Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study.

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Bibliographic Details
Title: Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study.
Authors: Drahos J; Vertex Pharmaceuticals Incorporated, Boston, MA, USA. Jennifer_Drahos@vrtx.com., Boateng-Kuffour A; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration, University of Birmingham, West Midlands, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK., Levine L; Independent Consultant, CA, USA., Dongha N; Independent Consultant, London, UK., Li N; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Pakbaz Z; Division of Hematology Oncology, University of California Irvine School of Medicine, Orange, CA, USA., Shah FT; NHS Blood and Transplant, London, UK., Ainsworth N; QC Medica, Liverpool, UK., Martin AP; QC Medica, Liverpool, UK.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jul; Vol. 34 (7), pp. 2005-2017. Date of Electronic Publication: 2025 Apr 17.
Publication Type: Journal Article
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
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