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Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study.

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Title: Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study.
Authors: Drahos J; Vertex Pharmaceuticals Incorporated, Boston, MA, USA. Jennifer_Drahos@vrtx.com., Boateng-Kuffour A; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration, University of Birmingham, West Midlands, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK., Levine L; Independent Consultant, CA, USA., Dongha N; Independent Consultant, London, UK., Li N; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Pakbaz Z; Division of Hematology Oncology, University of California Irvine School of Medicine, Orange, CA, USA., Shah FT; NHS Blood and Transplant, London, UK., Ainsworth N; QC Medica, Liverpool, UK., Martin AP; QC Medica, Liverpool, UK.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jul; Vol. 34 (7), pp. 2005-2017. Date of Electronic Publication: 2025 Apr 17.
Publication Type: Journal Article
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study.
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  Data: <searchLink fieldCode="AU" term="%22Drahos+J%22">Drahos J</searchLink>; Vertex Pharmaceuticals Incorporated, Boston, MA, USA. Jennifer_Drahos@vrtx.com.<br /><searchLink fieldCode="AU" term="%22Boateng-Kuffour+A%22">Boateng-Kuffour A</searchLink>; Vertex Pharmaceuticals Incorporated, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Calvert+M%22">Calvert M</searchLink>; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration, University of Birmingham, West Midlands, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Levine+L%22">Levine L</searchLink>; Independent Consultant, CA, USA.<br /><searchLink fieldCode="AU" term="%22Dongha+N%22">Dongha N</searchLink>; Independent Consultant, London, UK.<br /><searchLink fieldCode="AU" term="%22Li+N%22">Li N</searchLink>; Vertex Pharmaceuticals Incorporated, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Pakbaz+Z%22">Pakbaz Z</searchLink>; Division of Hematology Oncology, University of California Irvine School of Medicine, Orange, CA, USA.<br /><searchLink fieldCode="AU" term="%22Shah+FT%22">Shah FT</searchLink>; NHS Blood and Transplant, London, UK.<br /><searchLink fieldCode="AU" term="%22Ainsworth+N%22">Ainsworth N</searchLink>; QC Medica, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Martin+AP%22">Martin AP</searchLink>; QC Medica, Liverpool, UK.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Netherlands%22">Springer Netherlands </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>9210257 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1573-2649 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209629343%22">09629343 </searchLink><i>NLM ISO Abbreviation: </i>Qual Life Res <i>Subsets: </i>MEDLINE
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        Value: 10.1007/s11136-025-03961-8
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        Text: English
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        StartPage: 2005
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      – TitleFull: Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study.
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              Text: 2025 Jul
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