Gualtierotti R; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy.; Università degli Studi di Milano, Department of Pathophysiology and Transplantation, Milan, Italy., Hermans C; Haemostasis and Thrombosis Unit, Division of Haematology, Cliniques Universitaires Saint-Luc, Université Catholique de Louvain (UCLouvain), Brussels, Belgium., Jiménez-Juste V; Thrombosis and Haemostasis Unit - IdiPAZ, University Hospital La Paz, Madrid, Spain., Kenet G; National Hemophilia Center, Thrombosis Unit and Amalia Biron Research Institute of Thrombosis and Hemostasis, Sheba Medical Center, Tel Hashomer, Israel; Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel., Lupi A; Federation of Haemophilia Associations (FedEmo), Milan, Italy., Martinoli C; Department of Health Science - DISSAL, University of Genoa, Genoa, Italy.; IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Mansueto MF; Division of Hematology, University Hospital Paolo Giaccone, Palermo, Italy., Nicolò G; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, Department of Healthcare Professions, Milan, Italy., Tagliaferri A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Gringeri A; CHARTA Foundation, Milan, Italy.; Solidarity Health Care Center, Lucca, Italy., Molinari AC; Regional Reference Centre for Haemorrhagic Diseases, IRCCS Istituto Giannina Gaslini, Genova, Italy., Mantovani LG; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.; CHARTA Foundation, Milan, Italy.; IRCCS Istituto Auxologico Italiano, Milan, Italy., Castaman G; Department of Oncology, Centre for Bleeding Disorders and Coagulation, Careggi University Hospital, Florence, Italy.
Corporate Authors: V.B.H. project group
Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2024 Mar; Vol. 30 (2), pp. 437-448. Date of Electronic Publication: 2024 Feb 05.
Publication Type: Journal Article
Journal Info: Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2516 (Electronic) Linking ISSN: 13518216 NLM ISO Abbreviation: Haemophilia Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: The value-based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.
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  Data: <searchLink fieldCode="AU" term="%22Cortesi+PA%22">Cortesi PA</searchLink>; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Fornari+C%22">Fornari C</searchLink>; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Conti+S%22">Conti S</searchLink>; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Pollio+B%22">Pollio B</searchLink>; Regional Reference Centre for Inherited Bleeding and Thrombotic Disorders, Transfusion Medicine, 'Regina Margherita' Children Hospital, Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Boccalandro+E%22">Boccalandro E</searchLink>; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Buzzi+A%22">Buzzi A</searchLink>; Fondazione Paracelso, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Carulli+C%22">Carulli C</searchLink>; Orthopaedic Clinic, University of Florence, Florence, Italy.<br /><searchLink fieldCode="AU" term="%22Coppola+A%22">Coppola A</searchLink>; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy.<br /><searchLink fieldCode="AU" term="%22De+Cristofaro+R%22">De Cristofaro R</searchLink>; Haemorrhagic and Thrombotic Disease Service, Fondazione Policlinico Universitario 'A. Gemelli' IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Di+Minno+MND%22">Di Minno MND</searchLink>; Department of Clinical Medicine and Surgery, Regional Reference Center for Coagulation Disorders, Federico II University, Naples, Italy.<br /><searchLink fieldCode="AU" term="%22Dolan+G%22">Dolan G</searchLink>; Guys' and St Thomas' NHS Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Ferri+Grazzi+E%22">Ferri Grazzi E</searchLink>; Federation of Haemophilia Associations (FedEmo), Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Fornari+A%22">Fornari A</searchLink>; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.; Neurology, Public Health and Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Gualtierotti+R%22">Gualtierotti R</searchLink>; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy.; Università degli Studi di Milano, Department of Pathophysiology and Transplantation, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Hermans+C%22">Hermans C</searchLink>; Haemostasis and Thrombosis Unit, Division of Haematology, Cliniques Universitaires Saint-Luc, Université Catholique de Louvain (UCLouvain), Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Jiménez-Juste+V%22">Jiménez-Juste V</searchLink>; Thrombosis and Haemostasis Unit - IdiPAZ, University Hospital La Paz, Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Kenet+G%22">Kenet G</searchLink>; National Hemophilia Center, Thrombosis Unit and Amalia Biron Research Institute of Thrombosis and Hemostasis, Sheba Medical Center, Tel Hashomer, Israel; Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel.<br /><searchLink fieldCode="AU" term="%22Lupi+A%22">Lupi A</searchLink>; Federation of Haemophilia Associations (FedEmo), Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Martinoli+C%22">Martinoli C</searchLink>; Department of Health Science - DISSAL, University of Genoa, Genoa, Italy.; IRCCS Ospedale Policlinico San Martino, Genoa, Italy.<br /><searchLink fieldCode="AU" term="%22Mansueto+MF%22">Mansueto MF</searchLink>; Division of Hematology, University Hospital Paolo Giaccone, Palermo, Italy.<br /><searchLink fieldCode="AU" term="%22Nicolò+G%22">Nicolò G</searchLink>; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, Department of Healthcare Professions, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Tagliaferri+A%22">Tagliaferri A</searchLink>; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy.<br /><searchLink fieldCode="AU" term="%22Gringeri+A%22">Gringeri A</searchLink>; CHARTA Foundation, Milan, Italy.; Solidarity Health Care Center, Lucca, Italy.<br /><searchLink fieldCode="AU" term="%22Molinari+AC%22">Molinari AC</searchLink>; Regional Reference Centre for Haemorrhagic Diseases, IRCCS Istituto Giannina Gaslini, Genova, Italy.<br /><searchLink fieldCode="AU" term="%22Mantovani+LG%22">Mantovani LG</searchLink>; Research Centre on Public Health (CESP), University of Milano-Bicocca, Monza, Italy.; CHARTA Foundation, Milan, Italy.; IRCCS Istituto Auxologico Italiano, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Castaman+G%22">Castaman G</searchLink>; Department of Oncology, Centre for Bleeding Disorders and Coagulation, Careggi University Hospital, Florence, Italy.
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  Data: <searchLink fieldCode="JN" term="%229442916%22">Haemophilia : the official journal of the World Federation of Hemophilia</searchLink> [Haemophilia] 2024 Mar; Vol. 30 (2), pp. 437-448. <i>Date of Electronic Publication: </i>2024 Feb 05.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Blackwell+Science%22">Blackwell Science </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9442916 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1365-2516 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2213518216%22">13518216 </searchLink><i>NLM ISO Abbreviation: </i>Haemophilia <i>Subsets: </i>MEDLINE
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