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Development of a Question Prompt List for People Living With Primary Biliary Cholangitis: A Delphi Study.

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Title: Development of a Question Prompt List for People Living With Primary Biliary Cholangitis: A Delphi Study.
Authors: Werner E; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands., van Hooff MCB; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands., Weijsters GHX; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands., Abbas N; National Institute for Health and Care Research Birmingham Biomedical Research Centre, Centre for Liver and Gastrointestinal Research, University of Birmingham, Birmingham, United Kingdom; Liver Unit, University Hospitals Birmingham, Birmingham, United Kingdom; Institute of Immunity, Immunology and Immunotherapy, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom., Gerussi A; Division of Gastroenterology, Center for Autoimmune Liver Diseases, IRCCS Fondazione San Gerardo dei Tintori - Monza, Monza, Italy; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy., Willemse JA; Dutch Liver Patient Association, Hoogland, the Netherlands., Mitchell-Thain R; PBC Foundation, Edinburgh, United Kingdom., Leburgue A; Association pour la Lutte contre les maladies inflammatoires du foie et des voies Biliaires, Versailles, France., Hirschfield GM; Toronto Centre for Liver Disease, Division of Gastroenterology and Hepatology, University of Toronto, Toronto, Ontario, Canada., Corpechot C; Reference Center for Inflammatory Biliary Diseases and Autoimmune Hepatitis, INSERM UMR_S938, Saint-Antoine Research Center, Saint-Antoine Hospital, Assistance Publique-Hôpitaux de Paris, Sorbonne University, Paris, France., Schramm C; 1st Department of Medicine and Martin Zeitz Center for Rare Diseases, University Medical Center Hamburg-Eppendorf, Hamburg, Germany., Levy C; Division of Digestive Health and Liver Diseases, University of Miami School of Medicine, Miami, Florida., Nevens F; Department of Gastroenterology and Hepatology, University Hospitals KU Leuven, Leuven, Belgium., Verbeek J; Department of Gastroenterology and Hepatology, University Hospitals KU Leuven, Leuven, Belgium., Mason AL; Division of Gastroenterology and Hepatology, University of Alberta, Edmonton, Alberta, Canada., Dalekos G; Department of Medicine and Research Laboratory of Internal Medicine, National Expertise Center of Greece in Autoimmune Liver Diseases, General University Hospital of Larissa, Larissa, Greece., Cazzagon N; Department of Surgery, Oncology and Gastroenterology, University of Padua, Padua, Italy., Mells GF; Academic Department of Medical Genetics, University of Cambridge, Cambridge, United Kingdom., Kowdley KV; Liver Institute Northwest, Seattle, Washington., Carbone M; Division of Gastroenterology, Center for Autoimmune Liver Diseases, IRCCS Fondazione San Gerardo dei Tintori - Monza, Monza, Italy., Jones DE; Translational and Clinical Research Institute, Newcastle University, Newcastle Upon Tyne, United Kingdom., Hansen BE; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands., Trivedi PJ; National Institute for Health and Care Research Birmingham Biomedical Research Centre, Centre for Liver and Gastrointestinal Research, University of Birmingham, Birmingham, United Kingdom; Liver Unit, University Hospitals Birmingham, Birmingham, United Kingdom; Institute of Immunity, Immunology and Immunotherapy, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom; Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom., van der Meer AJ; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands. Electronic address: a.vandermeer@erasmusmc.nl.
Corporate Authors: Global PBC Study Group/ERN RARE-LIVER/Question Prompt List
Source: Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association [Clin Gastroenterol Hepatol] 2025 Oct; Vol. 23 (11), pp. 1935-1942.e5. Date of Electronic Publication: 2025 Apr 15.
Publication Type: Journal Article
Journal Info: Publisher: W.B. Saunders for the American Gastroenterological Association Country of Publication: United States NLM ID: 101160775 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1542-7714 (Electronic) Linking ISSN: 15423565 NLM ISO Abbreviation: Clin Gastroenterol Hepatol Subsets: MEDLINE
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  Data: Development of a Question Prompt List for People Living With Primary Biliary Cholangitis: A Delphi Study.
