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Navigating disruption in the PID landscape: embracing opportunities and anticipating threats in the next ten years.

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Title: Navigating disruption in the PID landscape: embracing opportunities and anticipating threats in the next ten years.
Authors: Mamede L; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium., Sabà RC; Catalan Health Service, Barcelona, Spain.; Digitalization for the Sustainability of the Healthcare System (DS3) research group - Instituto de Investigación Biomédica de Bellvitge (IDIBELL), Barcelona, Spain., Van Coillie S; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium., Prévot J; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium., Sánchez-Ramón S; Department of Clinical Immunology, Instituto de Medicina de Laboratorio (IML) and Health Research Institute of the Hospital Clínico San Carlos (IdISSC), Madrid, Spain., Poli C; Facultad de Medicina Clínica Alemana de Santiago, Universidad del Desarrollo, Santiago, Chile.; Programa de Inmunogenética e Inmunología Traslacional, Instituto de Ciencias e Innovación en Medicina, Facultad de Medicina, Santiago, Chile.; Unidad de Inmunología y Reumatología, Hospital Roberto del Río, Santiago, Chile., Barasa A; Immunology Unit, Department of Human Pathology, University of Nairobi, Nairobi, Kenya., Schuller BW; CHI - the Chair of Health Informatics, Technical University of Munich University Hospital, Munich, Germany.; Munich Data Science Institute (MDSI), München, Germany.; the Munich Center for Machine Learning (MCML), München, Germany., Hendel A; Institute of Nanotechnology and Advanced Materials, The Goodman Faculty of Life Sciences, Bar-Ilan University, Ramat Gan, Israel., Garcelon N; Université de Paris, Imagine Institute, Data Science Platform, INSERM UMR 1163, Paris, France., Boersma C; Health-Ecore B.V., Zeist, Netherlands.; Unit of Global Health, Department of Health Sciences, University Medical Center Groningen (UMCG), University of Groningen, Groningen, Netherlands.; Department of Management Sciences, Open University, Heerlen, Netherlands., Lee P; Department of Paediatrics and Adolescent Medicine, LKS Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China., Booth C; Department of Paediatric Immunology and Gene Therapy, Great Ormond Street Hospital, London, United Kingdom.; Infection, Immunity and Inflammation Department, UCL Great Ormond Street Institute of Child Health, London, United Kingdom., Notarangelo LD; Laboratory of Clinical Immunology and Microbiology, National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, United States., Drabwell J; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium., Rider NL; Department of Health Systems and Implementation Science, Virginia Tech Carilion School of Medicine, Roanoke, VA, United States., Staal FJT; The Department of Pediatrics, Pediatric Stem Cell Transplantation Program, Willem-Alexander Children's Hospital, Leiden, Netherlands.; The Department of Immunology, Leiden University Medical Center, Leiden, Netherlands., Burns SO; Department of Immunology, Royal Free London NHS Foundation Trust, London, United Kingdom.; Institute of Immunity and Transplantation, University College London, London, United Kingdom., Van Hagen M; Departments of Internal Medicine, Division of Allergy & Clinical Immunology, Immunology, Erasmus University Medical Center Rotterdam, Rotterdam, Netherlands.; Department of Microbiology, Chulalongkorn University, Bangkok, Thailand.; Department of Internal Medicine, Clinical Immunology, Cipto Hospital, Universitas Indonesia, Jakarta, Indonesia., Pergent M; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium., Rivière JG; Universitat Autònoma de Barcelona (UAB), Barcelona, Catalonia, Spain.; Infection and Immunity in Pediatric Patients Research Group, Vall d'Hebron Institut de Recerca (VHIR), Barcelona, Catalonia, Spain.; Pediatric Infectious Diseases and Immunodeficiencies Unit, Hospital Infantil I de La Dona Vall d'Hebron, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Catalonia, Spain.; Jeffrey Modell Diagnostic and Research Center for Primary Immunodeficiencies, Barcelona, Catalonia, Spain., Mahlaoui N; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.; Pediatric Hematology-Immunology and Rheumatology Unit, Necker-Enfants malades University Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.; French National Reference Center for Primary Immune Deficiencies (CEREDIH), Necker-Enfants malades University Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.
Source: Frontiers in immunology [Front Immunol] 2025 Jun 17; Vol. 16, pp. 1596971. Date of Electronic Publication: 2025 Jun 17 (Print Publication: 2025).
Publication Type: Journal Article; Review
Journal Info: Publisher: Frontiers Research Foundation] Country of Publication: Switzerland NLM ID: 101560960 Publication Model: eCollection Cited Medium: Internet ISSN: 1664-3224 (Electronic) Linking ISSN: 16643224 NLM ISO Abbreviation: Front Immunol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Navigating disruption in the PID landscape: embracing opportunities and anticipating threats in the next ten years.
