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Advance Care Planning in Adults With Congenital Heart Diseases: Current Practices, Preferences, and Needs of 8,281 Adults From 32 Countries.

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Title: Advance Care Planning in Adults With Congenital Heart Diseases: Current Practices, Preferences, and Needs of 8,281 Adults From 32 Countries.
Authors: Van Bulck L; KU Leuven-University of Leuven, Leuven, Belgium; Research Foundation Flanders (FWO), Brussels, Belgium. Electronic address: https://www.linkedin.com/in/liesbetvanbulck/., Goossens E; KU Leuven-University of Leuven, Leuven, Belgium; University of Antwerp, Antwerp, Belgium., Kovacs AH; Equilibria Psychological Health, Toronto, Ontario, Canada; Oregon Health & Science University, Portland, Oregon, USA., Luyckx K; KU Leuven-University of Leuven, Leuven, Belgium; University of the Free State, Bloemfontein, South Africa., Ladak LA; Aga Khan University, Karachi, Pakistan., Leye M; University of Thiés, Thiés, Senegal., Van De Bruaene A; KU Leuven-University of Leuven, Leuven, Belgium; University Hospitals Leuven, Leuven, Belgium., Leong MC; Institut Jantung Negara (National Heart Institute), Kuala Lumpur, Malaysia., Kaneva A; National Heart Hospital, Sofia, Bulgaria., Pavão RB; University Hospital, Ribeirão Preto Medical School, University of São Paulo, Brazil., Araujo JJ; Meintegral-Clinic, Manizales, Colombia., Sasikumar N; Amrita Institute of Medical Sciences, Kochi, Kerala, India., Gabriel H; Medical University of Vienna, Vienna, Austria., Goshu DY; Addis Ababa University, Ethiopia., Lu CW; National Taiwan University Hospital, Taipei, Taiwan., Enomoto J; Toyo University, Tokyo, Japan; Chiba Cerebral and Cardiovascular Centre, Chiba, Japan., Areias ME; UnIC@RISE, University of Porto, Porto, Portugal., Kosmidis D; AHEPA University Hospital, Aristotle University of Thessaloniki, Greece., Coats L; Newcastle University, Newcastle upon Tyne, United Kingdom., Valente AM; Boston Children's Hospital, Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts, USA., Moon JR; Samsung Medical Centre, Seoul, South Korea., Ladouceur M; Hôpital Européen Georges Pompidou, AP-HP Paris, France; Hôpitaux Universitaires de Genève, Geneva, Switzerland., Thomet C; Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland., Jackson JL; Nationwide Children's Hospital, Columbus, Ohio, USA., Sandberg C; Umeå University, Umeå, Sweden., Callus E; IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy; University of Milan, Milan, Italy., Kim YY; Hospital of the University of Pennsylvania and Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA., Lykkeberg B; Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark., Alday L; Hospital de Niños, Cordoba, Argentina., Bredy C; Montpellier University Hospital, Montpellier, France., Saidi A; University of Florida Health, Gainesville, Florida, USA., Reyes FB; Pontificia Universidad Católica de Chile and Instituto Nacional del Torax, Santiago, Chile., Menahem S; Monash University, Melbourne, Australia., de Hosson M; Ghent University Hospital, Ghent, Belgium., Mandelenakis Z; Sahlgrenska University Hospital, Gothenburg, Sweden; University of Gothenburg, Gothenburg, Sweden., Christersson C; Uppsala University, Uppsala, Sweden., Zaidi A; Mount Sinai Heart, New York, New York, USA., Johansson B; Umeå University, Umeå, Sweden., Andresen B; Oslo University Hospital, Rikshospitalet, Oslo, Norway., Ambassa JC; Clinique Medical le Jourdain, Yaoundé, Cameroon., Mattsson E; Karolinska Institutet, Stockholm, Sweden., Constantine A; Royal Brompton Hospital, Royal Brompton & Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, United Kingdom., Amedro P; Bordeaux University Hospital, IHU Liryc, INSERM 1045, University of Bordeaux, Bordeaux, France., van Melle JP; University Medical Centre Groningen, Groningen, the Netherlands., Cedars A; Johns Hopkins Hospital, Baltimore, Maryland, USA., Ortiz L; Hospital San Juan de Dios de la Plata, Buenos Aires, Argentina., Demir F; Ege University, Faculty of Nursing, Bornova/Izmir, Türkiye., Khairy P; Montréal Heart Institute, Université de Montréal, Montréal, Canada., Windram J; Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada., Bouchardy J; Hôpitaux Universitaires de Genève, Geneva, Switzerland; Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland., Caruana M; Mater Dei Hospital, L-Imsida, Malta., Jameson SM; Lucile Packard Children's Hospital and Stanford Health Care, Stanford, California, USA., Mahadevan VS; University of California San Francisco (UCSF), San Francisco, California, USA; University of Massachusetts Chan School of Medicine, Worcester, Massachusetts, USA., McGrath LB; Oregon Health & Science University, Portland, Oregon, USA., Mwita JC; University of Botswana and Princess Marina Hospital, Gaborone, Botswana., Moons P; KU Leuven-University of Leuven, Leuven, Belgium; University of Gothenburg, Gothenburg, Sweden; University of Cape Town, Cape Town, South Africa. Electronic address: https://www.linkedin.com/in/philip-moons-2157836/.
