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Advancing Patient Evidence in XLH (APEX): Baseline analysis of a global data unification program.

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Title: Advancing Patient Evidence in XLH (APEX): Baseline analysis of a global data unification program.
Authors: Carpenter TO; Department of Pediatrics, Section of Endocrinology, Yale University School of Medicine, PO Box 208064, New Haven, CT, 06520-8064, USA. Electronic address: thomas.carpenter@yale.edu., Fukumoto S; Department of Medicine, Tamaki - Aozora Hospital, 56-1 Hayabuchiazakita, Kokufutyo, Tokushima-shi, Tokushima, 779-3125, Japan., Haffner D; Department for Pediatric Kidney, Liver, Metabolic and Neurological Diseases, Hannover Medical School, Carl-Neuberg-Str. 1, 30625, Hannover, Germany., Imel EA; Departments of Medicine and Pediatrics, Indiana University School of Medicine, Indianapolis, IN, 46202, USA., Ozono K; Center for Promoting Treatment of Intractable Diseases, ISEIKAI International General Hospital, 4-14 Minamiogimachi, Kita-ku, Osaka-shi, Osaka, 530-0052, Japan., Ishii H; Medical Affairs Department, Kyowa Kirin Co., Ltd., 1-9-2 Otemachi, Chiyado-ku, Tokyo, 100-0004, Japan., Li Z; Kyowa Kirin, Inc., 510 Carnegie Center Dr. Suite 600, Princeton, NJ, 08540, USA., Sandilands K; Kyowa Kirin International Plc, Fieldhouse Ln, Marlow, SL7, UK., Joos-Vandewalle P; Kyowa Kirin Farmacéutica S.L.U., Paseo de la Castellana 259C, Planta 23, 28046, Madrid, Spain., Lee C; Kyowa Kirin International Plc, Fieldhouse Ln, Marlow, SL7, UK., Kanematsu M; Medical Affairs Department, Kyowa Kirin Co., Ltd., 1-9-2 Otemachi, Chiyado-ku, Tokyo, 100-0004, Japan., McCullough KP; Arbor Research Collaborative for Health, 3989 Research Park Dr, Ann Arbor, MI, 48108, USA., Brandi ML; Institute of Endocrine and Metabolic Sciences, Vita-Salute San Raffaele University and IRCCS, Milan, 20132, Italy; FIRMO Foundation, Via S. Gallo, 123, 50129, Firenze, Italy.
Source: Bone [Bone] 2025 Dec; Vol. 201, pp. 117649. Date of Electronic Publication: 2025 Sep 15.
Publication Type: Journal Article; Observational Study
Journal Info: Publisher: Elsevier Science Country of Publication: United States NLM ID: 8504048 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-2763 (Electronic) Linking ISSN: 18732763 NLM ISO Abbreviation: Bone Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Carpenter+TO%22">Carpenter TO</searchLink>; Department of Pediatrics, Section of Endocrinology, Yale University School of Medicine, PO Box 208064, New Haven, CT, 06520-8064, USA. Electronic address: thomas.carpenter@yale.edu.<br /><searchLink fieldCode="AU" term="%22Fukumoto+S%22">Fukumoto S</searchLink>; Department of Medicine, Tamaki - Aozora Hospital, 56-1 Hayabuchiazakita, Kokufutyo, Tokushima-shi, Tokushima, 779-3125, Japan.<br /><searchLink fieldCode="AU" term="%22Haffner+D%22">Haffner D</searchLink>; Department for Pediatric Kidney, Liver, Metabolic and Neurological Diseases, Hannover Medical School, Carl-Neuberg-Str. 1, 30625, Hannover, Germany.<br /><searchLink fieldCode="AU" term="%22Imel+EA%22">Imel EA</searchLink>; Departments of Medicine and Pediatrics, Indiana University School of Medicine, Indianapolis, IN, 46202, USA.<br /><searchLink fieldCode="AU" term="%22Ozono+K%22">Ozono K</searchLink>; Center for Promoting Treatment of Intractable Diseases, ISEIKAI International General Hospital, 4-14 Minamiogimachi, Kita-ku, Osaka-shi, Osaka, 530-0052, Japan.<br /><searchLink fieldCode="AU" term="%22Ishii+H%22">Ishii H</searchLink>; Medical Affairs Department, Kyowa Kirin Co., Ltd., 1-9-2 Otemachi, Chiyado-ku, Tokyo, 100-0004, Japan.<br /><searchLink fieldCode="AU" term="%22Li+Z%22">Li Z</searchLink>; Kyowa Kirin, Inc., 510 Carnegie Center Dr. Suite 600, Princeton, NJ, 08540, USA.<br /><searchLink fieldCode="AU" term="%22Sandilands+K%22">Sandilands K</searchLink>; Kyowa Kirin International Plc, Fieldhouse Ln, Marlow, SL7, UK.<br /><searchLink fieldCode="AU" term="%22Joos-Vandewalle+P%22">Joos-Vandewalle P</searchLink>; Kyowa Kirin Farmacéutica S.L.U., Paseo de la Castellana 259C, Planta 23, 28046, Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Lee+C%22">Lee C</searchLink>; Kyowa Kirin International Plc, Fieldhouse Ln, Marlow, SL7, UK.<br /><searchLink fieldCode="AU" term="%22Kanematsu+M%22">Kanematsu M</searchLink>; Medical Affairs Department, Kyowa Kirin Co., Ltd., 1-9-2 Otemachi, Chiyado-ku, Tokyo, 100-0004, Japan.<br /><searchLink fieldCode="AU" term="%22McCullough+KP%22">McCullough KP</searchLink>; Arbor Research Collaborative for Health, 3989 Research Park Dr, Ann Arbor, MI, 48108, USA.<br /><searchLink fieldCode="AU" term="%22Brandi+ML%22">Brandi ML</searchLink>; Institute of Endocrine and Metabolic Sciences, Vita-Salute San Raffaele University and IRCCS, Milan, 20132, Italy; FIRMO Foundation, Via S. Gallo, 123, 50129, Firenze, Italy.
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  Data: <searchLink fieldCode="JN" term="%228504048%22">Bone</searchLink> [Bone] 2025 Dec; Vol. 201, pp. 117649. <i>Date of Electronic Publication: </i>2025 Sep 15.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier+Science%22">Elsevier Science </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>8504048 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1873-2763 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2218732763%22">18732763 </searchLink><i>NLM ISO Abbreviation: </i>Bone <i>Subsets: </i>MEDLINE
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              Text: 2025 Dec
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