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Unmet needs in hereditary angioedema: an international survey of physicians.

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Title: Unmet needs in hereditary angioedema: an international survey of physicians.
Authors: Buttgereit T; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany. thomas.buttgereit@charite.de.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany. thomas.buttgereit@charite.de., Aulenbacher F; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Adatia A; Division of Pulmonary Medicine, Department of Medicine, University of Alberta, Edmonton, AB, Canada., Ayala CV; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Al-Nesf MA; Allergy and Immunology Division, Department of Medicine, Hamad Medical Corporation, Doha, Qatar., Altrichter S; Department of Dermatology and Venereology, Kepler University Hospital, Linz, Austria.; Center for Medical Research, Johannes Kepler Universität Linz, Linz, Austria., Abuzakouk M; Cleveland Clinic, Cleveland, OH, USA.; Respiratory Institute, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates., Al-Ahmad M; Department of Microbiology, College of Medicine, Kuwait University, Kuwait City, Kuwait., Ali RM; Allergy and Immunology Division, Department of Medicine, Hamad Medical Corporation, Doha, Qatar., Berardi A; Instituto de Asma, Alergia y Enfermedades Respiratorias, GA²LEN UCARE Urticaria Centers of Reference and Excellence, GA²LEN ACARE Angioedema Centers of Reference and Excellence, Corrientes, Argentina., Boccon-Gibod I; French National Reference Center for Angioedema (CREAK) and ACARE, Internal Medicine Department, Grenoble Alpes University Hospital (CHUGA), Grenoble, France., Bouillet L; Grenoble Alpes University, T-RAIG Unit, CNRS, UMR 5525, TIMC, French National Reference Center for Angioedema (CREAK), Internal Medicine Department, Grenoble Alpes University Hospital, Grenoble, France., Brussino L; Immunology and Allergy Department, AO Ordine Mauriziano, Department of Medical Science, University of Turin, Turin, Italy., Barešić M; Division of Clinical Immunology and Rheumatology, Department of Internal Medicine, School of Medicine, University Hospital Center Zagreb, Zagreb, Croatia., Busse PJ; Division of Clinical Immunology, Department of Medicine, Mount Sinai, New York, NY, USA., Betschel SD; Division of Clinical Immunology and Allergy, Department of Medicine, University of Toronto, Toronto, ON, Canada., Chong-Neto H; Department of Pediatrics, Federal University of Paraná, Curitiba, Brazil., Llosa OC; ACARE Center Clínica, SANNA El Golf, Lima, Peru., Craig TJ; Vinmec International Hospital, Times City, Hanoi, Vietnam., Dorr AD; Department of Clinical Immunology, Barts Health NHS Trust, London, UK., Junior SDD; Serviço de Imunologia, Hospital Universitário Clementino Fraga Filho (HUCFF-UFRJ), Rio de Janeiro, Brazil., Fomina D; Moscow City Clinical and Research Center of Allergology and Immunology, City Clinical Hospital 52, Moscow, Russia.; GA²LEN UCARE and ACARE Center, Department of Clinical Immunology and Allergology, I.M. Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russia.; Department of Pulmonology, Astana Medical University, Astana, Kazakhstan., Farkas H; Hungarian Angioedema Center of Reference and Excellence, Department of Internal Medicine and Haematology, Semmelweis University, Budapest, Hungary., Fok JS; Department of Respiratory Medicine, Box Hill Hospital, Melbourne, Australia.; Monash Lung, Sleep, Allergy/Immunology, Monash Medical Centre, Melbourne, Australia.; Eastern Health Clinical School, Monash University, Melbourne, Australia., Grumach AS; Clinical Immunology, Faculty of Medicine, Centro Universitario FMABC, Santo Andre, Brazil., Greve J; Department of Otorhinolaryngology, Head and Neck Surgery, Ulm University Medical Center, Ulm, Germany., Guilarte M; Department of Allergy, Angioedema Reference Center (CSUR), Hospital Universitari Vall d'Hebron, Institut de Recerca Vall d'Hebron (VHIR), Barcelona, Spain., Gonçalo M; Dermatology Department, University Hospital, Coimbra Local Health Unit and Faculty of Medicine, University of Coimbra, Coimbra, Portugal., Grivcheva-Panovska V; University Clinic of