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Demographic and clinical characteristics of patients with systemic lupus erythematosus across five registries: the LupusNet federated data network.

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Title: Demographic and clinical characteristics of patients with systemic lupus erythematosus across five registries: the LupusNet federated data network.
Authors: Zazzetti F; Johnson & Johnson, Horsham, Pennsylvania, USA fzazzet@ITS.JNJ.com., Orillion A; Johnson & Johnson, Spring House, Pennsylvania, USA., Sbarigia U; Johnson & Johnson, Beerse, Belgium., Sheahan A; Johnson & Johnson, Horsham, Pennsylvania, USA., Blacketer C; Johnson & Johnson, Spring House, Pennsylvania, USA., van Speybroeck M; Johnson & Johnson, Beerse, Belgium., Gasman S; Johnson & Johnson, Spring House, Pennsylvania, USA., Sönmez R; Capgemini Consulting, Zurich, Switzerland., Noss EH; Johnson & Johnson, Spring House, Pennsylvania, USA., Ugarte-Gil MF; Grupo Peruano de Estudio de Enfermedades Autoinmunes Sistémicas, Universidad Cientifica del Sur, Lima, Peru.; Rheumatology Department, Hospital Guillermo Almenara Irigoyen, EsSalud, Lima, Peru., Gamboa-Cardenas RV; Grupo Peruano de Estudio de Enfermedades Autoinmunes Sistémicas, Universidad Cientifica del Sur, Lima, Peru.; Rheumatology Department, Hospital Guillermo Almenara Irigoyen, EsSalud, Lima, Peru., Pimentel-Quiroz V; Grupo Peruano de Estudio de Enfermedades Autoinmunes Sistémicas, Universidad Cientifica del Sur, Lima, Peru.; Rheumatology Department, Hospital Guillermo Almenara Irigoyen, EsSalud, Lima, Peru., Pons-Estel GJ; Grupo Oroño-Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Argentina., Quintana R; Grupo Oroño-Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Argentina., Saurit V; Hospital Privado Universitario de Córdoba, Córdoba, Argentina., Pisoni CN; CEMIC Centro de Educación Médica e Investigaciones Clínicas 'Norberto Quirno', Buenos Aires, Argentina., Monticielo OA; Division of Rheumatology, Department of Internal Medicine, Hospital de Clínicas de Porto Alegre, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brazil., Ribeiro FM; Hospital Universitário Pedro Ernesto - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil., Esquivel-Valerio JA; Servicio de Reumatología, Hospital Universitario 'Dr. José Eleuterio González,' Universidad Autónoma de Nuevo León, Nuevo León, Mexico., Núñez-Álvarez CA; Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Tlalpan, Mexico., Zuñiga K; Servicio de Inmunología y Reumatología, Hospital Nacional Cayetano Heredia, Universidad Peruana Cayetano Heredia, Lima, Peru., Rebella M; Unidad de Enfermedades Autoinmunes Sistémicas, Hospital de Clínicas, Facultad de Medicina, UDELAR, Montevideo, Uruguay., Michaud K; University of Nebraska Medical Center, Omaha, Nebraska, USA., Katz P; University of California San Francisco, San Francisco, California, USA., Kandane-Rathnayake R; Rheumatology Research Group, Centre for Inflammatory Diseases, School of Clinical Sciences, Monash University, Clayton, Victoria, Australia., Morand EF; Rheumatology Research Group, Centre for Inflammatory Diseases, School of Clinical Sciences, Monash University, Clayton, Victoria, Australia., Louthrenoo W; Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand., Hoi A; Rheumatology Research Group, Centre for Inflammatory Diseases, School of Clinical Sciences, Monash University, Clayton, Victoria, Australia., Nikpour M; Musculoskeletal Research Centre and School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Navarra S; Section of Rheumatology, University of Santo Tomas Hospital, Manila, Philippines., Lau CS; Division of Rheumatology & Clinical Immunology, Department of Medicine, Queen Mary Hospital, The University of Hong Kong, Pok Fu Lam, Hong Kong., Luo SF; Department of Rheumatology, Allergy and Immunology, Chang Gung Memorial Hospital, Chang Gung University, Taipei, Taiwan., Hamijoyo L; Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Padjadjaran University/Hasan Sadikin General Hospital, Bandung, Indonesia., Li Z; Department of Rheumatology and Immunology, Beijing University People's Hospital, Beijing, China., Pego-Reigosa JM; Department of Rheumatology, University Hospital of Vigo, Vigo, Spain.; IRIDIS Group (Investigation in Rheumatology and Immune-Diseases), Galicia Sur Health Research Institute, Vigo, Spain., Rúa-Figueroa I; Department of Rheumatology, Hospital Universitario Doctor Negrín, Las Palmas de Gran Canaria, Spain., Plaza Z; Research Unit, Spanish Society of Rheumatology, Madrid, Spain., Galindo Izquierdo M; Department of Rheumatology, Hospital Universitario 12 de Octubre, Madrid, Spain., Martínez-Barrio J; Department of Rheumatology, Hospital Gregorio Marañón, Madrid, Spain., Calvo Alén J; Department of Rheumatology, Hospital Universitario Araba, Vitoria, Spain., Fernández-Nebro A; Department of Rheumatology, Hospital Regional Universitario de Málaga, IBIMA-Bionand Platform, Málaga, Spain., Menor-Almagro R; Department of Rheumatology, Hospital de Jerez, Jerez, Spain., Tomero E; Department of Rheumatology, Hospital Universitario de la Princesa, Madrid, Spain., Narváez García FJ; Department of Rheumatology, Hospital Universitari de Bellvitge, Barcelona, Spain.
