Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer's disease and related dementia cohort study.

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Title: Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer's disease and related dementia cohort study.
Authors: Beusink M; Division of Molecular Pathology, Netherlands Cancer Institute - Antoni van Leeuwenhoek Hospital, Plesmanlaan 122, Amsterdam, 1066CX, the Netherlands. m.beusink@nki.nl.; Health-RI, Utrecht, the Netherlands. m.beusink@nki.nl., de Rijke TJ; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Digital Health & Personalised Medicine, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands.; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands., Schaaij-Visser TBM; Lygature, Utrecht, the Netherlands., Berkhout M; ABOARD Cohort Panel Member, Amsterdam, the Netherlands.; ABOARD Data Access Committee Member, Amsterdam, the Netherlands., Kroon L; ABOARD Cohort Panel Member, Amsterdam, the Netherlands.; ABOARD Data Access Committee Member, Amsterdam, the Netherlands., Smeitink M; ABOARD Cohort Panel Member, Amsterdam, the Netherlands., van der Landen SM; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands., Kaijser KKM; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands., Saaltink DJ; Brain Foundation Netherlands, The Hague, the Netherlands., van der Rhee E; Brain Foundation Netherlands, The Hague, the Netherlands., Rebers S; Division of Molecular Pathology, Netherlands Cancer Institute - Antoni van Leeuwenhoek Hospital, Plesmanlaan 122, Amsterdam, 1066CX, the Netherlands.; Health-RI, Utrecht, the Netherlands., de Boer C; Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands., Rhodius-Meester HFM; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands.; Department of Internal Medicine, Geriatric Medicine Section, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Department of Geriatric Medicine, The Memory Clinic, Oslo University Hospital, Oslo, Norway., van der Flier WM; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Department of Epidemiology & Data Science, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands., Visser LNC; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Digital Health & Personalised Medicine, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands.; Division of Clinical Geriatrics, Center for Alzheimer Research, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.; Department of Bioethics & Medical Humanities, Julius Center, UMC Utrecht, Utrecht, the Netherlands.
Source: Research involvement and engagement [Res Involv Engagem] 2026 Jan 27; Vol. 12 (1). Date of Electronic Publication: 2026 Jan 27.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101708164 Publication Model: Electronic Cited Medium: Internet ISSN: 2056-7529 (Electronic) Linking ISSN: 20567529 NLM ISO Abbreviation: Res Involv Engagem Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Beusink+M%22">Beusink M</searchLink>; Division of Molecular Pathology, Netherlands Cancer Institute - Antoni van Leeuwenhoek Hospital, Plesmanlaan 122, Amsterdam, 1066CX, the Netherlands. m.beusink@nki.nl.; Health-RI, Utrecht, the Netherlands. m.beusink@nki.nl.<br /><searchLink fieldCode="AU" term="%22de+Rijke+TJ%22">de Rijke TJ</searchLink>; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Digital Health & Personalised Medicine, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands.; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Schaaij-Visser+TBM%22">Schaaij-Visser TBM</searchLink>; Lygature, Utrecht, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Berkhout+M%22">Berkhout M</searchLink>; ABOARD Cohort Panel Member, Amsterdam, the Netherlands.; ABOARD Data Access Committee Member, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Kroon+L%22">Kroon L</searchLink>; ABOARD Cohort Panel Member, Amsterdam, the Netherlands.; ABOARD Data Access Committee Member, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Smeitink+M%22">Smeitink M</searchLink>; ABOARD Cohort Panel Member, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22van+der+Landen+SM%22">van der Landen SM</searchLink>; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Kaijser+KKM%22">Kaijser KKM</searchLink>; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Saaltink+DJ%22">Saaltink DJ</searchLink>; Brain Foundation Netherlands, The Hague, the Netherlands.<br /><searchLink fieldCode="AU" term="%22van+der+Rhee+E%22">van der Rhee E</searchLink>; Brain Foundation Netherlands, The Hague, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Rebers+S%22">Rebers S</searchLink>; Division of Molecular Pathology, Netherlands Cancer Institute - Antoni van Leeuwenhoek Hospital, Plesmanlaan 122, Amsterdam, 1066CX, the Netherlands.; Health-RI, Utrecht, the Netherlands.<br /><searchLink fieldCode="AU" term="%22de+Boer+C%22">de Boer C</searchLink>; Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Rhodius-Meester+HFM%22">Rhodius-Meester HFM</searchLink>; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands.; Department of Internal Medicine, Geriatric Medicine Section, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Department of Geriatric Medicine, The Memory Clinic, Oslo University Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22van+der+Flier+WM%22">van der Flier WM</searchLink>; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Alzheimer Center Amsterdam, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.; Department of Epidemiology & Data Science, Amsterdam UMC, Location Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Visser+LNC%22">Visser LNC</searchLink>; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Amsterdam, the Netherlands.; Digital Health & Personalised Medicine, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands.; Division of Clinical Geriatrics, Center for Alzheimer Research, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.; Department of Bioethics & Medical Humanities, Julius Center, UMC Utrecht, Utrecht, the Netherlands.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101708164 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2056-7529 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2220567529%22">20567529 </searchLink><i>NLM ISO Abbreviation: </i>Res Involv Engagem <i>Subsets: </i>PubMed not MEDLINE
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