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Integrating Clinical, Functional, and Patient-Reported Outcomes in Haemophilia Care: A Delphi-Based Consensus on a New Monitoring Tool.

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Title: Integrating Clinical, Functional, and Patient-Reported Outcomes in Haemophilia Care: A Delphi-Based Consensus on a New Monitoring Tool.
Authors: Molinari AC; Thrombosis and Hemostasis Unit, IRCCS Istituto Giannina Gaslini, 16147 Genova, Italy., Baldacci E; Haematology, Department of Translational and Precision Medicine, 'Sapienza' University, 00185 Rome, Italy., Barillari G; Center for Hemorrhagic and Thrombotic Diseases, General and University Hospital S. Maria della Misericordia, 33100 Udine, Italy., Coluccia A; U.O.C di Medicina Interna, Centro Emofilia e Coagulopatie Rare-Ospedale 'I.Veris delli Ponti', Scorrano-ASL, 73010 Lecce, Italy., Coppola A; Regional Hub Center for Hemophilia and Congenital Bleeding Disorders, University Hospital of Parma, 43126 Parma, Italy., Giuffrida AC; U.O.C Medicina Trasfusionale, Azienda Ospedaliera Universitaria Integrata, 37126 Verona, Italy., Giuffrida G; U.O.C di Ematologia, A.O.U. Policlinico 'Vittorio Emanuele', 95123 Catania, Italy., Gorio C; Pediatric Onco-Hematology Unit, Children's Hospital, ASST-Spedali Civili, 25123 Brescia, Italy., Linari S; Center for Bleeding Disorders and Coagulation, Department of Heart, Lung and Vessels, Careggi University Hospital, 50134 Florence, Italy., Luciani M; Hemostasis and Thrombosis Center, Onco-Hematology Department, Bambino Gesù Children's Hospital, 00165 Rome, Italy., Catini A; Analisi Statistiche.it, 00149 Rome, Italy., Nichele I; Centro Malattie Emorragiche e Trombotiche, UOC Ematologia, 36100 Vicenza, Italy., Peyvandi F; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, 20122 Milan, Italy.; Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti, Università Degli Studi di Milano, 20122 Milan, Italy., Pollio B; SIMT Immunohematology and Transfusion Medicine Service, Diagnostic Department, A.O. Città della Salute e della Scienza, 10126 Turin, Italy., Tagliaferri A; Regional Hub Center for Hemophilia and Congenital Bleeding Disorders, University Hospital of Parma, 43126 Parma, Italy., Valeri F; Regional Centre for Hemorrhagic and Thrombotic Diseases, Azienda Ospedaliera Universitaria Città della Salute e della Scienza,10126 Turin, Italy., Villa MR; Hematology Unit, Ospedale Santa Maria di Loreto, 80142 Naples, Italy., Zanon E; Haemophilia Centre, First Chair of Internal Medicine, Padua University Hospital, 35128 Padua, Italy., Napolitano M; Department of Health Promotion, Mother and Child Care (PROMISE), Internal Medicine and Medical Specialties, University of Palermo, 90127 Palermo, Italy.; Haematology and Rare Diseases Unit, Hospital 'V. Cervello', 90146 Palermo, Italy.
Source: Journal of clinical medicine [J Clin Med] 2026 Mar 26; Vol. 15 (7). Date of Electronic Publication: 2026 Mar 26.
Publication Type: Journal Article
Journal Info: Publisher: MDPI AG Country of Publication: Switzerland NLM ID: 101606588 Publication Model: Electronic Cited Medium: Print ISSN: 2077-0383 (Print) Linking ISSN: 20770383 NLM ISO Abbreviation: J Clin Med Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Integrating Clinical, Functional, and Patient-Reported Outcomes in Haemophilia Care: A Delphi-Based Consensus on a New Monitoring Tool.
