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Content comparison of unmet needs self-report measures used in patients with head and neck cancer: A systematic review.

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Title: Content comparison of unmet needs self-report measures used in patients with head and neck cancer: A systematic review.
Authors: Shunmugasundaram, Chindhu (AUTHOR), Rutherford, Claudia (AUTHOR), Butow, Phyllis N. (AUTHOR), Sundaresan, Puma (AUTHOR), Dhillon, Haryana M. (AUTHOR)
Source: Psycho-Oncology. Dec2019, Vol. 28 Issue 12, p2295-2306. 12p. 1 Diagram, 3 Charts.
Subjects: Head & neck cancer, Cancer patients, Meta-analysis
Abstract: Objective: Morbidity from head and neck cancers (HNCs) and their treatment are significant, given their proximity to anatomical sites impacting facial appearance and function. Assessing the needs of HNC patients throughout their cancer journey is critical to informing quality care and improving quality of life. We aimed to identify available unmet needs measures in the HNC setting and appraise their content and psychometric properties.Methods: We conducted a systematic search of five electronic databases (July 2007-July 2019) to identify studies of unmet needs in patients with HNC. In addition, three web-based patient-reported outcome measures (PROMs) databases were searched for unmet needs measures. Citations were screened for eligibility and identified measures reviewed for content coverage and psychometric properties. From identified measures and literature, a conceptual framework with 12 clinically relevant aspects of unmet needs was developed and used to assess the conceptual coverage of available unmet needs measures.Results: Literature search identified 273 records of which 28 studies assessing unmet needs in HNC cancer met eligibility criteria. Seven unmet needs measures were identified from retrieved studies and seven additional measures from PROM databases. Thus, 14 measures in total were reviewed. Content mapping revealed that three measures demonstrated excellent content validity (greater than 80% conceptual coverage): Patient Concerns Inventory (PCI), Needs Assessment for Advanced Cancer Patients (NA-ACP), and James Supportive Care Screening (JSCS).Conclusion: We recommend PCI be used to measure unmet needs in the HNC setting considering the importance of content validity over quantitative psychometric properties. [ABSTRACT FROM AUTHOR]
Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Label: Title
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  Data: Content comparison of unmet needs self-report measures used in patients with head and neck cancer: A systematic review.
– Name: Author
  Label: Authors
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  Data: <searchLink fieldCode="AR" term="%22Shunmugasundaram%2C+Chindhu%22">Shunmugasundaram, Chindhu</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rutherford%2C+Claudia%22">Rutherford, Claudia</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Butow%2C+Phyllis+N%2E%22">Butow, Phyllis N.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sundaresan%2C+Puma%22">Sundaresan, Puma</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dhillon%2C+Haryana+M%2E%22">Dhillon, Haryana M.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Psycho-Oncology%22">Psycho-Oncology</searchLink>. Dec2019, Vol. 28 Issue 12, p2295-2306. 12p. 1 Diagram, 3 Charts.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Head+%26+neck+cancer%22">Head & neck cancer</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+patients%22">Cancer patients</searchLink><br /><searchLink fieldCode="DE" term="%22Meta-analysis%22">Meta-analysis</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: <bold>Objective: </bold>Morbidity from head and neck cancers (HNCs) and their treatment are significant, given their proximity to anatomical sites impacting facial appearance and function. Assessing the needs of HNC patients throughout their cancer journey is critical to informing quality care and improving quality of life. We aimed to identify available unmet needs measures in the HNC setting and appraise their content and psychometric properties.<bold>Methods: </bold>We conducted a systematic search of five electronic databases (July 2007-July 2019) to identify studies of unmet needs in patients with HNC. In addition, three web-based patient-reported outcome measures (PROMs) databases were searched for unmet needs measures. Citations were screened for eligibility and identified measures reviewed for content coverage and psychometric properties. From identified measures and literature, a conceptual framework with 12 clinically relevant aspects of unmet needs was developed and used to assess the conceptual coverage of available unmet needs measures.<bold>Results: </bold>Literature search identified 273 records of which 28 studies assessing unmet needs in HNC cancer met eligibility criteria. Seven unmet needs measures were identified from retrieved studies and seven additional measures from PROM databases. Thus, 14 measures in total were reviewed. Content mapping revealed that three measures demonstrated excellent content validity (greater than 80% conceptual coverage): Patient Concerns Inventory (PCI), Needs Assessment for Advanced Cancer Patients (NA-ACP), and James Supportive Care Screening (JSCS).<bold>Conclusion: </bold>We recommend PCI be used to measure unmet needs in the HNC setting considering the importance of content validity over quantitative psychometric properties. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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              Text: Dec2019
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