Friedreich's ataxia patient pathway in Europe.
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| Title: | Friedreich's ataxia patient pathway in Europe. |
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| Authors: | Vallortigara J; Ataxia Centre, Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, London, United Kingdom., Greenfield J; Ataxia UK, London, United Kingdom., Hunt B; Ataxia UK, London, United Kingdom., Schuman BJ; Friedreich Ataxie Förderverein e.V., Pliening, Germany., Hoffman D; Takeda Pharmaceuticals, Cambridge, MA, United States., Booth S; Ataxia Centre, Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, London, United Kingdom., Reinhard C; Centre for Rare Diseases and Institute of Medical Genetics and Applied Genomics, University Hospital Tübingen, Tübingen, Germany., Graessner H; Centre for Rare Diseases and Institute of Medical Genetics and Applied Genomics, University Hospital Tübingen, Tübingen, Germany., Federico A; Department of Medicine, Surgery and Neurosciences, Medical School, University of Siena, Italy., Quoidbach V; European Brain Council, Brussels, Belgium., Morris S; Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom., Giunti P; Ataxia Centre, Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, London, United Kingdom. |
| Source: | Frontiers in health services [Front Health Serv] 2026 May 28; Vol. 6, pp. 1817584. Date of Electronic Publication: 2026 May 28 (Print Publication: 2026). |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Frontiers Media S.A Country of Publication: Switzerland NLM ID: 9918334887706676 Publication Model: eCollection Cited Medium: Internet ISSN: 2813-0146 (Electronic) Linking ISSN: 28130146 NLM ISO Abbreviation: Front Health Serv Subsets: PubMed not MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 42291695 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Friedreich's ataxia patient pathway in Europe. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Vallortigara+J%22">Vallortigara J</searchLink>; Ataxia Centre, Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Greenfield+J%22">Greenfield J</searchLink>; Ataxia UK, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Hunt+B%22">Hunt B</searchLink>; Ataxia UK, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Schuman+BJ%22">Schuman BJ</searchLink>; Friedreich Ataxie Förderverein e.V., Pliening, Germany.<br /><searchLink fieldCode="AU" term="%22Hoffman+D%22">Hoffman D</searchLink>; Takeda Pharmaceuticals, Cambridge, MA, United States.<br /><searchLink fieldCode="AU" term="%22Booth+S%22">Booth S</searchLink>; Ataxia Centre, Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Reinhard+C%22">Reinhard C</searchLink>; Centre for Rare Diseases and Institute of Medical Genetics and Applied Genomics, University Hospital Tübingen, Tübingen, Germany.<br /><searchLink fieldCode="AU" term="%22Graessner+H%22">Graessner H</searchLink>; Centre for Rare Diseases and Institute of Medical Genetics and Applied Genomics, University Hospital Tübingen, Tübingen, Germany.<br /><searchLink fieldCode="AU" term="%22Federico+A%22">Federico A</searchLink>; Department of Medicine, Surgery and Neurosciences, Medical School, University of Siena, Italy.<br /><searchLink fieldCode="AU" term="%22Quoidbach+V%22">Quoidbach V</searchLink>; European Brain Council, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Morris+S%22">Morris S</searchLink>; Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Giunti+P%22">Giunti P</searchLink>; Ataxia Centre, Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, London, United Kingdom. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%229918334887706676%22">Frontiers in health services</searchLink> [Front Health Serv] 2026 May 28; Vol. 6, pp. 1817584. <i>Date of Electronic Publication: </i>2026 May 28 (<i>Print Publication: </i>2026). – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Frontiers+Media+S%2EA%22">Frontiers Media S.A </searchLink><i>Country of Publication: </i>Switzerland <i>NLM ID: </i>9918334887706676 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2813-0146 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2228130146%22">28130146 </searchLink><i>NLM ISO Abbreviation: </i>Front Health Serv <i>Subsets: </i>PubMed not MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=42291695 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.3389/frhs.2026.1817584 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 1817584 Titles: – TitleFull: Friedreich's ataxia patient pathway in Europe. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Vallortigara J – PersonEntity: Name: NameFull: Greenfield J – PersonEntity: Name: NameFull: Hunt B – PersonEntity: Name: NameFull: Schuman BJ – PersonEntity: Name: NameFull: Hoffman D – PersonEntity: Name: NameFull: Booth S – PersonEntity: Name: NameFull: Reinhard C – PersonEntity: Name: NameFull: Graessner H – PersonEntity: Name: NameFull: Federico A – PersonEntity: Name: NameFull: Quoidbach V – PersonEntity: Name: NameFull: Morris S – PersonEntity: Name: NameFull: Giunti P IsPartOfRelationships: – BibEntity: Dates: – D: 28 M: 05 Text: 2026 May 28 Type: published Y: 2026 Identifiers: – Type: issn-electronic Value: 2813-0146 Numbering: – Type: volume Value: 6 Titles: – TitleFull: Frontiers in health services Type: main |
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