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  Data: <searchLink fieldCode="AU" term="%22Molinari+AC%22">Molinari AC</searchLink>; Thrombosis and Hemostasis Unit, IRCCS Istituto Giannina Gaslini, 16147 Genova, Italy.<br /><searchLink fieldCode="AU" term="%22Baldacci+E%22">Baldacci E</searchLink>; Haematology, Department of Translational and Precision Medicine, 'Sapienza' University, 00185 Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Barillari+G%22">Barillari G</searchLink>; Center for Hemorrhagic and Thrombotic Diseases, General and University Hospital S. Maria della Misericordia, 33100 Udine, Italy.<br /><searchLink fieldCode="AU" term="%22Coluccia+A%22">Coluccia A</searchLink>; U.O.C di Medicina Interna, Centro Emofilia e Coagulopatie Rare-Ospedale 'I.Veris delli Ponti', Scorrano-ASL, 73010 Lecce, Italy.<br /><searchLink fieldCode="AU" term="%22Coppola+A%22">Coppola A</searchLink>; Regional Hub Center for Hemophilia and Congenital Bleeding Disorders, University Hospital of Parma, 43126 Parma, Italy.<br /><searchLink fieldCode="AU" term="%22Giuffrida+AC%22">Giuffrida AC</searchLink>; U.O.C Medicina Trasfusionale, Azienda Ospedaliera Universitaria Integrata, 37126 Verona, Italy.<br /><searchLink fieldCode="AU" term="%22Giuffrida+G%22">Giuffrida G</searchLink>; U.O.C di Ematologia, A.O.U. Policlinico 'Vittorio Emanuele', 95123 Catania, Italy.<br /><searchLink fieldCode="AU" term="%22Gorio+C%22">Gorio C</searchLink>; Pediatric Onco-Hematology Unit, Children's Hospital, ASST-Spedali Civili, 25123 Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Linari+S%22">Linari S</searchLink>; Center for Bleeding Disorders and Coagulation, Department of Heart, Lung and Vessels, Careggi University Hospital, 50134 Florence, Italy.<br /><searchLink fieldCode="AU" term="%22Luciani+M%22">Luciani M</searchLink>; Hemostasis and Thrombosis Center, Onco-Hematology Department, Bambino Gesù Children's Hospital, 00165 Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Catini+A%22">Catini A</searchLink>; Analisi Statistiche.it, 00149 Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Nichele+I%22">Nichele I</searchLink>; Centro Malattie Emorragiche e Trombotiche, UOC Ematologia, 36100 Vicenza, Italy.<br /><searchLink fieldCode="AU" term="%22Peyvandi+F%22">Peyvandi F</searchLink>; Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, 20122 Milan, Italy.; Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti, Università Degli Studi di Milano, 20122 Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Pollio+B%22">Pollio B</searchLink>; SIMT Immunohematology and Transfusion Medicine Service, Diagnostic Department, A.O. Città della Salute e della Scienza, 10126 Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Tagliaferri+A%22">Tagliaferri A</searchLink>; Regional Hub Center for Hemophilia and Congenital Bleeding Disorders, University Hospital of Parma, 43126 Parma, Italy.<br /><searchLink fieldCode="AU" term="%22Valeri+F%22">Valeri F</searchLink>; Regional Centre for Hemorrhagic and Thrombotic Diseases, Azienda Ospedaliera Universitaria Città della Salute e della Scienza,10126 Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Villa+MR%22">Villa MR</searchLink>; Hematology Unit, Ospedale Santa Maria di Loreto, 80142 Naples, Italy.<br /><searchLink fieldCode="AU" term="%22Zanon+E%22">Zanon E</searchLink>; Haemophilia Centre, First Chair of Internal Medicine, Padua University Hospital, 35128 Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Napolitano+M%22">Napolitano M</searchLink>; Department of Health Promotion, Mother and Child Care (PROMISE), Internal Medicine and Medical Specialties, University of Palermo, 90127 Palermo, Italy.; Haematology and Rare Diseases Unit, Hospital 'V. Cervello', 90146 Palermo, Italy.
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  Data: <searchLink fieldCode="JN" term="%22101606588%22">Journal of clinical medicine</searchLink> [J Clin Med] 2026 Mar 26; Vol. 15 (7). <i>Date of Electronic Publication: </i>2026 Mar 26.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22MDPI+AG%22">MDPI AG </searchLink><i>Country of Publication: </i>Switzerland <i>NLM ID: </i>101606588 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Print <i>ISSN: </i>2077-0383 (Print) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2220770383%22">20770383 </searchLink><i>NLM ISO Abbreviation: </i>J Clin Med <i>Subsets: </i>PubMed not MEDLINE
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