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Concept and feasibility of privacy-preserving record linkage of cancer registry data and claims data in Germany: results from the DigiNet study on stage IV non-small cell lung cancer.

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Title: Concept and feasibility of privacy-preserving record linkage of cancer registry data and claims data in Germany: results from the DigiNet study on stage IV non-small cell lung cancer.
Authors: Kästner A; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany. anika.kaestner@med.uni-greifswald.de., Hampf C; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany., Naumann P; University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany., Fiedler-Lacombe L; University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany., Kron A; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany., Spier A; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany., Simic D; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany., Eilers L; FOM University of Applied Sciences, Essen, Germany., Graw A; Cancer Registry North-Rhine Westphalia, Bochum, Germany., Bartholomäus S; Cancer Registry North-Rhine Westphalia, Bochum, Germany., Stang A; Cancer Registry North-Rhine Westphalia, Bochum, Germany., Reil D; Clinical-Epidemiological Cancer Registry Brandenburg-Berlin, Cottbus, Germany., Kirschner-Schwabe R; Clinical-Epidemiological Cancer Registry Brandenburg-Berlin, Cottbus, Germany., Selig JI; Cancer Registry Saxony, Dresden, Germany., Wulff J; Cancer Registry Saxony, Dresden, Germany., Dröge P; AOK Research Institute, Berlin, Germany., Ruhnke T; AOK Research Institute, Berlin, Germany., Günster C; AOK Research Institute, Berlin, Germany., Nußbaum U; BARMER, Wuppertal, Germany., Marschall U; BARMER, Wuppertal, Germany., Mohnke J; IKK classic, Dresden, Germany., Hebbelmann A; Mobil Krankenkasse, Hamburg, Germany., Lührig U; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany., Rasokat A; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany., Mildenberger V; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany., Stock S; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany., Kron F; FOM University of Applied Sciences, Essen, Germany., Wolf J; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany., Bialke M; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany., Stahl D; University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany., van den Berg N; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany., Hoffmann W; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany.
Source: Journal of cancer research and clinical oncology [J Cancer Res Clin Oncol] 2025 Dec 04; Vol. 152 (1), pp. 6. Date of Electronic Publication: 2025 Dec 04.
Publication Type: Journal Article
Journal Info: Publisher: Springer-Verlag Country of Publication: Germany NLM ID: 7902060 Publication Model: Electronic Cited Medium: Internet ISSN: 1432-1335 (Electronic) Linking ISSN: 01715216 NLM ISO Abbreviation: J Cancer Res Clin Oncol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Concept and feasibility of privacy-preserving record linkage of cancer registry data and claims data in Germany: results from the DigiNet study on stage IV non-small cell lung cancer.
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  Data: <searchLink fieldCode="AU" term="%22Kästner+A%22">Kästner A</searchLink>; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany. anika.kaestner@med.uni-greifswald.de.<br /><searchLink fieldCode="AU" term="%22Hampf+C%22">Hampf C</searchLink>; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Naumann+P%22">Naumann P</searchLink>; University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Fiedler-Lacombe+L%22">Fiedler-Lacombe L</searchLink>; University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Kron+A%22">Kron A</searchLink>; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Spier+A%22">Spier A</searchLink>; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Simic+D%22">Simic D</searchLink>; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Eilers+L%22">Eilers L</searchLink>; FOM University of Applied Sciences, Essen, Germany.<br /><searchLink fieldCode="AU" term="%22Graw+A%22">Graw A</searchLink>; Cancer Registry North-Rhine Westphalia, Bochum, Germany.<br /><searchLink fieldCode="AU" term="%22Bartholomäus+S%22">Bartholomäus S</searchLink>; Cancer Registry North-Rhine Westphalia, Bochum, Germany.<br /><searchLink fieldCode="AU" term="%22Stang+A%22">Stang A</searchLink>; Cancer Registry North-Rhine Westphalia, Bochum, Germany.<br /><searchLink fieldCode="AU" term="%22Reil+D%22">Reil D</searchLink>; Clinical-Epidemiological Cancer Registry Brandenburg-Berlin, Cottbus, Germany.<br /><searchLink fieldCode="AU" term="%22Kirschner-Schwabe+R%22">Kirschner-Schwabe R</searchLink>; Clinical-Epidemiological Cancer Registry Brandenburg-Berlin, Cottbus, Germany.<br /><searchLink fieldCode="AU" term="%22Selig+JI%22">Selig JI</searchLink>; Cancer Registry Saxony, Dresden, Germany.<br /><searchLink fieldCode="AU" term="%22Wulff+J%22">Wulff J</searchLink>; Cancer Registry Saxony, Dresden, Germany.<br /><searchLink fieldCode="AU" term="%22Dröge+P%22">Dröge P</searchLink>; AOK Research Institute, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Ruhnke+T%22">Ruhnke T</searchLink>; AOK Research Institute, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Günster+C%22">Günster C</searchLink>; AOK Research Institute, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Nußbaum+U%22">Nußbaum U</searchLink>; BARMER, Wuppertal, Germany.<br /><searchLink fieldCode="AU" term="%22Marschall+U%22">Marschall U</searchLink>; BARMER, Wuppertal, Germany.<br /><searchLink fieldCode="AU" term="%22Mohnke+J%22">Mohnke J</searchLink>; IKK classic, Dresden, Germany.<br /><searchLink fieldCode="AU" term="%22Hebbelmann+A%22">Hebbelmann A</searchLink>; Mobil Krankenkasse, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Lührig+U%22">Lührig U</searchLink>; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Rasokat+A%22">Rasokat A</searchLink>; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Mildenberger+V%22">Mildenberger V</searchLink>; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Stock+S%22">Stock S</searchLink>; Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Kron+F%22">Kron F</searchLink>; FOM University of Applied Sciences, Essen, Germany.<br /><searchLink fieldCode="AU" term="%22Wolf+J%22">Wolf J</searchLink>; National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany.; Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Bialke+M%22">Bialke M</searchLink>; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Stahl+D%22">Stahl D</searchLink>; University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22van+den+Berg+N%22">van den Berg N</searchLink>; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Hoffmann+W%22">Hoffmann W</searchLink>; Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany.
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