The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care - updates at the 2023 plenary event.
Saved in:
| Title: | The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care - updates at the 2023 plenary event. |
|---|---|
| Authors: | Zaratin P; Research Department, Italian Multiple Sclerosis Foundation, Genoa, Italy., Samadzadeh S; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Experimental and Clinical Research Center, Berlin, Germany.; Institute of Regional Health Research and Molecular Medicine, University of Southern Denmark, Odense, Denmark.; Department of Neurology, The Center for Neurological Research, Næstved-Slagelse-Ringsted Hospitals, Slagelse, Denmark., Seferoğlu M; Department of Neurology, Bursa Faculty of Medicine, Bursa Yüksek İhtisas Training and Research Hospital, University of Health Sciences, Bursa, Türkiye., Ricigliano V; Sorbonne Université, Paris Brain Institute, ICM, CNRS, Inserm, Paris, France.; Neurology Department, Pitié-Salpêtrière Hospital, APHP, Paris, France., Dos Santos Silva J; Department of Neurology, Icahn School of Medicine at Mount Sinai, New York, NY, United States.; Programa de Pós Graduação Stricto Senso em Neurologia, Department of Neurology, Fluminense Federal University, Niterói, Brazil., Tunc A; Department of Neurology, Sakarya University Faculty of Medicine, Sakarya, Türkiye., Brichetto G; Research Department, Italian Multiple Sclerosis Foundation, Genoa, Italy., Coetzee T; National Multiple Sclerosis Society, New York, NY, United States., Helme A; Multiple Sclerosis International Federation, London, United Kingdom., Khan U; Institute for Healthcare Policy, KU Leuven, Leuven, Belgium., McBurney R; Accelerated Cure Project, Waltham, MA, United States., Peryer G; Multiple Sclerosis Society UK, London, United Kingdom., Weiland H; Multiple Sclerosis South Africa, Hermanus, Western Cape, South Africa., Baneke P; Multiple Sclerosis International Federation, London, United Kingdom., Battaglia MA; Department of Life Science, University of Siena, Siena, Italy., Block V; University of California, San Francisco, San Francisco, CA, United States., Capezzuto L; Hoffmann-La Roche, Basel, Switzerland., Carment L; Ad Scientiam, Paris, Île-de-France, France., Cortesi PA; Research Centre on Public Health (CESP), University of Milan-Bicocca, Milan, Italy., Cutter G; Department of Biostatistics, School of Public Health, The University of Alabama at Birmingham, Birmingham, AL, United States., Leocani L; University Vita-Salute San Raffaele, Milan, Italy.; Department of Rehabilitation Sciences, Casa di Cura Igea, Milan, Italy., Hartung HP; Department of Neurology, UKD, Medical Faculty, Heinrich Heine Universitat Düsseldorf, Düsseldorf, Germany.; Brain and Mind Center, University of Sydney, Camperdown, NSW, Australia.; Department of Neurology, Medical University of Vienna, Vienna, Austria.; Department of Neurology, Palacky University Olomouc, Olomouc, Czechia., Hillert J; Department of Clinical Neuroscience, Neurogenetics Multiple Sclerosis, Karolinska Institutet, Stockholm, Sweden., Hobart J; Plymouth University Peninsula Schools of Medicine and Dentistry Devon, Plymouth, United Kingdom., Immonen K; European Medicines Agency, Public and Stakeholder Engagement Department, Amsterdam, North Holland, Netherlands., Kamudoni P; Merck KGaA, Darmstadt, Germany., Middleton R; Faculty of Medicine Health and Life-Sciences, Swansea University, Swansea, United Kingdom., Moghames P; European MS Platform, Brussels, Belgium., Montalban X; Hopital Vall d'Hebron, Universitat Autonoma de Barcelona, Barcelona, Spain., Peeters L; Hasselt University-Biomedical Research Institute (BIOMED), Hasselt, Belgium., Sormani MP; Department of Health Sciences, University of Genoa, Genoa, Italy., van Tonder S; European MS Platform, Brussels, Belgium.; MS Lëtzebuerg, Luxembourg, Belgium., White A; National Multiple Sclerosis Society, New York, NY, United States., Comi G; University Vita-Salute San Raffaele, Milan, Italy., Vermersch P; Université de Lille, Inserm LilNCog, CHU Lille, FHU Precise, Lille, France. |
| Source: | Frontiers in neurology [Front Neurol] 2024 Jun 20; Vol. 15, pp. 1407257. Date of Electronic Publication: 2024 Jun 20 (Print Publication: 2024). |
| Publication Type: | Journal Article; Review |
| Journal Info: | Publisher: Frontiers Research Foundation Country of Publication: Switzerland NLM ID: 101546899 Publication Model: eCollection Cited Medium: Print ISSN: 1664-2295 (Print) Linking ISSN: 16642295 NLM ISO Abbreviation: Front Neurol Subsets: PubMed not MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
