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When "a headache is not just a headache": A qualitative examination of parent and child experiences of pain after childhood cancer.

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Title: When "a headache is not just a headache": A qualitative examination of parent and child experiences of pain after childhood cancer.
Authors: Tutelman, Perri R. (AUTHOR), Chambers, Christine T. (AUTHOR), Urquhart, Robin (AUTHOR), Fernandez, Conrad V. (AUTHOR), Heathcote, Lauren C. (AUTHOR), Noel, Melanie (AUTHOR), Flanders, Annette (AUTHOR), Guilcher, Gregory M.T. (AUTHOR), Schulte, Fiona (AUTHOR), Stinson, Jennifer N. (AUTHOR), MacLeod, Julia (AUTHOR), Stern, Maya (AUTHOR)
Source: Psycho-Oncology. Sep2019, Vol. 28 Issue 9, p1901-1909. 9p. 1 Diagram, 1 Chart.
Subjects: Parent-child relationships, Childhood cancer, Cancer pain, Headache, Pain management, Adult child abuse victims, Evaluation research, Qualitative research, Research funding, Pain, Research methodology, Research, Psychology of parents, Comparative studies
Abstract: Objective: Today, more than 80% of children diagnosed with cancer are expected to survive. Despite the high prevalence of pain associated with the diagnosis and treatment of childhood cancer, there is a limited understanding of how having cancer shapes children's experience and meaning of pain after treatment has ended. This study addresses this gap by exploring childhood cancer survivors' (CCS') experiences of pain from their perspective and the perspective of their parents.Methods: Twenty semi-structured interviews were completed with CCS (50% female; mean age = 13.20 y, range = 8-17 y) and their parents (90% mothers). Data were analyzed using interpretive phenomenological analysis.Results: Analyses revealed three superordinate themes present in the data: (a) pain is a changed experience after childhood cancer; (b) new or ambiguous pains may be interpreted by CCS and parents as a threat of disease recurrence, late effects, or a secondary cancer; and (c) pain interpretation occurs within the broader context of how CCS and parents appraise their cancer experience. Parents generally appraised their child's cancer and pain as more threatening and were influential in guiding their child's interpretations.Conclusions: The cancer experience played an important role in shaping CCS' and their parents' experience and interpretation of pain in survivorship. This study provides novel data to inform the development and refinement of new and existing conceptual models of pain and symptom perception after cancer. The results also point to key areas for future investigation and clinical intervention to address the issue of pain in cancer survivorship. [ABSTRACT FROM AUTHOR]
Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: When "a headache is not just a headache": A qualitative examination of parent and child experiences of pain after childhood cancer.
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  Data: <searchLink fieldCode="AR" term="%22Tutelman%2C+Perri+R%2E%22">Tutelman, Perri R.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chambers%2C+Christine+T%2E%22">Chambers, Christine T.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Urquhart%2C+Robin%22">Urquhart, Robin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Fernandez%2C+Conrad+V%2E%22">Fernandez, Conrad V.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Heathcote%2C+Lauren+C%2E%22">Heathcote, Lauren C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Noel%2C+Melanie%22">Noel, Melanie</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Flanders%2C+Annette%22">Flanders, Annette</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Guilcher%2C+Gregory+M%2ET%2E%22">Guilcher, Gregory M.T.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Schulte%2C+Fiona%22">Schulte, Fiona</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Stinson%2C+Jennifer+N%2E%22">Stinson, Jennifer N.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22MacLeod%2C+Julia%22">MacLeod, Julia</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Stern%2C+Maya%22">Stern, Maya</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Psycho-Oncology%22">Psycho-Oncology</searchLink>. Sep2019, Vol. 28 Issue 9, p1901-1909. 9p. 1 Diagram, 1 Chart.
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  Data: <searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br /><searchLink fieldCode="DE" term="%22Childhood+cancer%22">Childhood cancer</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+pain%22">Cancer pain</searchLink><br /><searchLink fieldCode="DE" term="%22Headache%22">Headache</searchLink><br /><searchLink fieldCode="DE" term="%22Pain+management%22">Pain management</searchLink><br /><searchLink fieldCode="DE" term="%22Adult+child+abuse+victims%22">Adult child abuse victims</searchLink><br /><searchLink fieldCode="DE" term="%22Evaluation+research%22">Evaluation research</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Pain%22">Pain</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: <bold>Objective: </bold>Today, more than 80% of children diagnosed with cancer are expected to survive. Despite the high prevalence of pain associated with the diagnosis and treatment of childhood cancer, there is a limited understanding of how having cancer shapes children's experience and meaning of pain after treatment has ended. This study addresses this gap by exploring childhood cancer survivors' (CCS') experiences of pain from their perspective and the perspective of their parents.<bold>Methods: </bold>Twenty semi-structured interviews were completed with CCS (50% female; mean age = 13.20 y, range = 8-17 y) and their parents (90% mothers). Data were analyzed using interpretive phenomenological analysis.<bold>Results: </bold>Analyses revealed three superordinate themes present in the data: (a) pain is a changed experience after childhood cancer; (b) new or ambiguous pains may be interpreted by CCS and parents as a threat of disease recurrence, late effects, or a secondary cancer; and (c) pain interpretation occurs within the broader context of how CCS and parents appraise their cancer experience. Parents generally appraised their child's cancer and pain as more threatening and were influential in guiding their child's interpretations.<bold>Conclusions: </bold>The cancer experience played an important role in shaping CCS' and their parents' experience and interpretation of pain in survivorship. This study provides novel data to inform the development and refinement of new and existing conceptual models of pain and symptom perception after cancer. The results also point to key areas for future investigation and clinical intervention to address the issue of pain in cancer survivorship. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1002/pon.5170
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 9
        StartPage: 1901
    Subjects:
      – SubjectFull: Parent-child relationships
        Type: general
      – SubjectFull: Childhood cancer
        Type: general
      – SubjectFull: Cancer pain
        Type: general
      – SubjectFull: Headache
        Type: general
      – SubjectFull: Pain management
        Type: general
      – SubjectFull: Adult child abuse victims
        Type: general
      – SubjectFull: Evaluation research
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Pain
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Psychology of parents
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      – SubjectFull: Comparative studies
        Type: general
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      – TitleFull: When "a headache is not just a headache": A qualitative examination of parent and child experiences of pain after childhood cancer.
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              M: 09
              Text: Sep2019
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