Seeking the patient's perspective: a qualitative assessment of EuroQol, COOP-WONCA charts and MYMOP.
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| Title: | Seeking the patient's perspective: a qualitative assessment of EuroQol, COOP-WONCA charts and MYMOP. |
|---|---|
| Authors: | Paterson, Charlotte |
| Source: | Quality of Life Research. Jun2004, Vol. 13 Issue 5, p871-881. 11p. |
| Subjects: | Questionnaires, Acupuncture, Patients, Health status indicators, Medical statistics, Quality of life, Interviewing |
| Abstract: | An outcome questionnaire that is patient-centred should encompass the aims, values and treatment effects that are prioritised by individuals, and should enable each individual to provide an unambiguous assessment of change over time. There is little evidence about how well outcome questionnaires perform in this regard. This paper describes how interviews that combined in-depth enquiry and cognitive techniques were used to explore patients' experiences of completing three outcome questionnaires over a 6 month period. The 23 interviewees all had chronic disease and were receiving acupuncture treatment for the first time. Many of the problems uncovered by this study can be ameliorated by attention to questionnaire design. For example, by the provision of at least five response options, by being explicit about including co-morbidity, and by measuring medication change as a separate outcome. The study also highlighted more fundamental conceptual difficulties, such as response shift and the respondent's conflict between scoring external function and internal distress (what they did, vs. what they felt). These issues relate to the co-existence of different perspectives and the impossibility of reducing health status to one 'single truth'. The study concludes that qualitative evaluations have an important role to play in questionnaire design and development and are likely to lead to more modest and realistic appraisals of outcome questionnaire performance. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 12934863 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1023/B:QURE.0000025586.51955.78 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 871 Subjects: – SubjectFull: Questionnaires Type: general – SubjectFull: Acupuncture Type: general – SubjectFull: Patients Type: general – SubjectFull: Health status indicators Type: general – SubjectFull: Medical statistics Type: general – SubjectFull: Quality of life Type: general – SubjectFull: Interviewing Type: general Titles: – TitleFull: Seeking the patient's perspective: a qualitative assessment of EuroQol, COOP-WONCA charts and MYMOP. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Paterson, Charlotte IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 06 Text: Jun2004 Type: published Y: 2004 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 13 – Type: issue Value: 5 Titles: – TitleFull: Quality of Life Research Type: main |
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