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Ethical sourcing in the context of health data supply chain management: a value sensitive design approach.

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Title: Ethical sourcing in the context of health data supply chain management: a value sensitive design approach.
Authors: Nebeker C; Herbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA 92093, United States., Bélisle-Pipon JC; Faculty of Health Sciences, Simon Fraser University, Burnaby, BC V5A 1S6, Canada., Collins BX; Department of Medicine, Vanderbilt University Medical Center, Nashville, TN 37232, United States.; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States., Cordes A; Indigenous Media Studies in ENVS and Data Science, University of Oregon, Eugene, OR 97403, United States., Ferryman K; Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, United States., McInnis BJ; School of Information, University of Texas at Austin, Austin, TX 78712, United States., McWeeney SK; Knight Cancer Institute, Oregon Health and Sciences University, Portland, OR 97239, United States., Novak LL; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States., Rose S; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States., Yracheta JM; Homelands of the Oceti Sakowin (Sioux), Native Bio Data Consortium, Eagle Butte, SD 57625, United States.; Environmental Health Sciences and Engineering, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD 21228, United States., Williams IC; School of Nursing, University of Virginia, Charlottesville, VA 22903, United States., Jiang X; McWilliams School of Biomedical Informatics, University of Texas Health Houston, Houston, TX 77030, United States., Clayton EW; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Law School, Vanderbilt University, Nashville, TN 37203, United States., Malin BA; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Department of Computer Science, Vanderbilt University, Nashville, TN, 37212, United States.
Corporate Authors: Bridge2AI Ethical, Legal And Social Implications AI Working Group
Source: JAMIA open [JAMIA Open] 2025 Oct 21; Vol. 8 (5), pp. ooaf101. Date of Electronic Publication: 2025 Oct 21 (Print Publication: 2025).
Publication Type: Journal Article
Journal Info: Publisher: Oxford University Press on behalf of the American Medical Informatics Association Country of Publication: United States NLM ID: 101730643 Publication Model: eCollection Cited Medium: Internet ISSN: 2574-2531 (Electronic) Linking ISSN: 25742531 NLM ISO Abbreviation: JAMIA Open Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Nebeker+C%22">Nebeker C</searchLink>; Herbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA 92093, United States.<br /><searchLink fieldCode="AU" term="%22Bélisle-Pipon+JC%22">Bélisle-Pipon JC</searchLink>; Faculty of Health Sciences, Simon Fraser University, Burnaby, BC V5A 1S6, Canada.<br /><searchLink fieldCode="AU" term="%22Collins+BX%22">Collins BX</searchLink>; Department of Medicine, Vanderbilt University Medical Center, Nashville, TN 37232, United States.; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.<br /><searchLink fieldCode="AU" term="%22Cordes+A%22">Cordes A</searchLink>; Indigenous Media Studies in ENVS and Data Science, University of Oregon, Eugene, OR 97403, United States.<br /><searchLink fieldCode="AU" term="%22Ferryman+K%22">Ferryman K</searchLink>; Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, United States.<br /><searchLink fieldCode="AU" term="%22McInnis+BJ%22">McInnis BJ</searchLink>; School of Information, University of Texas at Austin, Austin, TX 78712, United States.<br /><searchLink fieldCode="AU" term="%22McWeeney+SK%22">McWeeney SK</searchLink>; Knight Cancer Institute, Oregon Health and Sciences University, Portland, OR 97239, United States.<br /><searchLink fieldCode="AU" term="%22Novak+LL%22">Novak LL</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.<br /><searchLink fieldCode="AU" term="%22Rose+S%22">Rose S</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.<br /><searchLink fieldCode="AU" term="%22Yracheta+JM%22">Yracheta JM</searchLink>; Homelands of the Oceti Sakowin (Sioux), Native Bio Data Consortium, Eagle Butte, SD 57625, United States.; Environmental Health Sciences and Engineering, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD 21228, United States.<br /><searchLink fieldCode="AU" term="%22Williams+IC%22">Williams IC</searchLink>; School of Nursing, University of Virginia, Charlottesville, VA 22903, United States.<br /><searchLink fieldCode="AU" term="%22Jiang+X%22">Jiang X</searchLink>; McWilliams School of Biomedical Informatics, University of Texas Health Houston, Houston, TX 77030, United States.<br /><searchLink fieldCode="AU" term="%22Clayton+EW%22">Clayton EW</searchLink>; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Law School, Vanderbilt University, Nashville, TN 37203, United States.<br /><searchLink fieldCode="AU" term="%22Malin+BA%22">Malin BA</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN 37203, United States.; Department of Computer Science, Vanderbilt University, Nashville, TN, 37212, United States.
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  Data: <searchLink fieldCode="JN" term="%22101730643%22">JAMIA open</searchLink> [JAMIA Open] 2025 Oct 21; Vol. 8 (5), pp. ooaf101. <i>Date of Electronic Publication: </i>2025 Oct 21 (<i>Print Publication: </i>2025).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Oxford+University+Press+on+behalf+of+the+American+Medical+Informatics+Association%22">Oxford University Press on behalf of the American Medical Informatics Association </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101730643 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2574-2531 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2225742531%22">25742531 </searchLink><i>NLM ISO Abbreviation: </i>JAMIA Open <i>Subsets: </i>PubMed not MEDLINE
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