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Multi-stakeholder sessions on major innovation topics in rare disease clinical trials.

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Title: Multi-stakeholder sessions on major innovation topics in rare disease clinical trials.
Authors: Bodden D; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany. daniel.bodden@rwth-aachen.de., Schoenen S; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany., Wied S; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany., Verbeeck J; I-BioStat, Data Science Institute, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium., Dirani M; Institut des Maladies Gènètiques Imagine- Necker Enfants malades Hospital, 24 Boulevard du Montparnasse, 75015, Paris, France.; Necker Enfants malades Hospital, 149 Rue de Sèvre, 75015, Paris, France., Abou Daya H; Thematic Institute of Genetics, Genomics & Bioinformatics, INSERM, 8 rue de la Croix Jarry, 75013, Paris, France., Heussen N; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany.; Medical School, Sigmund Freud Private University, Freudplatz 1, 1020, Vienna, Austria., Molenberghs G; I-BioStat, Data Science Institute, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.; I-BioStat, KU Leuven, Kapucijnenvoer 35, 3000, Leuven, Belgium., Hilgers RD; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany., Nabbout R; Institut des Maladies Gènètiques Imagine- Necker Enfants malades Hospital, 24 Boulevard du Montparnasse, 75015, Paris, France.; Necker Enfants malades Hospital, 149 Rue de Sèvre, 75015, Paris, France.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2024 Dec 19; Vol. 19 (1), pp. 467. Date of Electronic Publication: 2024 Dec 19.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Multi-stakeholder sessions on major innovation topics in rare disease clinical trials.
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  Data: <searchLink fieldCode="AU" term="%22Bodden+D%22">Bodden D</searchLink>; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany. daniel.bodden@rwth-aachen.de.<br /><searchLink fieldCode="AU" term="%22Schoenen+S%22">Schoenen S</searchLink>; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany.<br /><searchLink fieldCode="AU" term="%22Wied+S%22">Wied S</searchLink>; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany.<br /><searchLink fieldCode="AU" term="%22Verbeeck+J%22">Verbeeck J</searchLink>; I-BioStat, Data Science Institute, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.<br /><searchLink fieldCode="AU" term="%22Dirani+M%22">Dirani M</searchLink>; Institut des Maladies Gènètiques Imagine- Necker Enfants malades Hospital, 24 Boulevard du Montparnasse, 75015, Paris, France.; Necker Enfants malades Hospital, 149 Rue de Sèvre, 75015, Paris, France.<br /><searchLink fieldCode="AU" term="%22Abou+Daya+H%22">Abou Daya H</searchLink>; Thematic Institute of Genetics, Genomics & Bioinformatics, INSERM, 8 rue de la Croix Jarry, 75013, Paris, France.<br /><searchLink fieldCode="AU" term="%22Heussen+N%22">Heussen N</searchLink>; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany.; Medical School, Sigmund Freud Private University, Freudplatz 1, 1020, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Molenberghs+G%22">Molenberghs G</searchLink>; I-BioStat, Data Science Institute, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.; I-BioStat, KU Leuven, Kapucijnenvoer 35, 3000, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Hilgers+RD%22">Hilgers RD</searchLink>; Institute of Medical Statistics, RWTH Aachen University Aachen, Pauwelsstrasse 19, 52064, Aachen, Germany.<br /><searchLink fieldCode="AU" term="%22Nabbout+R%22">Nabbout R</searchLink>; Institut des Maladies Gènètiques Imagine- Necker Enfants malades Hospital, 24 Boulevard du Montparnasse, 75015, Paris, France.; Necker Enfants malades Hospital, 149 Rue de Sèvre, 75015, Paris, France.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2024 Dec 19; Vol. 19 (1), pp. 467. <i>Date of Electronic Publication: </i>2024 Dec 19.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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              Text: 2024 Dec 19
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