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New-onset refractory status epilepticus/febrile infection-related epilepsy syndrome centers of excellence: A framework for coordinated care, research, and improved outcomes.

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Title: New-onset refractory status epilepticus/febrile infection-related epilepsy syndrome centers of excellence: A framework for coordinated care, research, and improved outcomes.
Authors: Eschbach K; Department of Pediatrics, Section of Neurology, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA., Fisher KS; Department of Pediatrics, Division of Neurology and Developmental Neuroscience, Baylor College of Medicine and Texas Children's Hospital, Houston, Texas, USA., Haider HA; Department of Neurology, University of Chicago, Chicago, Illinois, USA., Casas D; NORSE Institute, Summit, New Jersey, USA., Gaspard N; Service de Neurologie-Hôpital Universitaire de Bruxelles et Université Libre de Bruxelles, Brussels, Belgium.; Comprehensive Epilepsy Center, Department of Neurology, Yale University, New Haven, Connecticut, USA., Gilmore EJ; Division of Neurocritical Care and Emergency Neurology, Department of Neurology, Yale University, New Haven, Connecticut, USA., Gofton T; Department of Clinical Neurological Sciences, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada., Gopaul MT; Comprehensive Epilepsy Center, Department of Neurology, Yale University, New Haven, Connecticut, USA., Hirsch LJ; Comprehensive Epilepsy Center, Department of Neurology, Yale University, New Haven, Connecticut, USA., Muscal E; Department of Pediatrics, Section of Rheumatology, Baylor College of Medicine and Texas Children's Hospital, Houston, Texas, USA., Riviello JJ; Department of Pediatrics, Division of Neurology and Developmental Neuroscience, Baylor College of Medicine and Texas Children's Hospital, Houston, Texas, USA., Sheikh ZB; Epilepsy Division, Department of Neurology, Virginia Commonwealth University, Richmond, Virginia, USA., Stredny CM; Neuroimmunology Center, Division of Epilepsy and Clinical Neurophysiology, Department of Neurology, Boston Children's Hospital, Boston, Massachusetts, USA., Taraschenko O; Comprehensive Epilepsy Center, Department of Neurological Sciences, University of Nebraska Medical Center, Omaha, Nebraska, USA., Wickström R; Neuropediatric Unit, Karolinska University Hospital and Karolinska Institute, Stockholm, Sweden., Wong N; NORSE Institute, Summit, New Jersey, USA., Lai YC; Division of Pediatric Critical Care Medicine, Department of Pediatrics, Baylor College of Medicine at Texas Children's Hospital, Houston, Texas, USA.
Source: Epilepsia [Epilepsia] 2026 Jun 08. Date of Electronic Publication: 2026 Jun 08.
Publication Type: Journal Article
Journal Info: Publisher: Blackwell Science Country of Publication: United States NLM ID: 2983306R Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1528-1167 (Electronic) Linking ISSN: 00139580 NLM ISO Abbreviation: Epilepsia Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: New-onset refractory status epilepticus/febrile infection-related epilepsy syndrome centers of excellence: A framework for coordinated care, research, and improved outcomes.
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  Data: <searchLink fieldCode="AU" term="%22Eschbach+K%22">Eschbach K</searchLink>; Department of Pediatrics, Section of Neurology, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.<br /><searchLink fieldCode="AU" term="%22Fisher+KS%22">Fisher KS</searchLink>; Department of Pediatrics, Division of Neurology and Developmental Neuroscience, Baylor College of Medicine and Texas Children's Hospital, Houston, Texas, USA.<br /><searchLink fieldCode="AU" term="%22Haider+HA%22">Haider HA</searchLink>; Department of Neurology, University of Chicago, Chicago, Illinois, USA.<br /><searchLink fieldCode="AU" term="%22Casas+D%22">Casas D</searchLink>; NORSE Institute, Summit, New Jersey, USA.<br /><searchLink fieldCode="AU" term="%22Gaspard+N%22">Gaspard N</searchLink>; Service de Neurologie-Hôpital Universitaire de Bruxelles et Université Libre de Bruxelles, Brussels, Belgium.; Comprehensive Epilepsy Center, Department of Neurology, Yale University, New Haven, Connecticut, USA.<br /><searchLink fieldCode="AU" term="%22Gilmore+EJ%22">Gilmore EJ</searchLink>; Division of Neurocritical Care and Emergency Neurology, Department of Neurology, Yale University, New Haven, Connecticut, USA.<br /><searchLink fieldCode="AU" term="%22Gofton+T%22">Gofton T</searchLink>; Department of Clinical Neurological Sciences, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.<br /><searchLink fieldCode="AU" term="%22Gopaul+MT%22">Gopaul MT</searchLink>; Comprehensive Epilepsy Center, Department of Neurology, Yale University, New Haven, Connecticut, USA.<br /><searchLink fieldCode="AU" term="%22Hirsch+LJ%22">Hirsch LJ</searchLink>; Comprehensive Epilepsy Center, Department of Neurology, Yale University, New Haven, Connecticut, USA.<br /><searchLink fieldCode="AU" term="%22Muscal+E%22">Muscal E</searchLink>; Department of Pediatrics, Section of Rheumatology, Baylor College of Medicine and Texas Children's Hospital, Houston, Texas, USA.<br /><searchLink fieldCode="AU" term="%22Riviello+JJ%22">Riviello JJ</searchLink>; Department of Pediatrics, Division of Neurology and Developmental Neuroscience, Baylor College of Medicine and Texas Children's Hospital, Houston, Texas, USA.<br /><searchLink fieldCode="AU" term="%22Sheikh+ZB%22">Sheikh ZB</searchLink>; Epilepsy Division, Department of Neurology, Virginia Commonwealth University, Richmond, Virginia, USA.<br /><searchLink fieldCode="AU" term="%22Stredny+CM%22">Stredny CM</searchLink>; Neuroimmunology Center, Division of Epilepsy and Clinical Neurophysiology, Department of Neurology, Boston Children's Hospital, Boston, Massachusetts, USA.<br /><searchLink fieldCode="AU" term="%22Taraschenko+O%22">Taraschenko O</searchLink>; Comprehensive Epilepsy Center, Department of Neurological Sciences, University of Nebraska Medical Center, Omaha, Nebraska, USA.<br /><searchLink fieldCode="AU" term="%22Wickström+R%22">Wickström R</searchLink>; Neuropediatric Unit, Karolinska University Hospital and Karolinska Institute, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Wong+N%22">Wong N</searchLink>; NORSE Institute, Summit, New Jersey, USA.<br /><searchLink fieldCode="AU" term="%22Lai+YC%22">Lai YC</searchLink>; Division of Pediatric Critical Care Medicine, Department of Pediatrics, Baylor College of Medicine at Texas Children's Hospital, Houston, Texas, USA.
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  Data: <searchLink fieldCode="JN" term="%222983306R%22">Epilepsia</searchLink> [Epilepsia] 2026 Jun 08. <i>Date of Electronic Publication: </i>2026 Jun 08.
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