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Towards FAIR Clinical Registries: A Privacy-by-Design Framework for Migrating Legacy Document-Based Clinical Reports to REDCap.

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Title: Towards FAIR Clinical Registries: A Privacy-by-Design Framework for Migrating Legacy Document-Based Clinical Reports to REDCap.
Authors: Sam J; Department of Internal Medicine, Universities of Giessen and Marburg Lung Center (UGMLC) Member of the German Center for Lung Research (DZL) Giessen, Germany.; Institute for Lung Health (ILH), Cardio-Pulmonary Institute (CPI), Giessen, Germany., Blasini R; Institute of Medical Informatics, Justus-Liebig-University, Giessen, Germany., Janetzko P; Department of Internal Medicine, Universities of Giessen and Marburg Lung Center (UGMLC) Member of the German Center for Lung Research (DZL) Giessen, Germany.; Institute for Lung Health (ILH), Cardio-Pulmonary Institute (CPI), Giessen, Germany., Tello K; Department of Internal Medicine, Universities of Giessen and Marburg Lung Center (UGMLC) Member of the German Center for Lung Research (DZL) Giessen, Germany.; Institute for Lung Health (ILH), Cardio-Pulmonary Institute (CPI), Giessen, Germany., Seeger W; Department of Internal Medicine, Universities of Giessen and Marburg Lung Center (UGMLC) Member of the German Center for Lung Research (DZL) Giessen, Germany.; Institute for Lung Health (ILH), Cardio-Pulmonary Institute (CPI), Giessen, Germany., Majeed RW; Department of Internal Medicine, Universities of Giessen and Marburg Lung Center (UGMLC) Member of the German Center for Lung Research (DZL) Giessen, Germany.; Institute for Lung Health (ILH), Cardio-Pulmonary Institute (CPI), Giessen, Germany.; Institute of Medical Informatics, RWTH Aachen University, Aachen, Germany.
Source: Studies in health technology and informatics [Stud Health Technol Inform] 2026 May 21; Vol. 336, pp. 1521-1525.
Publication Type: Journal Article
Journal Info: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9214582 Publication Model: Print Cited Medium: Internet ISSN: 1879-8365 (Electronic) Linking ISSN: 09269630 NLM ISO Abbreviation: Stud Health Technol Inform Subsets: MEDLINE
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