Advancing patient evidence in XLH (APEX): rationale and design of a real-world XLH global data unification program.
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| Title: | Advancing patient evidence in XLH (APEX): rationale and design of a real-world XLH global data unification program. |
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| Authors: | Brandi ML; Fondazione Italiana Ricerca sulle Malattie dell'Osso (FIRMO), Florence, Italy., Carpenter TO; Department of Pediatrics, Section of Endocrinology, Yale School of Medicine, New Haven, CT, United States., Fukumoto S; Tamaki - Aozora Hospital, Tokushima, Japan., Haffner D; Department for Pediatric Kidney, Liver, Metabolic and Neurological Diseases, Hannover Medical School, Hannover, Germany., Imel EA; Departments of Medicine and Pediatrics, Indiana University School of Medicine, Indianapolis, IN, United States., Kanematsu M; Kyowa Kirin Corporation, Tokyo, Japan., McCullough KP; Arbor Research Collaborative for Health, Ann Arbor, MI, United States., Ozono K; ISEIKAI International General Hospital, Osaka, Japan. |
| Source: | Frontiers in endocrinology [Front Endocrinol (Lausanne)] 2025 Apr 07; Vol. 16, pp. 1471127. Date of Electronic Publication: 2025 Apr 07 (Print Publication: 2025). |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Frontiers Research Foundation] Country of Publication: Switzerland NLM ID: 101555782 Publication Model: eCollection Cited Medium: Print ISSN: 1664-2392 (Print) Linking ISSN: 16642392 NLM ISO Abbreviation: Front Endocrinol (Lausanne) Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1664-2392 |
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| DOI: | 10.3389/fendo.2025.1471127 |
