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Navigating data sharing in research.

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Title: Navigating data sharing in research.
Authors: Lewis ACF; Department of Medicine, Brigham and Women's Hospital, Boston, MA, USA; Harvard Medical School, Boston, MA, USA., Clayton EW; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, USA., Bangash H; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN, USA., Bland HT; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA., Bonini KE; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA., Cimino JJ; Biomedical Informatics and Data Science, Heersink School of Medicine at the University of Alabama-Birmingham, Birmingham, AL, USA., Connolly JJ; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Freimuth RR; Department of Artificial Intelligence and Informatics, Mayo Clinic, Rochester, MN, USA., Fullerton SM; Department of Bioethics & Humanities, University of Washington School of Medicine, Seattle, WA, USA., Hakonarson H; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Holm IA; Harvard Medical School, Boston, MA, USA; Department of Pediatrics, Boston Children's Hospital, Boston, MA, USA., Jarvik GP; Department of Medicine, University of Washington Medical Center, Seattle, WA, USA., Khan A; Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA., Kiryluk K; Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA., Linder JE; Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA., Luo Y; Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Lynch JA; School of Communication, Film, and Media Studies, University of Cincinnati, Cincinnati, OH, USA., Mittendorf KF; Division of Hematology/Oncology, Department of Medicine, Vanderbilt University Medical Center, Nashville, TN, USA., Pacheco JA; Center for Biomedical Informatics and Biostatistics, University of Arizona, Tucson, AZ, USA., Rasmussen LV; Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Rose SL; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, USA; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA., Rowley R; General Internal Medicine, Mayo Clinic, Rochester, MN, USA., Sharp RR; Biomedical Ethics Program, Mayo Clinic, Rochester, MN, USA., Walunas TL; Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Wei WQ; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA., Weng C; Department of Biomedical Informatics, Columbia University, New York, NY, USA., Sabatello M; Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA; Department of Medical Humanities and Ethics, Columbia University Irving Medical Center, New York, NY, USA. Electronic address: ms4075@cumc.columbia.edu.
Source: American journal of human genetics [Am J Hum Genet] 2026 Jun 04; Vol. 113 (6), pp. 1159-1167. Date of Electronic Publication: 2026 Apr 29.
Publication Type: Journal Article; Review
Journal Info: Publisher: Cell Press Country of Publication: United States NLM ID: 0370475 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1537-6605 (Electronic) Linking ISSN: 00029297 NLM ISO Abbreviation: Am J Hum Genet Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Lewis+ACF%22">Lewis ACF</searchLink>; Department of Medicine, Brigham and Women's Hospital, Boston, MA, USA; Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Clayton+EW%22">Clayton EW</searchLink>; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Bangash+H%22">Bangash H</searchLink>; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN, USA.<br /><searchLink fieldCode="AU" term="%22Bland+HT%22">Bland HT</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Bonini+KE%22">Bonini KE</searchLink>; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Cimino+JJ%22">Cimino JJ</searchLink>; Biomedical Informatics and Data Science, Heersink School of Medicine at the University of Alabama-Birmingham, Birmingham, AL, USA.<br /><searchLink fieldCode="AU" term="%22Connolly+JJ%22">Connolly JJ</searchLink>; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Freimuth+RR%22">Freimuth RR</searchLink>; Department of Artificial Intelligence and Informatics, Mayo Clinic, Rochester, MN, USA.<br /><searchLink fieldCode="AU" term="%22Fullerton+SM%22">Fullerton SM</searchLink>; Department of Bioethics & Humanities, University of Washington School of Medicine, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Hakonarson+H%22">Hakonarson H</searchLink>; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Holm+IA%22">Holm IA</searchLink>; Harvard Medical School, Boston, MA, USA; Department of Pediatrics, Boston Children's Hospital, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Jarvik+GP%22">Jarvik GP</searchLink>; Department of Medicine, University of Washington Medical Center, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Khan+A%22">Khan A</searchLink>; Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Kiryluk+K%22">Kiryluk K</searchLink>; Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Linder+JE%22">Linder JE</searchLink>; Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Luo+Y%22">Luo Y</searchLink>; Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Lynch+JA%22">Lynch JA</searchLink>; School of Communication, Film, and Media Studies, University of Cincinnati, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Mittendorf+KF%22">Mittendorf KF</searchLink>; Division of Hematology/Oncology, Department of Medicine, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Pacheco+JA%22">Pacheco JA</searchLink>; Center for Biomedical Informatics and Biostatistics, University of Arizona, Tucson, AZ, USA.<br /><searchLink fieldCode="AU" term="%22Rasmussen+LV%22">Rasmussen LV</searchLink>; Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Rose+SL%22">Rose SL</searchLink>; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, USA; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Rowley+R%22">Rowley R</searchLink>; General Internal Medicine, Mayo Clinic, Rochester, MN, USA.<br /><searchLink fieldCode="AU" term="%22Sharp+RR%22">Sharp RR</searchLink>; Biomedical Ethics Program, Mayo Clinic, Rochester, MN, USA.<br /><searchLink fieldCode="AU" term="%22Walunas+TL%22">Walunas TL</searchLink>; Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Wei+WQ%22">Wei WQ</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Weng+C%22">Weng C</searchLink>; Department of Biomedical Informatics, Columbia University, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Sabatello+M%22">Sabatello M</searchLink>; Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA; Department of Medical Humanities and Ethics, Columbia University Irving Medical Center, New York, NY, USA. Electronic address: ms4075@cumc.columbia.edu.
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