|---|---|
| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 38974689 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care - updates at the 2023 plenary event. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Zaratin+P%22">Zaratin P</searchLink>; Research Department, Italian Multiple Sclerosis Foundation, Genoa, Italy.<br /><searchLink fieldCode="AU" term="%22Samadzadeh+S%22">Samadzadeh S</searchLink>; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Experimental and Clinical Research Center, Berlin, Germany.; Institute of Regional Health Research and Molecular Medicine, University of Southern Denmark, Odense, Denmark.; Department of Neurology, The Center for Neurological Research, Næstved-Slagelse-Ringsted Hospitals, Slagelse, Denmark.<br /><searchLink fieldCode="AU" term="%22Seferoğlu+M%22">Seferoğlu M</searchLink>; Department of Neurology, Bursa Faculty of Medicine, Bursa Yüksek İhtisas Training and Research Hospital, University of Health Sciences, Bursa, Türkiye.<br /><searchLink fieldCode="AU" term="%22Ricigliano+V%22">Ricigliano V</searchLink>; Sorbonne Université, Paris Brain Institute, ICM, CNRS, Inserm, Paris, France.; Neurology Department, Pitié-Salpêtrière Hospital, APHP, Paris, France.<br /><searchLink fieldCode="AU" term="%22Dos+Santos+Silva+J%22">Dos Santos Silva J</searchLink>; Department of Neurology, Icahn School of Medicine at Mount Sinai, New York, NY, United States.; Programa de Pós Graduação Stricto Senso em Neurologia, Department of Neurology, Fluminense Federal University, Niterói, Brazil.<br /><searchLink fieldCode="AU" term="%22Tunc+A%22">Tunc A</searchLink>; Department of Neurology, Sakarya University Faculty of Medicine, Sakarya, Türkiye.<br /><searchLink fieldCode="AU" term="%22Brichetto+G%22">Brichetto G</searchLink>; Research Department, Italian Multiple Sclerosis Foundation, Genoa, Italy.<br /><searchLink fieldCode="AU" term="%22Coetzee+T%22">Coetzee T</searchLink>; National Multiple Sclerosis Society, New York, NY, United States.<br /><searchLink fieldCode="AU" term="%22Helme+A%22">Helme A</searchLink>; Multiple Sclerosis International Federation, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Khan+U%22">Khan U</searchLink>; Institute for Healthcare Policy, KU Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22McBurney+R%22">McBurney R</searchLink>; Accelerated Cure Project, Waltham, MA, United States.<br /><searchLink fieldCode="AU" term="%22Peryer+G%22">Peryer G</searchLink>; Multiple Sclerosis Society UK, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Weiland+H%22">Weiland H</searchLink>; Multiple Sclerosis South Africa, Hermanus, Western Cape, South Africa.<br /><searchLink fieldCode="AU" term="%22Baneke+P%22">Baneke P</searchLink>; Multiple Sclerosis International Federation, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Battaglia+MA%22">Battaglia MA</searchLink>; Department of Life Science, University of Siena, Siena, Italy.<br /><searchLink fieldCode="AU" term="%22Block+V%22">Block V</searchLink>; University of California, San Francisco, San Francisco, CA, United States.<br /><searchLink fieldCode="AU" term="%22Capezzuto+L%22">Capezzuto L</searchLink>; Hoffmann-La Roche, Basel, Switzerland.<br /><searchLink fieldCode="AU" term="%22Carment+L%22">Carment L</searchLink>; Ad Scientiam, Paris, Île-de-France, France.<br /><searchLink fieldCode="AU" term="%22Cortesi+PA%22">Cortesi PA</searchLink>; Research Centre on Public Health (CESP), University of Milan-Bicocca, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Cutter+G%22">Cutter G</searchLink>; Department of Biostatistics, School of Public Health, The University of Alabama at Birmingham, Birmingham, AL, United States.<br /><searchLink fieldCode="AU" term="%22Leocani+L%22">Leocani L</searchLink>; University Vita-Salute San Raffaele, Milan, Italy.; Department of Rehabilitation Sciences, Casa di Cura Igea, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Hartung+HP%22">Hartung HP</searchLink>; Department of Neurology, UKD, Medical Faculty, Heinrich Heine Universitat Düsseldorf, Düsseldorf, Germany.; Brain and Mind Center, University of Sydney, Camperdown, NSW, Australia.; Department of Neurology, Medical University of Vienna, Vienna, Austria.; Department of Neurology, Palacky University Olomouc, Olomouc, Czechia.