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Health Equity Concerns in People with Sickle Cell Disease and Recurrent Vaso-Occlusive Crises: Results from an International Survey Study.

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Title: Health Equity Concerns in People with Sickle Cell Disease and Recurrent Vaso-Occlusive Crises: Results from an International Survey Study.
Authors: Boateng-Kuffour A; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA. Adriana_Boateng-Kuffour@vrtx.com., Lilly L; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Drahos J; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration, West Midlands, University of Birmingham, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK., Valentine A; Sick Cells, Washington, DC, USA., Mason A; Sickle Cell Care Manchester, Manchester, UK., Li N; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Pakbaz Z; University of California Irvine School of Medicine, Orange, CA, USA., Shah F; NHS Blood and Transplant, London, UK., Ainsworth N; QC Medica, Liverpool, UK., Martin AP; QC Medica, Liverpool, UK.
Source: Drugs - real world outcomes [Drugs Real World Outcomes] 2026 Mar; Vol. 13 (1), pp. 29-40. Date of Electronic Publication: 2025 Nov 20.
Publication Type: Journal Article
Journal Info: Publisher: Springer International Publishing Country of Publication: Switzerland NLM ID: 101658456 Publication Model: Print-Electronic Cited Medium: Print ISSN: 2199-1154 (Print) Linking ISSN: 21989788 NLM ISO Abbreviation: Drugs Real World Outcomes Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Health Equity Concerns in People with Sickle Cell Disease and Recurrent Vaso-Occlusive Crises: Results from an International Survey Study.
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  Data: <searchLink fieldCode="AU" term="%22Boateng-Kuffour+A%22">Boateng-Kuffour A</searchLink>; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA. Adriana_Boateng-Kuffour@vrtx.com.<br /><searchLink fieldCode="AU" term="%22Lilly+L%22">Lilly L</searchLink>; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA.<br /><searchLink fieldCode="AU" term="%22Drahos+J%22">Drahos J</searchLink>; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA.<br /><searchLink fieldCode="AU" term="%22Calvert+M%22">Calvert M</searchLink>; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration, West Midlands, University of Birmingham, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Valentine+A%22">Valentine A</searchLink>; Sick Cells, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Mason+A%22">Mason A</searchLink>; Sickle Cell Care Manchester, Manchester, UK.<br /><searchLink fieldCode="AU" term="%22Li+N%22">Li N</searchLink>; Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA.<br /><searchLink fieldCode="AU" term="%22Pakbaz+Z%22">Pakbaz Z</searchLink>; University of California Irvine School of Medicine, Orange, CA, USA.<br /><searchLink fieldCode="AU" term="%22Shah+F%22">Shah F</searchLink>; NHS Blood and Transplant, London, UK.<br /><searchLink fieldCode="AU" term="%22Ainsworth+N%22">Ainsworth N</searchLink>; QC Medica, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Martin+AP%22">Martin AP</searchLink>; QC Medica, Liverpool, UK.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+International+Publishing%22">Springer International Publishing </searchLink><i>Country of Publication: </i>Switzerland <i>NLM ID: </i>101658456 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Print <i>ISSN: </i>2199-1154 (Print) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2221989788%22">21989788 </searchLink><i>NLM ISO Abbreviation: </i>Drugs Real World Outcomes <i>Subsets: </i>PubMed not MEDLINE
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        Value: 10.1007/s40801-025-00531-9
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        Text: English
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              Text: 2026 Mar
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