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Exploring the human experience of congenital aniridia: A narrative medicine approach.

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Title: Exploring the human experience of congenital aniridia: A narrative medicine approach.
Authors: Ancona C; Eye Unit, Department of Medical and Surgical Specialties, Radiological Sciences, and Public Health, University of Brescia, Brescia, Italy.; Ospedale Fatebenefratelli Oftalmico, Milano, Italy., Marini MG; Health Care, ISTUD Foundation, Milan, Italy., Minetti F; Health Care, ISTUD Foundation, Milan, Italy., Csidey M; Department of Ophthalmology, Semmelweis University, Budapest, Hungary.; Department of Opthalmology, Heim Pál National Pediatric Institute, Budapest, Hungary., Maka E; Department of Ophthalmology, Semmelweis University, Budapest, Hungary., Stachon T; Dr. Rolf M. Schwiete Center for Limbal Stem Cell and Aniridia Research, Saarland University, Homburg/Saar, Germany., Fries FN; Dr. Rolf M. Schwiete Center for Limbal Stem Cell and Aniridia Research, Saarland University, Homburg/Saar, Germany.; Department of Ophthalmology, Saarland University Medical Center, Homburg/Saar, Germany., Poli B; Aniridia Europe, Sandefjord, Norway., Kildsgaard I; Aniridia Sweden, Stockholm, Sweden., Bremond-Gignac D; Ophthalmology Department, Necker Enfants Malades University Hospital, AP-HP, Paris Cité University, Paris, France.; INSERM UMRS1138, Team 17, From Physiopathology of Ocular Diseases to Clinical Development, Sorbonne Paris Cité University, Centre de Recherche des Cordeliers, Paris, France., Szentmáry N; Department of Ophthalmology, Semmelweis University, Budapest, Hungary.; Dr. Rolf M. Schwiete Center for Limbal Stem Cell and Aniridia Research, Saarland University, Homburg/Saar, Germany., Lagali N; Department of Biomedical and Clinical Sciences, Faculty of Medicine, Linköping University, Linköping, Sweden.; Department of Ophthalmology, Sørlandet Hospital Arendal, Arendal, Norway., Romano V; Eye Unit, Department of Medical and Surgical Specialties, Radiological Sciences, and Public Health, University of Brescia, Brescia, Italy.
Source: European journal of ophthalmology [Eur J Ophthalmol] 2026 May; Vol. 36 (3), pp. 601-608. Date of Electronic Publication: 2025 Dec 16.
Publication Type: Journal Article; Multicenter Study; Observational Study
Journal Info: Publisher: SAGE Publishing Country of Publication: United States NLM ID: 9110772 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1724-6016 (Electronic) Linking ISSN: 11206721 NLM ISO Abbreviation: Eur J Ophthalmol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Exploring the human experience of congenital aniridia: A narrative medicine approach.
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  Data: <searchLink fieldCode="AU" term="%22Ancona+C%22">Ancona C</searchLink>; Eye Unit, Department of Medical and Surgical Specialties, Radiological Sciences, and Public Health, University of Brescia, Brescia, Italy.; Ospedale Fatebenefratelli Oftalmico, Milano, Italy.<br /><searchLink fieldCode="AU" term="%22Marini+MG%22">Marini MG</searchLink>; Health Care, ISTUD Foundation, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Minetti+F%22">Minetti F</searchLink>; Health Care, ISTUD Foundation, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Csidey+M%22">Csidey M</searchLink>; Department of Ophthalmology, Semmelweis University, Budapest, Hungary.; Department of Opthalmology, Heim Pál National Pediatric Institute, Budapest, Hungary.<br /><searchLink fieldCode="AU" term="%22Maka+E%22">Maka E</searchLink>; Department of Ophthalmology, Semmelweis University, Budapest, Hungary.<br /><searchLink fieldCode="AU" term="%22Stachon+T%22">Stachon T</searchLink>; Dr. Rolf M. Schwiete Center for Limbal Stem Cell and Aniridia Research, Saarland University, Homburg/Saar, Germany.<br /><searchLink fieldCode="AU" term="%22Fries+FN%22">Fries FN</searchLink>; Dr. Rolf M. Schwiete Center for Limbal Stem Cell and Aniridia Research, Saarland University, Homburg/Saar, Germany.; Department of Ophthalmology, Saarland University Medical Center, Homburg/Saar, Germany.<br /><searchLink fieldCode="AU" term="%22Poli+B%22">Poli B</searchLink>; Aniridia Europe, Sandefjord, Norway.<br /><searchLink fieldCode="AU" term="%22Kildsgaard+I%22">Kildsgaard I</searchLink>; Aniridia Sweden, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Bremond-Gignac+D%22">Bremond-Gignac D</searchLink>; Ophthalmology Department, Necker Enfants Malades University Hospital, AP-HP, Paris Cité University, Paris, France.; INSERM UMRS1138, Team 17, From Physiopathology of Ocular Diseases to Clinical Development, Sorbonne Paris Cité University, Centre de Recherche des Cordeliers, Paris, France.<br /><searchLink fieldCode="AU" term="%22Szentmáry+N%22">Szentmáry N</searchLink>; Department of Ophthalmology, Semmelweis University, Budapest, Hungary.; Dr. Rolf M. Schwiete Center for Limbal Stem Cell and Aniridia Research, Saarland University, Homburg/Saar, Germany.<br /><searchLink fieldCode="AU" term="%22Lagali+N%22">Lagali N</searchLink>; Department of Biomedical and Clinical Sciences, Faculty of Medicine, Linköping University, Linköping, Sweden.; Department of Ophthalmology, Sørlandet Hospital Arendal, Arendal, Norway.<br /><searchLink fieldCode="AU" term="%22Romano+V%22">Romano V</searchLink>; Eye Unit, Department of Medical and Surgical Specialties, Radiological Sciences, and Public Health, University of Brescia, Brescia, Italy.
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