Corporate Authors: APPROACH-IS II consortium, International Society for Adults Congenital Heart Disease (ISACHD)
Source: The Canadian journal of cardiology [Can J Cardiol] 2026 Jun; Vol. 42 (6), pp. 1338-1348. Date of Electronic Publication: 2026 Jan 08.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Elsevier Country of Publication: England NLM ID: 8510280 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1916-7075 (Electronic) Linking ISSN: 0828282X NLM ISO Abbreviation: Can J Cardiol Subsets: MEDLINE
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  Data: Advance Care Planning in Adults With Congenital Heart Diseases: Current Practices, Preferences, and Needs of 8,281 Adults From 32 Countries.
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  Data: <searchLink fieldCode="AU" term="%22Van+Bulck+L%22">Van Bulck L</searchLink>; KU Leuven-University of Leuven, Leuven, Belgium; Research Foundation Flanders (FWO), Brussels, Belgium. 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Institut Jantung Negara (National Heart Institute), Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Kaneva+A%22">Kaneva A</searchLink>; National Heart Hospital, Sofia, Bulgaria.<br /><searchLink fieldCode="AU" term="%22Pavão+RB%22">Pavão RB</searchLink>; University Hospital, Ribeirão Preto Medical School, University of São Paulo, Brazil.<br /><searchLink fieldCode="AU" term="%22Araujo+JJ%22">Araujo JJ</searchLink>; Meintegral-Clinic, Manizales, Colombia.<br /><searchLink fieldCode="AU" term="%22Sasikumar+N%22">Sasikumar N</searchLink>; Amrita Institute of Medical Sciences, Kochi, Kerala, India.<br /><searchLink fieldCode="AU" term="%22Gabriel+H%22">Gabriel H</searchLink>; Medical University of Vienna, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Goshu+DY%22">Goshu DY</searchLink>; Addis Ababa University, Ethiopia.<br /><searchLink fieldCode="AU" term="%22Lu+CW%22">Lu CW</searchLink>; National Taiwan University Hospital, Taipei, Taiwan.<br /><searchLink fieldCode="AU" term="%22Enomoto+J%22">Enomoto J</searchLink>; 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Montpellier University Hospital, Montpellier, France.<br /><searchLink fieldCode="AU" term="%22Saidi+A%22">Saidi A</searchLink>; University of Florida Health, Gainesville, Florida, USA.<br /><searchLink fieldCode="AU" term="%22Reyes+FB%22">Reyes FB</searchLink>; Pontificia Universidad Católica de Chile and Instituto Nacional del Torax, Santiago, Chile.<br /><searchLink fieldCode="AU" term="%22Menahem+S%22">Menahem S</searchLink>; Monash University, Melbourne, Australia.<br /><searchLink fieldCode="AU" term="%22de+Hosson+M%22">de Hosson M</searchLink>; Ghent University Hospital, Ghent, Belgium.<br /><searchLink fieldCode="AU" term="%22Mandelenakis+Z%22">Mandelenakis Z</searchLink>; Sahlgrenska University Hospital, Gothenburg, Sweden; University of Gothenburg, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Christersson+C%22">Christersson C</searchLink>; Uppsala University, Uppsala, Sweden.<br /><searchLink fieldCode="AU" term="%22Zaidi+A%22">Zaidi A</searchLink>; Mount Sinai Heart, New York, New York, USA.<br /><searchLink fieldCode="AU" term="%22Johansson+B%22">Johansson B</searchLink>; 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