Health and functioning in the everyday lives of young children with cancer: documenting with the International Classification of Functioning, Disability and Health - Children and Youth ( ICF- CY).
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| Title: | Health and functioning in the everyday lives of young children with cancer: documenting with the International Classification of Functioning, Disability and Health - Children and Youth ( ICF- CY). |
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| Authors: | Darcy, L., Enskär, K., Granlund, M., Simeonsson, R. J., Peterson, C., Björk, M. |
| Source: | Child: Care, Health & Development. May2015, Vol. 41 Issue 3, p475-482. 8p. |
| Subjects: | Conceptual structures, Interviewing, Life skills, Research methodology, Nosology, Questionnaires, Research funding, Tumors in children, Inter-observer reliability, Functional assessment |
| Abstract: | Background Health care focus is shifting for children from surviving childhood cancer to living with it on a daily basis. There is a need to document health and function in the everyday lives of young children with cancer using the multidimensional framework and language of the International Classification of Functioning, Disability and Health - Children and Youth ( ICF- CY). Aims The aims of this study were (1) to document health and functioning in the everyday lives of young children with cancer using ICF- CY codes and (2) to identify a comprehensive code set that can aid clinical assessment. Method Interviews with children diagnosed with cancer and their parents, were transcribed, reviewed for content and coded to the ICF- CY using linking procedures. Results A comprehensive code set ( n = 70) for childhood cancer was identified. The majority of content identified to codes was related to activity and participation describing social relations with family, peers and professionals, preschool attendance and play, as well as issues related to support and independence. Conclusions The ICF- CY can be used to document the nature and range of characteristics and consequences of cancer experienced by children. The identified comprehensive code set could be helpful to health care professionals, parents and teachers in assessing and supporting young children's health and everyday life through the cancer trajectory. The comprehensive code set could be developed as a clinical assessment tool for those caring for young children with cancer. The universal language of the ICF- CY means that the utility of a clinical assessment tool based on identified codes can have wide reaching effects for the care of young children with cancer. [ABSTRACT FROM AUTHOR] |
| Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 102038450 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Health and functioning in the everyday lives of young children with cancer: documenting with the International Classification of Functioning, Disability and Health - Children and Youth ( ICF- CY). – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Darcy%2C+L%2E%22">Darcy, L.</searchLink><br /><searchLink fieldCode="AR" term="%22Enskär%2C+K%2E%22">Enskär, K.</searchLink><br /><searchLink fieldCode="AR" term="%22Granlund%2C+M%2E%22">Granlund, M.</searchLink><br /><searchLink fieldCode="AR" term="%22Simeonsson%2C+R%2E+J%2E%22">Simeonsson, R. J.</searchLink><br /><searchLink fieldCode="AR" term="%22Peterson%2C+C%2E%22">Peterson, C.</searchLink><br /><searchLink fieldCode="AR" term="%22Björk%2C+M%2E%22">Björk, M.</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. May2015, Vol. 41 Issue 3, p475-482. 8p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Conceptual+structures%22">Conceptual structures</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Life+skills%22">Life skills</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Nosology%22">Nosology</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Tumors+in+children%22">Tumors in children</searchLink><br /><searchLink fieldCode="DE" term="%22Inter-observer+reliability%22">Inter-observer reliability</searchLink><br /><searchLink fieldCode="DE" term="%22Functional+assessment%22">Functional assessment</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Background Health care focus is shifting for children from surviving childhood cancer to living with it on a daily basis. There is a need to document health and function in the everyday lives of young children with cancer using the multidimensional framework and language of the International Classification of Functioning, Disability and Health - Children and Youth ( ICF- CY). Aims The aims of this study were (1) to document health and functioning in the everyday lives of young children with cancer using ICF- CY codes and (2) to identify a comprehensive code set that can aid clinical assessment. Method Interviews with children diagnosed with cancer and their parents, were transcribed, reviewed for content and coded to the ICF- CY using linking procedures. Results A comprehensive code set ( n = 70) for childhood cancer was identified. The majority of content identified to codes was related to activity and participation describing social relations with family, peers and professionals, preschool attendance and play, as well as issues related to support and independence. Conclusions The ICF- CY can be used to document the nature and range of characteristics and consequences of cancer experienced by children. The identified comprehensive code set could be helpful to health care professionals, parents and teachers in assessing and supporting young children's health and everyday life through the cancer trajectory. The comprehensive code set could be developed as a clinical assessment tool for those caring for young children with cancer. The universal language of the ICF- CY means that the utility of a clinical assessment tool based on identified codes can have wide reaching effects for the care of young children with cancer. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/cch.12191 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 8 StartPage: 475 Subjects: – SubjectFull: Conceptual structures Type: general – SubjectFull: Interviewing Type: general – SubjectFull: Life skills Type: general – SubjectFull: Research methodology Type: general – SubjectFull: Nosology Type: general – SubjectFull: Questionnaires Type: general – SubjectFull: Research funding Type: general – SubjectFull: Tumors in children Type: general – SubjectFull: Inter-observer reliability Type: general – SubjectFull: Functional assessment Type: general Titles: – TitleFull: Health and functioning in the everyday lives of young children with cancer: documenting with the International Classification of Functioning, Disability and Health - Children and Youth ( ICF- CY). Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Darcy, L. – PersonEntity: Name: NameFull: Enskär, K. – PersonEntity: Name: NameFull: Granlund, M. – PersonEntity: Name: NameFull: Simeonsson, R. J. – PersonEntity: Name: NameFull: Peterson, C. – PersonEntity: Name: NameFull: Björk, M. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 05 Text: May2015 Type: published Y: 2015 Identifiers: – Type: issn-print Value: 03051862 Numbering: – Type: volume Value: 41 – Type: issue Value: 3 Titles: – TitleFull: Child: Care, Health & Development Type: main |
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