Source: Lupus science & medicine [Lupus Sci Med] 2026 Apr 10; Vol. 13 (1). Date of Electronic Publication: 2026 Apr 10.
Publication Type: Journal Article
Journal Info: Publisher: BMJ Country of Publication: England NLM ID: 101633705 Publication Model: Electronic Cited Medium: Print ISSN: 2053-8790 (Print) Linking ISSN: 20538790 NLM ISO Abbreviation: Lupus Sci Med Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Demographic and clinical characteristics of patients with systemic lupus erythematosus across five registries: the LupusNet federated data network.
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  Data: <searchLink fieldCode="AU" term="%22Zazzetti+F%22">Zazzetti F</searchLink>; Johnson & Johnson, Horsham, Pennsylvania, USA fzazzet@ITS.JNJ.com.<br /><searchLink fieldCode="AU" term="%22Orillion+A%22">Orillion A</searchLink>; Johnson & Johnson, Spring House, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22Sbarigia+U%22">Sbarigia U</searchLink>; Johnson & Johnson, Beerse, Belgium.<br /><searchLink fieldCode="AU" term="%22Sheahan+A%22">Sheahan A</searchLink>; Johnson & Johnson, Horsham, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22Blacketer+C%22">Blacketer C</searchLink>; Johnson & Johnson, Spring House, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22van+Speybroeck+M%22">van Speybroeck M</searchLink>; Johnson & Johnson, Beerse, Belgium.<br /><searchLink fieldCode="AU" term="%22Gasman+S%22">Gasman S</searchLink>; Johnson & Johnson, Spring House, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22Sönmez+R%22">Sönmez R</searchLink>; Capgemini Consulting, Zurich, Switzerland.<br /><searchLink fieldCode="AU" term="%22Noss+EH%22">Noss EH</searchLink>; 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Servicio de Reumatología, Hospital Universitario 'Dr. José Eleuterio González,' Universidad Autónoma de Nuevo León, Nuevo León, Mexico.<br /><searchLink fieldCode="AU" term="%22Núñez-Álvarez+CA%22">Núñez-Álvarez CA</searchLink>; Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Tlalpan, Mexico.<br /><searchLink fieldCode="AU" term="%22Zuñiga+K%22">Zuñiga K</searchLink>; Servicio de Inmunología y Reumatología, Hospital Nacional Cayetano Heredia, Universidad Peruana Cayetano Heredia, Lima, Peru.<br /><searchLink fieldCode="AU" term="%22Rebella+M%22">Rebella M</searchLink>; Unidad de Enfermedades Autoinmunes Sistémicas, Hospital de Clínicas, Facultad de Medicina, UDELAR, Montevideo, Uruguay.<br /><searchLink fieldCode="AU" term="%22Michaud+K%22">Michaud K</searchLink>; University of Nebraska Medical Center, Omaha, Nebraska, USA.<br /><searchLink fieldCode="AU" term="%22Katz+P%22">Katz P</searchLink>; University of California San Francisco, San Francisco, California, USA.<br /><searchLink fieldCode="AU" term="%22Kandane-Rathnayake+R%22">Kandane-Rathnayake R</searchLink>; Rheumatology Research Group, Centre for Inflammatory Diseases, School of Clinical Sciences, Monash University, Clayton, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Morand+EF%22">Morand EF</searchLink>; Rheumatology Research Group, Centre for Inflammatory Diseases, School of Clinical Sciences, Monash University, Clayton, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Louthrenoo+W%22">Louthrenoo W</searchLink>; Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand.<br /><searchLink fieldCode="AU" term="%22Hoi+A%22">Hoi A</searchLink>; Rheumatology Research Group, Centre for Inflammatory Diseases, School of Clinical Sciences, Monash University, Clayton, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Nikpour+M%22">Nikpour M</searchLink>; Musculoskeletal Research Centre and School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Navarra+S%22">Navarra S</searchLink>; 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