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Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing.

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Title: Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing.
Authors: Smith HS; PRecisiOn Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine, Harvard Medical School, Boston, MA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX. Electronic address: hadley_smith@hphci.harvard.edu., Rubanovich CK; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA., Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX., Levchenko AN; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX., Classen SA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX., Malek J; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX., Biesecker B; RTI International, Washington DC., Brothers KB; Norton Children's Research Institute affiliated with the University of Louisville School of Medicine, Louisville, KY., Wilfond BS; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute and Hospital, Seattle, WA; Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle, WA., Rini C; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL; Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL., Knight SJ; Division of Epidemiology, Department of Internal Medicine, University of Utah, Salt Lake City, UT., McGuire AL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX., Bloss CS; Herbert Wertheim School of Public Health, University of California San Diego, San Diego, CA.
Source: Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2024 Aug; Vol. 26 (8), pp. 101146. Date of Electronic Publication: 2024 Apr 24.
Publication Type: Journal Article; Validation Study
Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Smith+HS%22">Smith HS</searchLink>; PRecisiOn Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine, Harvard Medical School, Boston, MA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX. Electronic address: hadley_smith@hphci.harvard.edu.<br /><searchLink fieldCode="AU" term="%22Rubanovich+CK%22">Rubanovich CK</searchLink>; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA.<br /><searchLink fieldCode="AU" term="%22Robinson+JO%22">Robinson JO</searchLink>; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.<br /><searchLink fieldCode="AU" term="%22Levchenko+AN%22">Levchenko AN</searchLink>; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.<br /><searchLink fieldCode="AU" term="%22Classen+SA%22">Classen SA</searchLink>; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.<br /><searchLink fieldCode="AU" term="%22Malek+J%22">Malek J</searchLink>; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.<br /><searchLink fieldCode="AU" term="%22Biesecker+B%22">Biesecker B</searchLink>; RTI International, Washington DC.<br /><searchLink fieldCode="AU" term="%22Brothers+KB%22">Brothers KB</searchLink>; Norton Children's Research Institute affiliated with the University of Louisville School of Medicine, Louisville, KY.<br /><searchLink fieldCode="AU" term="%22Wilfond+BS%22">Wilfond BS</searchLink>; Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute and Hospital, Seattle, WA; Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle, WA.<br /><searchLink fieldCode="AU" term="%22Rini+C%22">Rini C</searchLink>; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL; Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL.<br /><searchLink fieldCode="AU" term="%22Knight+SJ%22">Knight SJ</searchLink>; Division of Epidemiology, Department of Internal Medicine, University of Utah, Salt Lake City, UT.<br /><searchLink fieldCode="AU" term="%22McGuire+AL%22">McGuire AL</searchLink>; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.<br /><searchLink fieldCode="AU" term="%22Bloss+CS%22">Bloss CS</searchLink>; Herbert Wertheim School of Public Health, University of California San Diego, San Diego, CA.
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  Data: <searchLink fieldCode="JN" term="%229815831%22">Genetics in medicine : official journal of the American College of Medical Genetics</searchLink> [Genet Med] 2024 Aug; Vol. 26 (8), pp. 101146. <i>Date of Electronic Publication: </i>2024 Apr 24.
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