Current Challenges of Using Patient-Level Claims and Electronic Health Record Data for the Longitudinal Evaluation of Duchenne Muscular Dystrophy Outcomes.

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Title: Current Challenges of Using Patient-Level Claims and Electronic Health Record Data for the Longitudinal Evaluation of Duchenne Muscular Dystrophy Outcomes.
Authors: Gooch KL; Global Health Economics, Patient Centered Outcomes and RWE, Sarepta Therapeutics, Inc., 215 First St, Cambridge, MA, 02142, USA. kgooch@sarepta.com., Audhya I; Global Health Economics, Patient Centered Outcomes and RWE, Sarepta Therapeutics, Inc., 215 First St, Cambridge, MA, 02142, USA., Ricchetti-Masterson K; Global Health Economics, Patient Centered Outcomes and RWE, Sarepta Therapeutics, Inc., 215 First St, Cambridge, MA, 02142, USA., Szabo SM; Pharmacoepidemiology and RWE, Broadstreet HEOR, 343 Railway St, Vancouver, BC, Canada.
Source: Advances in therapy [Adv Ther] 2024 Sep; Vol. 41 (9), pp. 3615-3632. Date of Electronic Publication: 2024 Jul 30.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Health+Communications+Inc%22">Health Communications Inc </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>8611864 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1865-8652 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%220741238X%22">0741238X </searchLink><i>NLM ISO Abbreviation: </i>Adv Ther <i>Subsets: </i>MEDLINE
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        Value: 10.1007/s12325-024-02897-8
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      – Code: eng
        Text: English
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              Text: 2024 Sep
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              Y: 2024
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