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  Data: <searchLink fieldCode="AU" term="%22Werner+E%22">Werner E</searchLink>; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22van+Hooff+MCB%22">van Hooff MCB</searchLink>; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Weijsters+GHX%22">Weijsters GHX</searchLink>; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Abbas+N%22">Abbas N</searchLink>; National Institute for Health and Care Research Birmingham Biomedical Research Centre, Centre for Liver and Gastrointestinal Research, University of Birmingham, Birmingham, United Kingdom; Liver Unit, University Hospitals Birmingham, Birmingham, United Kingdom; Institute of Immunity, Immunology and Immunotherapy, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Gerussi+A%22">Gerussi A</searchLink>; Division of Gastroenterology, Center for Autoimmune Liver Diseases, IRCCS Fondazione San Gerardo dei Tintori - Monza, Monza, Italy; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Willemse+JA%22">Willemse JA</searchLink>; Dutch Liver Patient Association, Hoogland, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Mitchell-Thain+R%22">Mitchell-Thain R</searchLink>; PBC Foundation, Edinburgh, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Leburgue+A%22">Leburgue A</searchLink>; Association pour la Lutte contre les maladies inflammatoires du foie et des voies Biliaires, Versailles, France.<br /><searchLink fieldCode="AU" term="%22Hirschfield+GM%22">Hirschfield GM</searchLink>; Toronto Centre for Liver Disease, Division of Gastroenterology and Hepatology, University of Toronto, Toronto, Ontario, Canada.<br /><searchLink fieldCode="AU" term="%22Corpechot+C%22">Corpechot C</searchLink>; Reference Center for Inflammatory Biliary Diseases and Autoimmune Hepatitis, INSERM UMR_S938, Saint-Antoine Research Center, Saint-Antoine Hospital, Assistance Publique-Hôpitaux de Paris, Sorbonne University, Paris, France.<br /><searchLink fieldCode="AU" term="%22Schramm+C%22">Schramm C</searchLink>; 1st Department of Medicine and Martin Zeitz Center for Rare Diseases, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Levy+C%22">Levy C</searchLink>; Division of Digestive Health and Liver Diseases, University of Miami School of Medicine, Miami, Florida.<br /><searchLink fieldCode="AU" term="%22Nevens+F%22">Nevens F</searchLink>; Department of Gastroenterology and Hepatology, University Hospitals KU Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Verbeek+J%22">Verbeek J</searchLink>; Department of Gastroenterology and Hepatology, University Hospitals KU Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Mason+AL%22">Mason AL</searchLink>; Division of Gastroenterology and Hepatology, University of Alberta, Edmonton, Alberta, Canada.<br /><searchLink fieldCode="AU" term="%22Dalekos+G%22">Dalekos G</searchLink>; Department of Medicine and Research Laboratory of Internal Medicine, National Expertise Center of Greece in Autoimmune Liver Diseases, General University Hospital of Larissa, Larissa, Greece.<br /><searchLink fieldCode="AU" term="%22Cazzagon+N%22">Cazzagon N</searchLink>; Department of Surgery, Oncology and Gastroenterology, University of Padua, Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Mells+GF%22">Mells GF</searchLink>; Academic Department of Medical Genetics, University of Cambridge, Cambridge, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Kowdley+KV%22">Kowdley KV</searchLink>; Liver Institute Northwest, Seattle, Washington.<br /><searchLink fieldCode="AU" term="%22Carbone+M%22">Carbone M</searchLink>; Division of Gastroenterology, Center for Autoimmune Liver Diseases, IRCCS Fondazione San Gerardo dei Tintori - Monza, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Jones+DE%22">Jones DE</searchLink>; Translational and Clinical Research Institute, Newcastle University, Newcastle Upon Tyne, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Hansen+BE%22">Hansen BE</searchLink>; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Trivedi+PJ%22">Trivedi PJ</searchLink>; National Institute for Health and Care Research Birmingham Biomedical Research Centre, Centre for Liver and Gastrointestinal Research, University of Birmingham, Birmingham, United Kingdom; Liver Unit, University Hospitals Birmingham, Birmingham, United Kingdom; Institute of Immunity, Immunology and Immunotherapy, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom; Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22van+der+Meer+AJ%22">van der Meer AJ</searchLink>; Department of Gastroenterology and Hepatology, Erasmus Medical Center, Rotterdam, the Netherlands. Electronic address: a.vandermeer@erasmusmc.nl.
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  Data: <searchLink fieldCode="JN" term="%22101160775%22">Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association</searchLink> [Clin Gastroenterol Hepatol] 2025 Oct; Vol. 23 (11), pp. 1935-1942.e5. <i>Date of Electronic Publication: </i>2025 Apr 15.
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