Dermatology, School of Medicine, University St. Cyril and Methodius, Skopje, North Macedonia., Hide M; Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan.; Department of Dermatology, Hiroshima University Hospital, Hiroshima, Japan., Hakl R; Department of Clinical Immunology and Allergology, St. Anne's University Hospital Brno, Brno, Czech Republic.; Faculty of Medicine, Masaryk University, Brno, Czech Republic., Jindal A; Allergy Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Post Graduate Institute of Medical Education and Research, Chandigarh, India., Katelaris CH; Immunology & Allergy Unit, Department of Medicine, Campbelltown Hospital and Western Sydney University, Sydney, Australia., Kamaleswaran S; Dermatology and Allergy Center, Odense Universitetshospital, Svendborg Sygehus, Nyborg Sygehus, Denmark., Kinaciyan T; Department of Dermatology, Medical University of Vienna, Vienna, Austria., Latysheva E; Immunopathology Department, NRC Institute of Immunology FMBA Russia, Pirogov Russian National Research Medical University, Moscow, Russia., Sousa JIL; Allergy Department, Clínica San Felipe, Lima, Peru., Bellfill RL; Allergology Department, Hospital Universitari de Bellvitge, Institut de Recerca IDIBELL L'Hospitalet de Llobregat, Barcelona, Spain., Mobayed H; Allergy and Immunology Division, Department of Medicine, Hamad Medical Corporation, Doha, Qatar., Metz M; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Nasr I; Adult Immunology and Allergy Unit, Royal Hospital, Muscat, Oman., Mitrevska NT; Department of Dermatology, Re-Medika Hospital, Skopje, North Macedonia., Nicola S; Immunology and Allergy Department, AO Ordine Mauriziano, Department of Medical Science, University of Turin, Turin, Italy., Parisi CAS; Secciones de Alergia Adultos y Pediátrica, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina., Porebski G; Department of Clinical and Environmental Allergology, Jagiellonian University Medical College, Krakow, Poland., Peter J; Division of Allergy and Clinical Immunology, Department of Medicine, University of Cape Town, Cape Town, South Africa.; Allergy and Immunology Unit, University of Cape Town Lung Institute, Cape Town, South Africa., Ferriani MPL; Department of Medicine, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil., Filho NR; Department of Pediatrics, Federal University of Paraná, Curitiba, Brazil., Şekerel BE; Faculty of Medicine, Pediatric Allergy and Asthma Division, Hacettepe University, Ankara, Turkey., Serpa FS; Asthma, Allergy and Immunology Service, Escola Superior de Ciências da Santa Casa de Misericórdia de Vitória, Espírito Santo, Brazil., Stobiecki M; Department of Clinical and Environmental Allergology, Jagiellonian University Medical College, Krakow, Poland., Trainotti S; TUM School of Medicine and Health, Department of Otorhinolaryngology, Head and Neck Surgery, TUM University Hospital, Munich, Germany., Valerieva A; Department of Allergology, Medical University of Sofia, University Hospital Alexandrovska, Sofia, Bulgaria., Wongsa C; Division of Allergy and Clinical Immunology, Department of Medicine, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand., Wong JCY; Division of Rheumatology and Clinical Immunology, Department of Medicine, Queen Mary Hospital, Hong Kong, Hong Kong., Yucel E; Istanbul Faculty of Medicine, Department of Pediatric Allergy and Immunology, Istanbul University, Istanbul, Turkey.; Cerrahpasa Faculty of Medicine, Department of Pediatric Allergy and Immunology, Istanbul University Cerrahpasa, Istanbul, Turkey., Li Y; CSL Behring, King of Prussia, PA, USA., Nenci C; CSL Behring LLC, Bern, Switzerland., Maurer M; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Magerl M; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Li PH; Division of Rheumatology and Clinical Immunology, Department of Medicine, The University of Hong Kong, Hong Kong, Hong Kong.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Jul 28; Vol. 20 (1), pp. 383. Date of Electronic Publication: 2025 Jul 28.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
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  Data: Unmet needs in hereditary angioedema: an international survey of physicians.
