Parenting a Child with Autism in India: Narratives Before and After a Parent-Child Intervention Program.
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| Title: | Parenting a Child with Autism in India: Narratives Before and After a Parent-Child Intervention Program. |
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| Authors: | Brezis, Rachel, Weisner, Thomas, Daley, Tamara, Singhal, Nidhi, Barua, Merry, Chollera, Shreya |
| Source: | Culture, Medicine & Psychiatry. Jun2015, Vol. 39 Issue 2, p277-298. 22p. 7 Charts. |
| Subjects: | Parents of autistic children, Autism in children, Behavior modification, Youth with autism spectrum disorders, Social conditions in India, Treatment of autism in children, Kula (Families), Human services, Twenty-first century |
| Abstract: | In many low and middle income countries where autism-related resources are scarce, interventions must rely on family and parents. A 3-month Parent-Child Training Program (PCTP) at Action For Autism, New Delhi, India is aimed at empowering and educating parents, encouraging acceptance of their child, and decreasing parent stress. Forty couples were asked to describe their child with autism using the Five Minute Speech Sample (FMSS), an open-ended narrative method, before and after the program. Parents described a wide range of child behaviors, primarily social and cognitive skills. While all families were of a relatively affluent strata compared to the general Indian population, there were nonetheless significant differences in parents' narratives based on their income levels. Coming into the program, parents with relatively less income focused on their child's immediate and material needs, while higher income parents discussed their parental roles and vision for society. After the PCTP, parents were more likely to reflect on their child beyond comparisons to 'normality,' and beyond the here-and-now. Mothers were more likely than fathers to reflect on themselves and their relationships with their child. Understanding parents' experiences and narratives is essential for the evaluation of interventions such as the PCTP, as Indian parents are incorporated into a growing global network of 'parents of children with autism.' [ABSTRACT FROM AUTHOR] |
| Copyright of Culture, Medicine & Psychiatry is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 102855373 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Parenting a Child with Autism in India: Narratives Before and After a Parent-Child Intervention Program. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Brezis%2C+Rachel%22">Brezis, Rachel</searchLink><br /><searchLink fieldCode="AR" term="%22Weisner%2C+Thomas%22">Weisner, Thomas</searchLink><br /><searchLink fieldCode="AR" term="%22Daley%2C+Tamara%22">Daley, Tamara</searchLink><br /><searchLink fieldCode="AR" term="%22Singhal%2C+Nidhi%22">Singhal, Nidhi</searchLink><br /><searchLink fieldCode="AR" term="%22Barua%2C+Merry%22">Barua, Merry</searchLink><br /><searchLink fieldCode="AR" term="%22Chollera%2C+Shreya%22">Chollera, Shreya</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Culture%2C+Medicine+%26+Psychiatry%22">Culture, Medicine & Psychiatry</searchLink>. Jun2015, Vol. 39 Issue 2, p277-298. 22p. 7 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Parents+of+autistic+children%22">Parents of autistic children</searchLink><br /><searchLink fieldCode="DE" term="%22Autism+in+children%22">Autism in children</searchLink><br /><searchLink fieldCode="DE" term="%22Behavior+modification%22">Behavior modification</searchLink><br /><searchLink fieldCode="DE" term="%22Youth+with+autism+spectrum+disorders%22">Youth with autism spectrum disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Social+conditions+in+India%22">Social conditions in India</searchLink><br /><searchLink fieldCode="DE" term="%22Treatment+of+autism+in+children%22">Treatment of autism in children</searchLink><br /><searchLink fieldCode="DE" term="%22Kula+%28Families%29%22">Kula (Families)</searchLink><br /><searchLink fieldCode="DE" term="%22Human+services%22">Human services</searchLink><br /><searchLink fieldCode="DE" term="%22Twenty-first+century%22">Twenty-first century</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: In many low and middle income countries where autism-related resources are scarce, interventions must rely on family and parents. A 3-month Parent-Child Training Program (PCTP) at Action For Autism, New Delhi, India is aimed at empowering and educating parents, encouraging acceptance of their child, and decreasing parent stress. Forty couples were asked to describe their child with autism using the Five Minute Speech Sample (FMSS), an open-ended narrative method, before and after the program. Parents described a wide range of child behaviors, primarily social and cognitive skills. While all families were of a relatively affluent strata compared to the general Indian population, there were nonetheless significant differences in parents' narratives based on their income levels. Coming into the program, parents with relatively less income focused on their child's immediate and material needs, while higher income parents discussed their parental roles and vision for society. After the PCTP, parents were more likely to reflect on their child beyond comparisons to 'normality,' and beyond the here-and-now. Mothers were more likely than fathers to reflect on themselves and their relationships with their child. Understanding parents' experiences and narratives is essential for the evaluation of interventions such as the PCTP, as Indian parents are incorporated into a growing global network of 'parents of children with autism.' [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Culture, Medicine & Psychiatry is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11013-015-9434-y Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 22 StartPage: 277 Subjects: – SubjectFull: Parents of autistic children Type: general – SubjectFull: Autism in children Type: general – SubjectFull: Behavior modification Type: general – SubjectFull: Youth with autism spectrum disorders Type: general – SubjectFull: Social conditions in India Type: general – SubjectFull: Treatment of autism in children Type: general – SubjectFull: Kula (Families) Type: general – SubjectFull: Human services Type: general – SubjectFull: Twenty-first century Type: general Titles: – TitleFull: Parenting a Child with Autism in India: Narratives Before and After a Parent-Child Intervention Program. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Brezis, Rachel – PersonEntity: Name: NameFull: Weisner, Thomas – PersonEntity: Name: NameFull: Daley, Tamara – PersonEntity: Name: NameFull: Singhal, Nidhi – PersonEntity: Name: NameFull: Barua, Merry – PersonEntity: Name: NameFull: Chollera, Shreya IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 06 Text: Jun2015 Type: published Y: 2015 Identifiers: – Type: issn-print Value: 0165005X Numbering: – Type: volume Value: 39 – Type: issue Value: 2 Titles: – TitleFull: Culture, Medicine & Psychiatry Type: main |
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