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Disease Burden in Transfusion-Dependent β-Thalassemia (TDT) Patients and Caregivers in Italy: Results of a Cross-Sectional Descriptive Online Survey.

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Title: Disease Burden in Transfusion-Dependent β-Thalassemia (TDT) Patients and Caregivers in Italy: Results of a Cross-Sectional Descriptive Online Survey.
Authors: Contieri M; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy., Gatta F; Alexion, AstraZeneca Rare Disease, GmBH, Baar, Switzerland., Colonnese M; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy., Pasanisi A; Centro della microcitemia 'Antonella Quarta', UOC di Ematologia, Ospedale Perrino, Brindisi, Italy., Longo F; Day Hospital della Talassemia e delle Emoglobinopatie, Azienda Ospedaliero Universitaria S. Anna, Ferrara, Italy.; Hemoglobinopathies and Rare Anemia Reference Center, Department of Biological and Clinical Sciences, San Luigi Gonzaga University Hospital, University of Turin, Turin, Italy., Ferrero GB; Hemoglobinopathies and Rare Anemia Reference Center, Department of Biological and Clinical Sciences, San Luigi Gonzaga University Hospital, University of Turin, Turin, Italy., Piga AG; Hemoglobinopathies and Rare Anemia Reference Center, Department of Biological and Clinical Sciences, San Luigi Gonzaga University Hospital, University of Turin, Turin, Italy., Lisi R; Thalassemia Unit, ARNAS Garibaldi, Catania, Italy., Roberti D; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy., Baiano C; Dipartimento di Psicologia, University of Campania 'Luigi Vanvitelli', Caserta, Italy., Santangelo G; Dipartimento di Psicologia, University of Campania 'Luigi Vanvitelli', Caserta, Italy., Perrotta A; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy., Simeone G; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy., Perrotta S; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy., Tartaglione I; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy. immacolata.tartaglione@unicampania.it.; Clinica Pediatrica AOU Policlinico, Via L. De Crecchio 4, 80138, Napoli, Italy. immacolata.tartaglione@unicampania.it.
Source: Drugs - real world outcomes [Drugs Real World Outcomes] 2026 Jun; Vol. 13 (2), pp. 289-298. Date of Electronic Publication: 2026 Mar 27.
Publication Type: Journal Article
Journal Info: Publisher: Springer International Publishing Country of Publication: Switzerland NLM ID: 101658456 Publication Model: Print-Electronic Cited Medium: Print ISSN: 2199-1154 (Print) Linking ISSN: 21989788 NLM ISO Abbreviation: Drugs Real World Outcomes Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Disease Burden in Transfusion-Dependent β-Thalassemia (TDT) Patients and Caregivers in Italy: Results of a Cross-Sectional Descriptive Online Survey.
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  Data: <searchLink fieldCode="AU" term="%22Contieri+M%22">Contieri M</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy.<br /><searchLink fieldCode="AU" term="%22Gatta+F%22">Gatta F</searchLink>; Alexion, AstraZeneca Rare Disease, GmBH, Baar, Switzerland.<br /><searchLink fieldCode="AU" term="%22Colonnese+M%22">Colonnese M</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy.<br /><searchLink fieldCode="AU" term="%22Pasanisi+A%22">Pasanisi A</searchLink>; Centro della microcitemia 'Antonella Quarta', UOC di Ematologia, Ospedale Perrino, Brindisi, Italy.<br /><searchLink fieldCode="AU" term="%22Longo+F%22">Longo F</searchLink>; Day Hospital della Talassemia e delle Emoglobinopatie, Azienda Ospedaliero Universitaria S. Anna, Ferrara, Italy.; Hemoglobinopathies and Rare Anemia Reference Center, Department of Biological and Clinical Sciences, San Luigi Gonzaga University Hospital, University of Turin, Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Ferrero+GB%22">Ferrero GB</searchLink>; Hemoglobinopathies and Rare Anemia Reference Center, Department of Biological and Clinical Sciences, San Luigi Gonzaga University Hospital, University of Turin, Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Piga+AG%22">Piga AG</searchLink>; Hemoglobinopathies and Rare Anemia Reference Center, Department of Biological and Clinical Sciences, San Luigi Gonzaga University Hospital, University of Turin, Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Lisi+R%22">Lisi R</searchLink>; Thalassemia Unit, ARNAS Garibaldi, Catania, Italy.<br /><searchLink fieldCode="AU" term="%22Roberti+D%22">Roberti D</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy.<br /><searchLink fieldCode="AU" term="%22Baiano+C%22">Baiano C</searchLink>; Dipartimento di Psicologia, University of Campania 'Luigi Vanvitelli', Caserta, Italy.<br /><searchLink fieldCode="AU" term="%22Santangelo+G%22">Santangelo G</searchLink>; Dipartimento di Psicologia, University of Campania 'Luigi Vanvitelli', Caserta, Italy.<br /><searchLink fieldCode="AU" term="%22Perrotta+A%22">Perrotta A</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy.<br /><searchLink fieldCode="AU" term="%22Simeone+G%22">Simeone G</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy.<br /><searchLink fieldCode="AU" term="%22Perrotta+S%22">Perrotta S</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy.<br /><searchLink fieldCode="AU" term="%22Tartaglione+I%22">Tartaglione I</searchLink>; Dipartimento della Donna, del bambino e della chirurgia generale e specialistica, Università della Campania 'Luigi Vanvitelli', Campania, Italy. immacolata.tartaglione@unicampania.it.; Clinica Pediatrica AOU Policlinico, Via L. De Crecchio 4, 80138, Napoli, Italy. immacolata.tartaglione@unicampania.it.
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