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Preferences for Healthcare Delivery in Amyotrophic Lateral Sclerosis (ALS): A Survey of Patients and Caregivers in the United States.

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Title: Preferences for Healthcare Delivery in Amyotrophic Lateral Sclerosis (ALS): A Survey of Patients and Caregivers in the United States.
Authors: Hollin IL; Department of Health Services Administration and Policy, Temple University Barnett College of Public Health, Philadelphia, PA, USA. ilene.hollin@temple.edu., Ilieva H; Weinberg ALS Center, Vickie and Jack Farber Institute for Neuroscience, Thomas Jefferson University Hospital, Philadelphia, PA, USA.; Department of Neurology, Thomas Jefferson University, Philadelphia, PA, USA., Pasinelli P; Weinberg ALS Center, Vickie and Jack Farber Institute for Neuroscience, Thomas Jefferson University Hospital, Philadelphia, PA, USA.; Department of Neuroscience, Thomas Jefferson University, Philadelphia, PA, USA., Chisholm L; Department of Neurology, Lewis Katz School of Medicine at Temple University, Philadelphia, PA, USA., Heiman-Patterson T; Department of Neurology, Lewis Katz School of Medicine at Temple University, Philadelphia, PA, USA.
Source: The patient [Patient] 2026 Jul; Vol. 19 (4), pp. 587-600. Date of Electronic Publication: 2026 Feb 27.
Publication Type: Journal Article; Observational Study; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Adis, Springer International Country of Publication: New Zealand NLM ID: 101309314 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1178-1661 (Electronic) Linking ISSN: 11781653 NLM ISO Abbreviation: Patient Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Hollin+IL%22">Hollin IL</searchLink>; Department of Health Services Administration and Policy, Temple University Barnett College of Public Health, Philadelphia, PA, USA. ilene.hollin@temple.edu.<br /><searchLink fieldCode="AU" term="%22Ilieva+H%22">Ilieva H</searchLink>; Weinberg ALS Center, Vickie and Jack Farber Institute for Neuroscience, Thomas Jefferson University Hospital, Philadelphia, PA, USA.; Department of Neurology, Thomas Jefferson University, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Pasinelli+P%22">Pasinelli P</searchLink>; Weinberg ALS Center, Vickie and Jack Farber Institute for Neuroscience, Thomas Jefferson University Hospital, Philadelphia, PA, USA.; Department of Neuroscience, Thomas Jefferson University, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Chisholm+L%22">Chisholm L</searchLink>; Department of Neurology, Lewis Katz School of Medicine at Temple University, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Heiman-Patterson+T%22">Heiman-Patterson T</searchLink>; Department of Neurology, Lewis Katz School of Medicine at Temple University, Philadelphia, PA, USA.
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  Data: <searchLink fieldCode="JN" term="%22101309314%22">The patient</searchLink> [Patient] 2026 Jul; Vol. 19 (4), pp. 587-600. <i>Date of Electronic Publication: </i>2026 Feb 27.
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  Data: Journal Article; Observational Study; Research Support, Non-U.S. Gov't
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Adis%2C+Springer+International%22">Adis, Springer International </searchLink><i>Country of Publication: </i>New Zealand <i>NLM ID: </i>101309314 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1178-1661 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2211781653%22">11781653 </searchLink><i>NLM ISO Abbreviation: </i>Patient <i>Subsets: </i>MEDLINE
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        Value: 10.1007/s40271-026-00807-4
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      – Code: eng
        Text: English
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      – TitleFull: Preferences for Healthcare Delivery in Amyotrophic Lateral Sclerosis (ALS): A Survey of Patients and Caregivers in the United States.
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            NameFull: Hollin IL
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              Text: 2026 Jul
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