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  Data: <searchLink fieldCode="AU" term="%22Mamede+L%22">Mamede L</searchLink>; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Sabà+RC%22">Sabà RC</searchLink>; Catalan Health Service, Barcelona, Spain.; Digitalization for the Sustainability of the Healthcare System (DS3) research group - Instituto de Investigación Biomédica de Bellvitge (IDIBELL), Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Van+Coillie+S%22">Van Coillie S</searchLink>; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Prévot+J%22">Prévot J</searchLink>; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Sánchez-Ramón+S%22">Sánchez-Ramón S</searchLink>; Department of Clinical Immunology, Instituto de Medicina de Laboratorio (IML) and Health Research Institute of the Hospital Clínico San Carlos (IdISSC), Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Poli+C%22">Poli C</searchLink>; Facultad de Medicina Clínica Alemana de Santiago, Universidad del Desarrollo, Santiago, Chile.; Programa de Inmunogenética e Inmunología Traslacional, Instituto de Ciencias e Innovación en Medicina, Facultad de Medicina, Santiago, Chile.; Unidad de Inmunología y Reumatología, Hospital Roberto del Río, Santiago, Chile.<br /><searchLink fieldCode="AU" term="%22Barasa+A%22">Barasa A</searchLink>; Immunology Unit, Department of Human Pathology, University of Nairobi, Nairobi, Kenya.<br /><searchLink fieldCode="AU" term="%22Schuller+BW%22">Schuller BW</searchLink>; CHI - the Chair of Health Informatics, Technical University of Munich University Hospital, Munich, Germany.; Munich Data Science Institute (MDSI), München, Germany.; the Munich Center for Machine Learning (MCML), München, Germany.<br /><searchLink fieldCode="AU" term="%22Hendel+A%22">Hendel A</searchLink>; Institute of Nanotechnology and Advanced Materials, The Goodman Faculty of Life Sciences, Bar-Ilan University, Ramat Gan, Israel.<br /><searchLink fieldCode="AU" term="%22Garcelon+N%22">Garcelon N</searchLink>; Université de Paris, Imagine Institute, Data Science Platform, INSERM UMR 1163, Paris, France.<br /><searchLink fieldCode="AU" term="%22Boersma+C%22">Boersma C</searchLink>; Health-Ecore B.V., Zeist, Netherlands.; Unit of Global Health, Department of Health Sciences, University Medical Center Groningen (UMCG), University of Groningen, Groningen, Netherlands.; Department of Management Sciences, Open University, Heerlen, Netherlands.<br /><searchLink fieldCode="AU" term="%22Lee+P%22">Lee P</searchLink>; Department of Paediatrics and Adolescent Medicine, LKS Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China.<br /><searchLink fieldCode="AU" term="%22Booth+C%22">Booth C</searchLink>; Department of Paediatric Immunology and Gene Therapy, Great Ormond Street Hospital, London, United Kingdom.; Infection, Immunity and Inflammation Department, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Notarangelo+LD%22">Notarangelo LD</searchLink>; Laboratory of Clinical Immunology and Microbiology, National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, United States.<br /><searchLink fieldCode="AU" term="%22Drabwell+J%22">Drabwell J</searchLink>; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Rider+NL%22">Rider NL</searchLink>; Department of Health Systems and Implementation Science, Virginia Tech Carilion School of Medicine, Roanoke, VA, United States.<br /><searchLink fieldCode="AU" term="%22Staal+FJT%22">Staal FJT</searchLink>; The Department of Pediatrics, Pediatric Stem Cell Transplantation Program, Willem-Alexander Children's Hospital, Leiden, Netherlands.; The Department of Immunology, Leiden University Medical Center, Leiden, Netherlands.<br /><searchLink fieldCode="AU" term="%22Burns+SO%22">Burns SO</searchLink>; Department of Immunology, Royal Free London NHS Foundation Trust, London, United Kingdom.; Institute of Immunity and Transplantation, University College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Van+Hagen+M%22">Van Hagen M</searchLink>; Departments of Internal Medicine, Division of Allergy & Clinical Immunology, Immunology, Erasmus University Medical Center Rotterdam, Rotterdam, Netherlands.; Department of Microbiology, Chulalongkorn University, Bangkok, Thailand.; Department of Internal Medicine, Clinical Immunology, Cipto Hospital, Universitas Indonesia, Jakarta, Indonesia.<br /><searchLink fieldCode="AU" term="%22Pergent+M%22">Pergent M</searchLink>; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Rivière+JG%22">Rivière JG</searchLink>; Universitat Autònoma de Barcelona (UAB), Barcelona, Catalonia, Spain.; Infection and Immunity in Pediatric Patients Research Group, Vall d'Hebron Institut de Recerca (VHIR), Barcelona, Catalonia, Spain.; Pediatric Infectious Diseases and Immunodeficiencies Unit, Hospital Infantil I de La Dona Vall d'Hebron, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Catalonia, Spain.; Jeffrey Modell Diagnostic and Research Center for Primary Immunodeficiencies, Barcelona, Catalonia, Spain.<br /><searchLink fieldCode="AU" term="%22Mahlaoui+N%22">Mahlaoui N</searchLink>; International Patient Organisation for Primary Immunodeficiencies (IPOPI)I, Brussels, Belgium.; Pediatric Hematology-Immunology and Rheumatology Unit, Necker-Enfants malades University Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.; French National Reference Center for Primary Immune Deficiencies (CEREDIH), Necker-Enfants malades University Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.
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  Data: <searchLink fieldCode="JN" term="%22101560960%22">Frontiers in immunology</searchLink> [Front Immunol] 2025 Jun 17; Vol. 16, pp. 1596971. <i>Date of Electronic Publication: </i>2025 Jun 17 (<i>Print Publication: </i>2025).
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