Qualitative testing of the EQ-HWB-9 with a 'blank' EQ-HWB VAS and EQ-5D-5L with skin bolt-ons in a rare genetic skin disease population. - Metyovinyi Z; Plázár D; Becker K; Medvecz M; Rencz F (Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2026)