Priority European strategies for sustainable access to high-quality genetic counselling in cancer: A Delphi study.
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| Title: | Priority European strategies for sustainable access to high-quality genetic counselling in cancer: A Delphi study. |
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| Authors: | McCrary JM; Institute of Clinical Genetics and Genomic Medicine, University Hospital of Würzburg, Würzburg, Germany.; Department of Human Genetics, Hannover Medical School, Hannover, Germany., Van Valckenborgh E; Cancer Center, Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium., Horgan D; European Alliance for Personalised Medicine, Brussels, Belgium., Aleksandrova E; Association of Cancer Patients and Friends - APOZ, Sofia, Bulgaria., Bargou R; Comprehensive Cancer Center Mainfranken, University Hospital of Würzburg, Würzburg, Germany., Behulova RL; Department of Clinical Genetics, St. Elisabeth Cancer Institute, Bratislava, Slovakia., Belina I; Coalition of Associations in Healthcare (KUZ), Zagreb, Croatia.; From Testing to Targeted Treatments (FT3), Brussels, Belgium., Bøhme ALE; Department for Patient Support and Volunteering, Danish Cancer Society, Copenhagen, Denmark., Brunet J; Hereditary Cancer Program, Catalan Institute of Oncology, IDIBGI, IDIBELL, Girona-Barcelona, Spain., Burada F; Department of Genetics, University of Medicine and Pharmacy of Craiova, 200349, Craiova, Romania.; Regional Centre of Medical Genetics Dolj, Emergency Clinical County Hospital Craiova, 200642, Craiova, Romania., Chirita-Emandi A; Department of Microscopic Morphology, Genetics Discipline, Center of Genomic Medicine, University of Medicine and Pharmacy 'Victor Babes', Timisoara, Romania.; Regional Center of Medical Genetics Timis, Clinical Emergency Hospital for Children 'Louis Turcanu', (part of ERN ITHACA), Timisoara, Romania., Ciuca A; Department of Psychology, Babeş-Bolyai University, Cluj, Romania., Colas C; Genetics Department, Institut Curie, Paris, France.; INSERM U1339, DNA Repair and Uveal Melanoma (D.R.U.M.), Paris, France., Constantinidou A; Department of Oncology/Haematology, Medical School, University of Cyprus, Nicosia, Cyprus., Curca RO; Elysee Hospital Alba Iulia, Oncology Department, Alba Iulia, Romania., Cursaru V; Myeloma Euronet Romania, Bucharest, Romania., Dalmas M; Office of the Chief Medical Officer, Department of Policy in Health, Ministry for Health and Active Ageing, Valletta, Malta., Daneberga Z; Institute of Oncology and Molecular Genetics, Riga Stradins University, Riga, Latvia., de Azambuja E; Institut Jules Bordet, Hôpital Universitaire de Bruxelles (H.U.B), Université Libre de Bruxelles (U.L.B), Department of Medical Oncology, Brussels, Belgium., De Pauw A; Genetics Department, Institut Curie, Paris, France.; Paris Science & Letters Research University, Paris, France., De Putter R; Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium., Delikurt-Tuncalp T; Department of Clinical Genetics and Genomics, The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus., Donnelly D; Northern Ireland Regional Genetics Centre, Belfast Health & Social Care Trust, Belfast, Northern Ireland., Ehrencrona H; Department of Clinical Genetics, Pathology and Molecular Diagnostics, Skåne University Hospital, Lund, Sweden.; Division of Clinical Genetics, Department of Laboratory Medicine, Lund University, Lund, Sweden., Foretova L; Department of Cancer Epidemiology and Genetics, Masaryk Memorial Cancer Institute, Brno, Czech Republic., Galli F; aBRCAdabra ETS, Settimo Milanese, Milan, Italy., Genuardi M; Sezione di Medicina Genomica, Dipartimento di Scienze della Vita e Sanità Pubblica, Università Cattolica del Sacro Cuore, Rome, Italy.; UOC Genetica Medica, Dipartimento di Scienze di Laboratorio ed Ematologiche, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy., Giles R; VHL Europa, Dordrecht, The Netherlands.; Patvocates, Riemerling, Germany., Grima C; Department of Pathology, Mater Dei Hospital, Msida, Malta., Janavičius R; Faculty of Medicine, Department of Human and Medical Genetics, Institute of Biomedical Sciences, Vilnius University, Vilnius, Lithuania.; State Research Institute Center for Innovative Medicine, Vilnius, Lithuania.; Vilnius University Hospital Santara Klinikos (VULSK), Hematology, Oncology and Transfusion Medicine Center, Oncogenetic Unit, Vilnius, Lithuania., Kääriäinen H; Finnish Institute for Health and Welfare, Helsinki, Finland., Klink B; National Center of Genetics, Laboratoire National de Santé, Dudelange, Luxembourg.; MGZ - Medical Genetics Center Munich, Munich, Germany., Krajc M; Department of Clinical Cancer Genetics, Institute of Oncology Ljubljana, Ljubljana, Slovenia., Kufel-Grabowska J; Clinic of Oncology and Radiotherapy, Medical University of Gdańsk, Gdańsk, Poland., Lace B; Genetics and Rare Disease Center, Riga East Clinical University, Riga, Latvia.; Institute of Clinical and Preventive Medicine, University of Latvia, Riga, Latvia., Leitsalu L; Estonian Genome Center, Institute of Genomics, University of Tartu, Tartu, Estonia.; Genetics and Personalized Medicine Clinic, Tartu University Hospital, Tartu, Estonia., Le Tourneau C; Department of Drug Development and Innovation (D3i), Institut Curie, Paris-Saclay University, Paris, France., Lodahl M; Department of