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Study protocol for a prospective natural history registry investigating the relationships between inflammatory markers and disease progression in retinitis pigmentosa: the RP-PRIMARY study.

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Title: Study protocol for a prospective natural history registry investigating the relationships between inflammatory markers and disease progression in retinitis pigmentosa: the RP-PRIMARY study.
Authors: Murakami Y; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan. murakami.yusuke.407@m.kyushu-u.ac.jp., Hisai T; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan., Shimokawa S; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan., Fukushima M; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan., Fujiwara K; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan., Hirata A; Department of Medical Informatics, Faculty of Medical Sciences, Kyushu University, Fukuoka, Japan., Takada A; Medical Information Center, Kyushu University Hospital, Fukuoka, Japan., Miyahara F; Medical Information Center, Kyushu University Hospital, Fukuoka, Japan., Nakashima N; Department of Medical Informatics, Faculty of Medical Sciences, Kyushu University, Fukuoka, Japan.; Medical Information Center, Kyushu University Hospital, Fukuoka, Japan., Kobayakawa Y; Center for Clinical and Translational Research, Kyushu University Hospital, Fukuoka, Japan., Arima M; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan., Mawatari G; Department of Ophthalmology, Faculty of Medicine, University of Miyazaki, Miyazaki, Japan., Ishizu M; Department of Ophthalmology, Faculty of Medicine, University of Miyazaki, Miyazaki, Japan., Kaida T; Miyata Eye Hospital, Miyazaki, Japan., Miyata K; Miyata Eye Hospital, Miyazaki, Japan., Ikeda Y; Department of Ophthalmology, Faculty of Medicine, University of Miyazaki, Miyazaki, Japan., Sonoda KH; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.
Source: Japanese journal of ophthalmology [Jpn J Ophthalmol] 2025 May; Vol. 69 (3), pp. 378-386. Date of Electronic Publication: 2025 Mar 05.
Publication Type: Journal Article; Multicenter Study; Observational Study
Journal Info: Publisher: Springer Tokyo Country of Publication: Japan NLM ID: 0044652 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1613-2246 (Electronic) Linking ISSN: 00215155 NLM ISO Abbreviation: Jpn J Ophthalmol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Study protocol for a prospective natural history registry investigating the relationships between inflammatory markers and disease progression in retinitis pigmentosa: the RP-PRIMARY study.
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  Data: <searchLink fieldCode="AU" term="%22Murakami+Y%22">Murakami Y</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan. murakami.yusuke.407@m.kyushu-u.ac.jp.<br /><searchLink fieldCode="AU" term="%22Hisai+T%22">Hisai T</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.<br /><searchLink fieldCode="AU" term="%22Shimokawa+S%22">Shimokawa S</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.<br /><searchLink fieldCode="AU" term="%22Fukushima+M%22">Fukushima M</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.<br /><searchLink fieldCode="AU" term="%22Fujiwara+K%22">Fujiwara K</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.<br /><searchLink fieldCode="AU" term="%22Hirata+A%22">Hirata A</searchLink>; Department of Medical Informatics, Faculty of Medical Sciences, Kyushu University, Fukuoka, Japan.<br /><searchLink fieldCode="AU" term="%22Takada+A%22">Takada A</searchLink>; Medical Information Center, Kyushu University Hospital, Fukuoka, Japan.<br /><searchLink fieldCode="AU" term="%22Miyahara+F%22">Miyahara F</searchLink>; Medical Information Center, Kyushu University Hospital, Fukuoka, Japan.<br /><searchLink fieldCode="AU" term="%22Nakashima+N%22">Nakashima N</searchLink>; Department of Medical Informatics, Faculty of Medical Sciences, Kyushu University, Fukuoka, Japan.; Medical Information Center, Kyushu University Hospital, Fukuoka, Japan.<br /><searchLink fieldCode="AU" term="%22Kobayakawa+Y%22">Kobayakawa Y</searchLink>; Center for Clinical and Translational Research, Kyushu University Hospital, Fukuoka, Japan.<br /><searchLink fieldCode="AU" term="%22Arima+M%22">Arima M</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.<br /><searchLink fieldCode="AU" term="%22Mawatari+G%22">Mawatari G</searchLink>; Department of Ophthalmology, Faculty of Medicine, University of Miyazaki, Miyazaki, Japan.<br /><searchLink fieldCode="AU" term="%22Ishizu+M%22">Ishizu M</searchLink>; Department of Ophthalmology, Faculty of Medicine, University of Miyazaki, Miyazaki, Japan.<br /><searchLink fieldCode="AU" term="%22Kaida+T%22">Kaida T</searchLink>; Miyata Eye Hospital, Miyazaki, Japan.<br /><searchLink fieldCode="AU" term="%22Miyata+K%22">Miyata K</searchLink>; Miyata Eye Hospital, Miyazaki, Japan.<br /><searchLink fieldCode="AU" term="%22Ikeda+Y%22">Ikeda Y</searchLink>; Department of Ophthalmology, Faculty of Medicine, University of Miyazaki, Miyazaki, Japan.<br /><searchLink fieldCode="AU" term="%22Sonoda+KH%22">Sonoda KH</searchLink>; Department of Ophthalmology, Graduate School of Medical Sciences, Kyushu University, Fukuoka, 812-8582, Japan.
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  Data: <searchLink fieldCode="JN" term="%220044652%22">Japanese journal of ophthalmology</searchLink> [Jpn J Ophthalmol] 2025 May; Vol. 69 (3), pp. 378-386. <i>Date of Electronic Publication: </i>2025 Mar 05.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Tokyo%22">Springer Tokyo </searchLink><i>Country of Publication: </i>Japan <i>NLM ID: </i>0044652 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1613-2246 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200215155%22">00215155 </searchLink><i>NLM ISO Abbreviation: </i>Jpn J Ophthalmol <i>Subsets: </i>MEDLINE
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      – TitleFull: Study protocol for a prospective natural history registry investigating the relationships between inflammatory markers and disease progression in retinitis pigmentosa: the RP-PRIMARY study.
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              Text: 2025 May
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