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An e-health transition intervention for youth with brain-based disabilities: Pilot and feasibility results from a Randomized Controlled Trial.

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Title: An e-health transition intervention for youth with brain-based disabilities: Pilot and feasibility results from a Randomized Controlled Trial.
Authors: Gorter JW; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.; Department of Pediatrics, McMaster University, Hamilton, ON, Canada.; Department of Rehabilitation, Physical Therapy Science and Sports, UMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, the Netherlands.; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, the Netherlands., Rozenblum R; Brigham and Women's Hospital and Harvard Medical School, Boston, MA, United States., Kovacs AH; Equilibria Psychological Health, Toronto, ON, Canada., Amaria KH; CBT Associates, A CloudMD Company, Toronto, ON, Canada., Thabane L; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, ON, Canada.; Biostatistics Unit, St. Joseph's Healthcare Hamilton, Hamilton, ON, Canada., Galuppi B; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada., Strohm S; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada., Nguyen L; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada., Via-Dufresne Ley A; Cardiovascular Health Across the Lifespan Program, Research Institute of the McGill University Health Centre, Montreal, QC, Canada., Alazem H; University of Ottawa, Ottawa, ON, Canada.; Division of Developmental Medicine and Rehabilitation, CHEO, Ottawa, ON, Canada., Andersen J; Department of Pediatrics, University of Alberta, Edmonton, AB, Canada., Azar R; Psychology Department, Mount Allison University, Sackville, New Brunswick, Canada., Boyd K; Department of Psychiatry & Behavioral Neurosciences, McMaster University, Hamilton, ON, Canada., Cassidy C; Parkwood Institute, St Joseph's Health Care London, Parkwood Institute Research, London, Canada.; Department of Physical Medicine and Rehabilitation, Western University, London, Canada., Curran CJ; Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada., Dawe-McCord C; Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada., Doucet S; Faculty of Nursing & Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada.; Centre for Research in Integrated Care, University of New Brunswick Saint John, Saint John, NB, Canada., Fournier A; Département de Pédiatrie, Faculté de Médecine, Université de Montréal, Montreal, QC, Canada.; Département de Pédiatrie, Centre Hospitalier Universitaire Sainte-Justine, Montreal, QC, Canada., Frost M; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada., Kassam-Lallani D; Spina Bifida and Spinal Cord Injury Program, Holland Bloorview Kids Rehabilitation Hospital, ON, Canada., Luke A; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.; Faculty of Nursing & Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada., McCormick A; University of Ottawa, Ottawa, ON, Canada.; Division of Developmental Medicine and Rehabilitation, CHEO, Ottawa, ON, Canada.; CHEO Research Institute, CHEO, Ottawa, Canada., Mosel J; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada., Putterman C; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada., Shevell M; Research Institute-McGill University Health Centre, Montreal, QC, Canada.; Departments of Pediatrics and Neurology/Neurosurgery, McGill University, Montreal, QC, Canada., Speechley KN; Department of Epidemiology and Biostatistics, Western University, London, ON, Canada.; Child Health Research Institute, Lawson Health Research Institute, London, ON, Canada.; Department of Paediatrics, Western University, London, ON, Canada., Thomson D; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada., Zwaigenbaum L; Department of Pediatrics, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, AB, Canada., Marelli A; McGill Adult Unit for Congenital Heart Disease Excellence, McGill University Health Centre, Montreal, QC, Canada.; Cardiovascular Health Across the Lifespan Program, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.
Corporate Authors: CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Trial Study Group
Source: Health care transitions [Health Care Transit] 2026 Jun 10; Vol. 4, pp. 100144. Date of Electronic Publication: 2026 Jun 10 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Inc Country of Publication: United States NLM ID: 9918842988406676 Publication Model: eCollection Cited Medium: Internet ISSN: 2949-9232 (Electronic) Linking ISSN: 29499232 NLM ISO Abbreviation: Health Care Transit Subsets: PubMed not MEDLINE
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  Data: An e-health transition intervention for youth with brain-based disabilities: Pilot and feasibility results from a Randomized Controlled Trial.