<br /><searchLink fieldCode="AU" term="%22Hillert+J%22">Hillert J</searchLink>; Department of Clinical Neuroscience, Neurogenetics Multiple Sclerosis, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Hobart+J%22">Hobart J</searchLink>; Plymouth University Peninsula Schools of Medicine and Dentistry Devon, Plymouth, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Immonen+K%22">Immonen K</searchLink>; European Medicines Agency, Public and Stakeholder Engagement Department, Amsterdam, North Holland, Netherlands.<br /><searchLink fieldCode="AU" term="%22Kamudoni+P%22">Kamudoni P</searchLink>; Merck KGaA, Darmstadt, Germany.<br /><searchLink fieldCode="AU" term="%22Middleton+R%22">Middleton R</searchLink>; Faculty of Medicine Health and Life-Sciences, Swansea University, Swansea, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Moghames+P%22">Moghames P</searchLink>; European MS Platform, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Montalban+X%22">Montalban X</searchLink>; Hopital Vall d'Hebron, Universitat Autonoma de Barcelona, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Peeters+L%22">Peeters L</searchLink>; Hasselt University-Biomedical Research Institute (BIOMED), Hasselt, Belgium.<br /><searchLink fieldCode="AU" term="%22Sormani+MP%22">Sormani MP</searchLink>; Department of Health Sciences, University of Genoa, Genoa, Italy.<br /><searchLink fieldCode="AU" term="%22van+Tonder+S%22">van Tonder S</searchLink>; European MS Platform, Brussels, Belgium.; MS Lëtzebuerg, Luxembourg, Belgium.<br /><searchLink fieldCode="AU" term="%22White+A%22">White A</searchLink>; National Multiple Sclerosis Society, New York, NY, United States.<br /><searchLink fieldCode="AU" term="%22Comi+G%22">Comi G</searchLink>; University Vita-Salute San Raffaele, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Vermersch+P%22">Vermersch P</searchLink>; Université de Lille, Inserm LilNCog, CHU Lille, FHU Precise, Lille, France. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22101546899%22">Frontiers in neurology</searchLink> [Front Neurol] 2024 Jun 20; Vol. 15, pp. 1407257. <i>Date of Electronic Publication: </i>2024 Jun 20 (<i>Print Publication: </i>2024). – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Review – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Frontiers+Research+Foundation%22">Frontiers Research Foundation </searchLink><i>Country of Publication: </i>Switzerland <i>NLM ID: </i>101546899 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Print <i>ISSN: </i>1664-2295 (Print) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2216642295%22">16642295 </searchLink><i>NLM ISO Abbreviation: </i>Front Neurol <i>Subsets: </i>PubMed not MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=38974689 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.3389/fneur.2024.1407257 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 1407257 Titles: – TitleFull: The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care - updates at the 2023 plenary event. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Zaratin P – PersonEntity: Name: NameFull: Samadzadeh S – PersonEntity: Name: NameFull: Seferoğlu M – PersonEntity: Name: NameFull: Ricigliano V – PersonEntity: Name: NameFull: Dos Santos Silva J – PersonEntity: Name: NameFull: Tunc A – PersonEntity: Name: NameFull: Brichetto G – PersonEntity: Name: NameFull: Coetzee T – PersonEntity: Name: NameFull: Helme A – PersonEntity: Name: NameFull: Khan U – PersonEntity: Name: NameFull: McBurney R – PersonEntity: Name: NameFull: Peryer G – PersonEntity: Name: NameFull: Weiland H – PersonEntity: Name: NameFull: Baneke P – PersonEntity: Name: NameFull: Battaglia MA – PersonEntity: Name: NameFull: Block V – PersonEntity: Name: NameFull: Capezzuto L – PersonEntity: Name: NameFull: Carment L – PersonEntity: Name: NameFull: Cortesi PA – PersonEntity: Name: NameFull: Cutter G – PersonEntity: Name: NameFull: Leocani L – PersonEntity: Name: NameFull: Hartung HP – PersonEntity: Name: NameFull: Hillert J – PersonEntity: Name: NameFull: Hobart J – PersonEntity: Name: NameFull: Immonen K – PersonEntity: Name: NameFull: Kamudoni P – PersonEntity: Name: NameFull: Middleton R – PersonEntity: Name: NameFull: Moghames P – PersonEntity: Name: NameFull: Montalban X – PersonEntity: Name: NameFull: Peeters L – PersonEntity: Name: NameFull: Sormani MP – PersonEntity: Name: NameFull: van Tonder S – PersonEntity: Name: NameFull: White A – PersonEntity: Name: NameFull: Comi G – PersonEntity: Name: NameFull: Vermersch P IsPartOfRelationships: – BibEntity: Dates: – D: 20 M: 06 Text: 2024 Jun 20 Type: published Y: 2024 Identifiers: – Type: issn-print Value: 1664-2295 Numbering: – Type: volume Value: 15 Titles: – TitleFull: Frontiers in neurology Type: main |
| ResultId | 1 |