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  Data: <searchLink fieldCode="AU" term="%22Buttgereit+T%22">Buttgereit T</searchLink>; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany. thomas.buttgereit@charite.de.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany. thomas.buttgereit@charite.de.<br /><searchLink fieldCode="AU" term="%22Aulenbacher+F%22">Aulenbacher F</searchLink>; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Adatia+A%22">Adatia A</searchLink>; Division of Pulmonary Medicine, Department of Medicine, University of Alberta, Edmonton, AB, Canada.<br /><searchLink fieldCode="AU" term="%22Ayala+CV%22">Ayala CV</searchLink>; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Al-Nesf+MA%22">Al-Nesf MA</searchLink>; Allergy and Immunology Division, Department of Medicine, Hamad Medical Corporation, Doha, Qatar.<br /><searchLink fieldCode="AU" term="%22Altrichter+S%22">Altrichter S</searchLink>; Department of Dermatology and Venereology, Kepler University Hospital, Linz, Austria.; Center for Medical Research, Johannes Kepler Universität Linz, Linz, Austria.<br /><searchLink fieldCode="AU" term="%22Abuzakouk+M%22">Abuzakouk M</searchLink>; Cleveland Clinic, Cleveland, OH, USA.; Respiratory Institute, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates.<br /><searchLink fieldCode="AU" term="%22Al-Ahmad+M%22">Al-Ahmad M</searchLink>; Department of Microbiology, College of Medicine, Kuwait University, Kuwait City, Kuwait.<br /><searchLink fieldCode="AU" term="%22Ali+RM%22">Ali RM</searchLink>; Allergy and Immunology Division, Department of Medicine, Hamad Medical Corporation, Doha, Qatar.<br /><searchLink fieldCode="AU" term="%22Berardi+A%22">Berardi A</searchLink>; Instituto de Asma, Alergia y Enfermedades Respiratorias, GA²LEN UCARE Urticaria Centers of Reference and Excellence, GA²LEN ACARE Angioedema Centers of Reference and Excellence, Corrientes, Argentina.<br /><searchLink fieldCode="AU" term="%22Boccon-Gibod+I%22">Boccon-Gibod I</searchLink>; French National Reference Center for Angioedema (CREAK) and ACARE, Internal Medicine Department, Grenoble Alpes University Hospital (CHUGA), Grenoble, France.<br /><searchLink fieldCode="AU" term="%22Bouillet+L%22">Bouillet L</searchLink>; Grenoble Alpes University, T-RAIG Unit, CNRS, UMR 5525, TIMC, French National Reference Center for Angioedema (CREAK), Internal Medicine Department, Grenoble Alpes University Hospital, Grenoble, France.<br /><searchLink fieldCode="AU" term="%22Brussino+L%22">Brussino L</searchLink>; Immunology and Allergy Department, AO Ordine Mauriziano, Department of Medical Science, University of Turin, Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Barešić+M%22">Barešić M</searchLink>; Division of Clinical Immunology and Rheumatology, Department of Internal Medicine, School of Medicine, University Hospital Center Zagreb, Zagreb, Croatia.<br /><searchLink fieldCode="AU" term="%22Busse+PJ%22">Busse PJ</searchLink>; Division of Clinical Immunology, Department of Medicine, Mount Sinai, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Betschel+SD%22">Betschel SD</searchLink>; Division of Clinical Immunology and Allergy, Department of Medicine, University of Toronto, Toronto, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Chong-Neto+H%22">Chong-Neto H</searchLink>; Department of Pediatrics, Federal University of Paraná, Curitiba, Brazil.<br /><searchLink fieldCode="AU" term="%22Llosa+OC%22">Llosa OC</searchLink>; ACARE Center Clínica, SANNA El Golf, Lima, Peru.<br /><searchLink fieldCode="AU" term="%22Craig+TJ%22">Craig TJ</searchLink>; Vinmec International Hospital, Times City, Hanoi, Vietnam.<br /><searchLink fieldCode="AU" term="%22Dorr+AD%22">Dorr AD</searchLink>; Department of Clinical Immunology, Barts Health NHS Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Junior+SDD%22">Junior SDD</searchLink>; Serviço de Imunologia, Hospital Universitário Clementino Fraga Filho (HUCFF-UFRJ), Rio de Janeiro, Brazil.<br /><searchLink fieldCode="AU" term="%22Fomina+D%22">Fomina D</searchLink>; Moscow City Clinical and Research Center of Allergology and Immunology, City Clinical Hospital 52, Moscow, Russia.; GA²LEN UCARE and ACARE Center, Department of Clinical Immunology and Allergology, I.M. 