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  Data: <searchLink fieldCode="AU" term="%22Gorter+JW%22">Gorter JW</searchLink>; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.; Department of Pediatrics, McMaster University, Hamilton, ON, Canada.; Department of Rehabilitation, Physical Therapy Science and Sports, UMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, the Netherlands.; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Rozenblum+R%22">Rozenblum R</searchLink>; Brigham and Women's Hospital and Harvard Medical School, Boston, MA, United States.<br /><searchLink fieldCode="AU" term="%22Kovacs+AH%22">Kovacs AH</searchLink>; Equilibria Psychological Health, Toronto, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Amaria+KH%22">Amaria KH</searchLink>; CBT Associates, A CloudMD Company, Toronto, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Thabane+L%22">Thabane L</searchLink>; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, ON, Canada.; Biostatistics Unit, St. Joseph's Healthcare Hamilton, Hamilton, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Galuppi+B%22">Galuppi B</searchLink>; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Strohm+S%22">Strohm S</searchLink>; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Nguyen+L%22">Nguyen L</searchLink>; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Via-Dufresne+Ley+A%22">Via-Dufresne Ley A</searchLink>; Cardiovascular Health Across the Lifespan Program, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.<br /><searchLink fieldCode="AU" term="%22Alazem+H%22">Alazem H</searchLink>; University of Ottawa, Ottawa, ON, Canada.; Division of Developmental Medicine and Rehabilitation, CHEO, Ottawa, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Andersen+J%22">Andersen J</searchLink>; Department of Pediatrics, University of Alberta, Edmonton, AB, Canada.<br /><searchLink fieldCode="AU" term="%22Azar+R%22">Azar R</searchLink>; Psychology Department, Mount Allison University, Sackville, New Brunswick, Canada.<br /><searchLink fieldCode="AU" term="%22Boyd+K%22">Boyd K</searchLink>; Department of Psychiatry & Behavioral Neurosciences, McMaster University, Hamilton, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Cassidy+C%22">Cassidy C</searchLink>; Parkwood Institute, St Joseph's Health Care London, Parkwood Institute Research, London, Canada.; Department of Physical Medicine and Rehabilitation, Western University, London, Canada.<br /><searchLink fieldCode="AU" term="%22Curran+CJ%22">Curran CJ</searchLink>; Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Dawe-McCord+C%22">Dawe-McCord C</searchLink>; Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.<br /><searchLink fieldCode="AU" term="%22Doucet+S%22">Doucet S</searchLink>; Faculty of Nursing & Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada.; Centre for Research in Integrated Care, University of New Brunswick Saint John, Saint John, NB, Canada.<br /><searchLink fieldCode="AU" term="%22Fournier+A%22">Fournier A</searchLink>; Département de Pédiatrie, Faculté de Médecine, Université de Montréal, Montreal, QC, Canada.; Département de Pédiatrie, Centre Hospitalier Universitaire Sainte-Justine, Montreal, QC, Canada.<br /><searchLink fieldCode="AU" term="%22Frost+M%22">Frost M</searchLink>; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.<br /><searchLink fieldCode="AU" term="%22Kassam-Lallani+D%22">Kassam-Lallani D</searchLink>; Spina Bifida and Spinal Cord Injury Program, Holland Bloorview Kids Rehabilitation Hospital, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Luke+A%22">Luke A</searchLink>; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.; Faculty of Nursing & Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada.<br /><searchLink fieldCode="AU" term="%22McCormick+A%22">McCormick A</searchLink>; University of Ottawa, Ottawa, ON, Canada.; Division of Developmental Medicine and Rehabilitation, CHEO, Ottawa, ON, Canada.; CHEO Research Institute, CHEO, Ottawa, Canada.<br /><searchLink fieldCode="AU" term="%22Mosel+J%22">Mosel J</searchLink>; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.<br /><searchLink fieldCode="AU" term="%22Putterman+C%22">Putterman C</searchLink>; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.<br /><searchLink fieldCode="AU" term="%22Shevell+M%22">Shevell M</searchLink>; Research Institute-McGill University Health Centre, Montreal, QC, Canada.; Departments of Pediatrics and Neurology/Neurosurgery, McGill University, Montreal, QC, Canada.<br /><searchLink fieldCode="AU" term="%22Speechley+KN%22">Speechley KN</searchLink>; Department of Epidemiology and Biostatistics, Western University, London, ON, Canada.; Child Health Research Institute, Lawson Health Research Institute, London, ON, Canada.; Department of Paediatrics, Western University, London, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Thomson+D%22">Thomson D</searchLink>; Patient and Family Partner, CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Project, Canada.<br /><searchLink fieldCode="AU" term="%22Zwaigenbaum+L%22">Zwaigenbaum L</searchLink>; Department of Pediatrics, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, AB, Canada.<br /><searchLink fieldCode="AU" term="%22Marelli+A%22">Marelli A</searchLink>; McGill Adult Unit for Congenital Heart Disease Excellence, McGill University Health Centre, Montreal, QC, Canada.; Cardiovascular Health Across the Lifespan Program, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.
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