View in EDS

Beyond the dataset: integrating public voices in data science.

Saved in:
Bibliographic Details
Title: Beyond the dataset: integrating public voices in data science.
Authors: Rubio AP; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK. arubio@ed.ac.uk., Dunn J; Public Partner, Edinburgh, UK., Borthwick J; Public Partner, Edinburgh, UK., Saunders S; Public Partner, Edinburgh, UK., Tochel C; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK., Anderson H; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK., Coull L; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK., Javidi M; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK., Cloete H; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK., McTrusty A; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK., Penny J; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK., MacGillivray T; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK., Tatham AJ; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.; Princess Alexandra Eye Pavilion, NHS Lothian, Edinburgh, UK., Jackson T; Usher Institute, University of Edinburgh, Edinburgh, UK., Porteous C; Usher Institute, University of Edinburgh, Edinburgh, UK., Strang N; Glasgow Caledonian University, Glasgow, UK., Dhillon B; Princess Alexandra Eye Pavilion, NHS Lothian, Edinburgh, UK., Bernabeu MO; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK.
Source: Research involvement and engagement [Res Involv Engagem] 2026 Jan 08; Vol. 12 (1), pp. 2. Date of Electronic Publication: 2026 Jan 08.
Publication Type: Letter
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101708164 Publication Model: Electronic Cited Medium: Internet ISSN: 2056-7529 (Electronic) Linking ISSN: 20567529 NLM ISO Abbreviation: Res Involv Engagem Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
FullText Text:
  Availability: 0
Header DbId: mdl
DbLabel: MEDLINE Ultimate
An: 41508137
AccessLevel: 2
PubType: Editorial & Opinion
PubTypeId: editorialOpinion
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Beyond the dataset: integrating public voices in data science.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22Rubio+AP%22">Rubio AP</searchLink>; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK. arubio@ed.ac.uk.<br /><searchLink fieldCode="AU" term="%22Dunn+J%22">Dunn J</searchLink>; Public Partner, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Borthwick+J%22">Borthwick J</searchLink>; Public Partner, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Saunders+S%22">Saunders S</searchLink>; Public Partner, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Tochel+C%22">Tochel C</searchLink>; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Anderson+H%22">Anderson H</searchLink>; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Coull+L%22">Coull L</searchLink>; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Javidi+M%22">Javidi M</searchLink>; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Cloete+H%22">Cloete H</searchLink>; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22McTrusty+A%22">McTrusty A</searchLink>; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Penny+J%22">Penny J</searchLink>; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22MacGillivray+T%22">MacGillivray T</searchLink>; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Tatham+AJ%22">Tatham AJ</searchLink>; Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.; Princess Alexandra Eye Pavilion, NHS Lothian, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Jackson+T%22">Jackson T</searchLink>; Usher Institute, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Porteous+C%22">Porteous C</searchLink>; Usher Institute, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Strang+N%22">Strang N</searchLink>; Glasgow Caledonian University, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Dhillon+B%22">Dhillon B</searchLink>; Princess Alexandra Eye Pavilion, NHS Lothian, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Bernabeu+MO%22">Bernabeu MO</searchLink>; Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK.
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22101708164%22">Research involvement and engagement</searchLink> [Res Involv Engagem] 2026 Jan 08; Vol. 12 (1), pp. 2. <i>Date of Electronic Publication: </i>2026 Jan 08.
– Name: TypePub
  Label: Publication Type
  Group: TypPub
  Data: Letter
– Name: TitleSource
  Label: Journal Info
  Group: Src
  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101708164 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2056-7529 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2220567529%22">20567529 </searchLink><i>NLM ISO Abbreviation: </i>Res Involv Engagem <i>Subsets: </i>PubMed not MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=41508137
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1186/s40900-025-00752-w
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        StartPage: 2
    Titles:
      – TitleFull: Beyond the dataset: integrating public voices in data science.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Rubio AP
      – PersonEntity:
          Name:
            NameFull: Dunn J
      – PersonEntity:
          Name:
            NameFull: Borthwick J
      – PersonEntity:
          Name:
            NameFull: Saunders S
      – PersonEntity:
          Name:
            NameFull: Tochel C
      – PersonEntity:
          Name:
            NameFull: Anderson H
      – PersonEntity:
          Name:
            NameFull: Coull L
      – PersonEntity:
          Name:
            NameFull: Javidi M
      – PersonEntity:
          Name:
            NameFull: Cloete H
      – PersonEntity:
          Name:
            NameFull: McTrusty A
      – PersonEntity:
          Name:
            NameFull: Penny J
      – PersonEntity:
          Name:
            NameFull: MacGillivray T
      – PersonEntity:
          Name:
            NameFull: Tatham AJ
      – PersonEntity:
          Name:
            NameFull: Jackson T
      – PersonEntity:
          Name:
            NameFull: Porteous C
      – PersonEntity:
          Name:
            NameFull: Strang N
      – PersonEntity:
          Name:
            NameFull: Dhillon B
      – PersonEntity:
          Name:
            NameFull: Bernabeu MO
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 08
              M: 01
              Text: 2026 Jan 08
              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-electronic
              Value: 2056-7529
          Numbering:
            – Type: volume
              Value: 12
            – Type: issue
              Value: 1
          Titles:
            – TitleFull: Research involvement and engagement
              Type: main
ResultId 1