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Department of Allergy, Angioedema Reference Center (CSUR), Hospital Universitari Vall d'Hebron, Institut de Recerca Vall d'Hebron (VHIR), Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Gonçalo+M%22">Gonçalo M</searchLink>; Dermatology Department, University Hospital, Coimbra Local Health Unit and Faculty of Medicine, University of Coimbra, Coimbra, Portugal.<br /><searchLink fieldCode="AU" term="%22Grivcheva-Panovska+V%22">Grivcheva-Panovska V</searchLink>; University Clinic of Dermatology, School of Medicine, University St. Cyril and Methodius, Skopje, North Macedonia.<br /><searchLink fieldCode="AU" term="%22Hide+M%22">Hide M</searchLink>; Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan.; Department of Dermatology, Hiroshima University Hospital, Hiroshima, Japan.<br /><searchLink fieldCode="AU" term="%22Hakl+R%22">Hakl R</searchLink>; Department of Clinical Immunology and Allergology, St. Anne's University Hospital Brno, Brno, Czech Republic.; 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Allergy Department, Clínica San Felipe, Lima, Peru.<br /><searchLink fieldCode="AU" term="%22Bellfill+RL%22">Bellfill RL</searchLink>; Allergology Department, Hospital Universitari de Bellvitge, Institut de Recerca IDIBELL L'Hospitalet de Llobregat, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Mobayed+H%22">Mobayed H</searchLink>; Allergy and Immunology Division, Department of Medicine, Hamad Medical Corporation, Doha, Qatar.<br /><searchLink fieldCode="AU" term="%22Metz+M%22">Metz M</searchLink>; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Nasr+I%22">Nasr I</searchLink>; Adult Immunology and Allergy Unit, Royal Hospital, Muscat, Oman.<br /><searchLink fieldCode="AU" term="%22Mitrevska+NT%22">Mitrevska NT</searchLink>; 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Department of Medicine, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.<br /><searchLink fieldCode="AU" term="%22Filho+NR%22">Filho NR</searchLink>; Department of Pediatrics, Federal University of Paraná, Curitiba, Brazil.<br /><searchLink fieldCode="AU" term="%22Şekerel+BE%22">Şekerel BE</searchLink>; Faculty of Medicine, Pediatric Allergy and Asthma Division, Hacettepe University, Ankara, Turkey.<br /><searchLink fieldCode="AU" term="%22Serpa+FS%22">Serpa FS</searchLink>; Asthma, Allergy and Immunology Service, Escola Superior de Ciências da Santa Casa de Misericórdia de Vitória, Espírito Santo, Brazil.<br /><searchLink fieldCode="AU" term="%22Stobiecki+M%22">Stobiecki M</searchLink>; Department of Clinical and Environmental Allergology, Jagiellonian University Medical College, Krakow, Poland.<br /><searchLink fieldCode="AU" term="%22Trainotti+S%22">Trainotti S</searchLink>; TUM School of Medicine and Health, Department of Otorhinolaryngology, Head and Neck Surgery, TUM University Hospital, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Valerieva+A%22">Valerieva A</searchLink>; 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CSL Behring LLC, Bern, Switzerland.<br /><searchLink fieldCode="AU" term="%22Maurer+M%22">Maurer M</searchLink>; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Magerl+M%22">Magerl M</searchLink>; Dermatology and Allergy, Institute of Allergology, Charité-Universitätsmedizin Berlin, Freie Universität Berlin and Humboldt-Universität Zu Berlin, Hindenburgdamm 27, 12203, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Li+PH%22">Li PH</searchLink>; Division of Rheumatology and Clinical Immunology, Department of Medicine, The University of Hong Kong, Hong Kong, Hong Kong.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2025 Jul 28; Vol. 20 (1), pp. 383. <i>Date of Electronic Publication: </i>2025 Jul 28.
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    IsPartOfRelationships:
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          Dates:
            – D: 28
              M: 07
              Text: 2025 Jul 28
              Type: published
              Y: 2025
          Identifiers:
            – Type: issn-electronic
              Value: 1750-1172
          Numbering:
            – Type: volume
              Value: 20
            – Type: issue
              Value: 1
          Titles:
            – TitleFull: Orphanet journal of rare diseases
              Type: main
ResultId 1