Clinical Genetics, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark., Mari F; Department of Medical, Surgical and Neurological Science, University of Siena, Siena, Italy.; University Hospital of Siena, Siena, Italy., Matos E; Department for Medical Oncology, Institute of Oncology Ljubljana, Ljubljana, Slovenia., Mazzarella L; Laboratory of Translational Oncology, European Institute of Oncology IRCCS, Milan, Italy., Milagre TH; Associação EVITA - Cancro Hereditário, Lisbon, Portugal.; European Patient Advocacy Group, ERN GENTURIS, Bertinoro, Italy., Mistrik M; Department of Medical Genetics, Unilabs, Spišská Nová Ves, Slovakia., Moss B; Inspire2Live, Amsterdam, The Netherlands., Nolan A; Irish Cancer Society, Dublin, Ireland., O'Shea R; School of Medicine, Trinity College Dublin, Dublin, Ireland.; School of Medicine and Health, The University of Sydney, Sydney, Australia.; Cancer Genetics Service, St. James's Hospital, Dublin, Ireland., Paneque M; i3S - Institute for Research and Innovation in Health, University of Porto, Porto, Portugal.; IBMC - Institute of Molecular and Cellular Biology, University of Porto, Porto, Portugal.; CGPP - Centre for Predictive and Preventive Genetics, University of Porto, Porto, Portugal.; ICBAS - School of Medicine and Biomedical Sciences, University of Porto, Porto, Portugal., Patócs A; Department of Clinical and Molecular Genetics, National Institute of Oncology, Comprehensive Cancer Center, Budapest, Hungary.; Department of Laboratory Medicine, Semmelweis University, Budapest, Hungary., Pestoff R; Clinical Genetics Department, University Hospital Linköping, Linköping, Sweden.; Institution of Biomedical and Clinical Sciences, Linköping University, Linköping, Sweden., Poirel HA; Cancer Center, Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium., Risch M; Service Psychosocial, Fondation Cancer, Dudelange, Luxembourg., Rodrigues M; Department of Medical Oncology, Institut Curie, Paris, France., Roetzer KM; Labdia Labordiagnostik, Vienna, Austria.; St. Anna Children's Cancer Research Institute (CCRI), Vienna, Austria., Ros A; Department of Genetics, Hospital Universitari Germans Trias i Pujol, Catalonia, Spain., Schröck E; Institute for Clinical Genetics, University Hospital Carl Gustav Carus at TUD Dresden, University of Technology and Faculty of Medicine of TUD Dresden, University of Technology, Dresden, Germany.; ERN GENTURIS, Hereditary Cancer Syndrome Center, Dresden, Germany.; National Center for Tumor Diseases (NCT), NCT/UCC Dresden, a partnership between German Cancer Research Center (DKFZ), Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology and Helmholtz-Zentrum Dresden-Rossendorf (HZDR), Dresden, Germany.; German Cancer Consortium (DKTK), Dresden, Germany.; German Cancer Research Center (DKFZ), Heidelberg, Germany., Schwaninger G; Institute for Human Genetics, Medical University of Innsbruck, Innsbruck, Austria., Slámová L; Department of Genomics, Institute of Hematology and Blood Transfusion, Prague, Czech Republic., Stamatopoulos K; Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece., Strang-Karlsson S; Department of Clinical Genetics, HUS Diagnostic Center, University of Helsinki and Helsinki University Hospital, Helsinki, Finland., Szczałuba K; Center of Excellence for Rare and Undiagnosed Disorders and Department of Medical Genetics, Medical University of Warsaw, Warsaw, Poland., Szymczak V; Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium., Theis P; National Center of Genetics, Laboratoire National de Santé, Dudelange, Luxembourg., Turner J; Clinical Genetics Centre for Ophthalmology, The Mater Misericordiae University Hospital, Dublin, Ireland., Valcina O; Latvian Association of Oncology Patient Organizations, OncoAlliance, Riga, Latvia., Vella C; Department of Pathology, Mater Dei Hospital, Msida, Malta.; Malta Health Network, Valletta, Malta., van Zelst-Stams WAG; Department of Human Genetics, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Clinical Genetics, Maastricht University Medical Center, Maastricht, The Netherlands., Wadt KAW; Department of Clinical Genetics, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark.; Institute for Clinical Medicine, Copenhagen University, Copenhagen, Denmark., Zschocke J; Institute for Human Genetics, Medical University of Innsbruck, Innsbruck, Austria., Ronez J; Department of Human Genetics, Hannover Medical School, Hannover, Germany., Ripperger T; Department of Human Genetics, Hannover Medical School, Hannover, Germany., Van Den Bulcke M; Cancer Center, Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium., Bergmann AK; Institute of Clinical Genetics and Genomic Medicine, University Hospital of Würzburg, Würzburg, Germany. bergmann_a@ukw.de.; Department of Human Genetics, Hannover Medical School, Hannover, Germany. bergmann_a@ukw.de. |
| Source: | European journal of human genetics : EJHG [Eur J Hum Genet] 2026 May; Vol. 34 (5), pp. 704-714. Date of Electronic Publication: 2026 Feb 13. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Nature Publishing Group Country of Publication: England NLM ID: 9302235 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5438 (Electronic) Linking ISSN: 10184813 NLM ISO Abbreviation: Eur J Hum Genet Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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