View in EDS HTML Full Text PDF Full Text

Enhancing Parental Coping with a Child's Heart Condition: A Co-production Pilot Study.

Saved in:
Bibliographic Details
Title: Enhancing Parental Coping with a Child's Heart Condition: A Co-production Pilot Study.
Authors: Jackson, Alun C. (AUTHOR), Frydenberg, Erica (AUTHOR), Koey, Xui Min (AUTHOR), Fernandez, Amanda (AUTHOR), Higgins, Rosemary O. (AUTHOR), Stanley, Tracy (AUTHOR), Liang, Rachel Pui-Tak (AUTHOR), Le Grande, Michael R. (AUTHOR), Murphy, Barbara M. (AUTHOR)
Source: Comprehensive Child & Adolescent Nursing. Dec2020, Vol. 43 Issue 4, p314-333. 20p. 4 Charts, 3 Graphs.
Subjects: Education of parents, Psychological adaptation, Chi-squared test, Health promotion, Heart diseases, Patient aftercare, Parenting, Parents, Research funding, Self-efficacy, Psychological stress, Treatment effectiveness, Human services programs, Descriptive statistics
Geographic Terms: Australia
Abstract: Families of children with congenital heart disease (CHD) can have difficulties coping with the stress of their child's condition and would benefit from assistance to cope better. To address the needs of these parents, the Australian Center for Heart Health/HeartKids Australia/Melbourne Graduate School of Education co-produced Family Coping Project was initiated. This project involved two systematic literature reviews, interviews with parents of children with CHD, and the development and piloting of a manualised parental coping program. The primary aims of the pilot study were to determine whether the program would: attract high needs families; enhance the coping self-efficacy of parents; and be acceptable to parents in terms of content and mode of delivery. The secondary aims were to investigate whether the program would impact on parental coping, parental stress and general stress. Parents completed pre-, post-program and 6-month follow up assessment measures, with parent stress scores being compared to stress scores reported for other chronic condition parent carer groups. Twenty-one parents participated and provided baseline data. They were found to be significantly more stressed than other parent carer groups. Eleven parents completed post-program data and 13 completed 6-month follow-up data. There was a significant increase in parents' coping self-efficacy from pre- to post-program, and from pre- to 6-months. Parents' use of productive coping styles increased significantly from pre- to post-program. The program was rated as highly acceptable in terms of content and delivery mode. The pilot provides strong evidence for upscaling the program in conjunction with individualized psychological support for parents to extend knowledge acquisition and attitude change into enhanced coping skills and demonstrated the benefits of a co-production process. [ABSTRACT FROM AUTHOR]
Copyright of Comprehensive Child & Adolescent Nursing is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: pbh
DbLabel: Psychology and Behavioral Sciences Collection
An: 147601934
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Enhancing Parental Coping with a Child's Heart Condition: A Co-production Pilot Study.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Jackson%2C+Alun+C%2E%22">Jackson, Alun C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Frydenberg%2C+Erica%22">Frydenberg, Erica</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Koey%2C+Xui+Min%22">Koey, Xui Min</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Fernandez%2C+Amanda%22">Fernandez, Amanda</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Higgins%2C+Rosemary+O%2E%22">Higgins, Rosemary O.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Stanley%2C+Tracy%22">Stanley, Tracy</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Liang%2C+Rachel+Pui-Tak%22">Liang, Rachel Pui-Tak</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Le+Grande%2C+Michael+R%2E%22">Le Grande, Michael R.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Murphy%2C+Barbara+M%2E%22">Murphy, Barbara M.</searchLink> (AUTHOR)
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Comprehensive+Child+%26+Adolescent+Nursing%22">Comprehensive Child & Adolescent Nursing</searchLink>. Dec2020, Vol. 43 Issue 4, p314-333. 20p. 4 Charts, 3 Graphs.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Education+of+parents%22">Education of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+adaptation%22">Psychological adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22Chi-squared+test%22">Chi-squared test</searchLink><br /><searchLink fieldCode="DE" term="%22Health+promotion%22">Health promotion</searchLink><br /><searchLink fieldCode="DE" term="%22Heart+diseases%22">Heart diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+aftercare%22">Patient aftercare</searchLink><br /><searchLink fieldCode="DE" term="%22Parenting%22">Parenting</searchLink><br /><searchLink fieldCode="DE" term="%22Parents%22">Parents</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Self-efficacy%22">Self-efficacy</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+stress%22">Psychological stress</searchLink><br /><searchLink fieldCode="DE" term="%22Treatment+effectiveness%22">Treatment effectiveness</searchLink><br /><searchLink fieldCode="DE" term="%22Human+services+programs%22">Human services programs</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink>
– Name: SubjectGeographic
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Australia%22">Australia</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Families of children with congenital heart disease (CHD) can have difficulties coping with the stress of their child's condition and would benefit from assistance to cope better. To address the needs of these parents, the Australian Center for Heart Health/HeartKids Australia/Melbourne Graduate School of Education co-produced Family Coping Project was initiated. This project involved two systematic literature reviews, interviews with parents of children with CHD, and the development and piloting of a manualised parental coping program. The primary aims of the pilot study were to determine whether the program would: attract high needs families; enhance the coping self-efficacy of parents; and be acceptable to parents in terms of content and mode of delivery. The secondary aims were to investigate whether the program would impact on parental coping, parental stress and general stress. Parents completed pre-, post-program and 6-month follow up assessment measures, with parent stress scores being compared to stress scores reported for other chronic condition parent carer groups. Twenty-one parents participated and provided baseline data. They were found to be significantly more stressed than other parent carer groups. Eleven parents completed post-program data and 13 completed 6-month follow-up data. There was a significant increase in parents' coping self-efficacy from pre- to post-program, and from pre- to 6-months. Parents' use of productive coping styles increased significantly from pre- to post-program. The program was rated as highly acceptable in terms of content and delivery mode. The pilot provides strong evidence for upscaling the program in conjunction with individualized psychological support for parents to extend knowledge acquisition and attitude change into enhanced coping skills and demonstrated the benefits of a co-production process. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Comprehensive Child & Adolescent Nursing is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=147601934
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/24694193.2019.1671915
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 20
        StartPage: 314
    Subjects:
      – SubjectFull: Education of parents
        Type: general
      – SubjectFull: Psychological adaptation
        Type: general
      – SubjectFull: Chi-squared test
        Type: general
      – SubjectFull: Health promotion
        Type: general
      – SubjectFull: Heart diseases
        Type: general
      – SubjectFull: Patient aftercare
        Type: general
      – SubjectFull: Parenting
        Type: general
      – SubjectFull: Parents
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Self-efficacy
        Type: general
      – SubjectFull: Psychological stress
        Type: general
      – SubjectFull: Treatment effectiveness
        Type: general
      – SubjectFull: Human services programs
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Australia
        Type: general
    Titles:
      – TitleFull: Enhancing Parental Coping with a Child's Heart Condition: A Co-production Pilot Study.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Jackson, Alun C.
      – PersonEntity:
          Name:
            NameFull: Frydenberg, Erica
      – PersonEntity:
          Name:
            NameFull: Koey, Xui Min
      – PersonEntity:
          Name:
            NameFull: Fernandez, Amanda
      – PersonEntity:
          Name:
            NameFull: Higgins, Rosemary O.
      – PersonEntity:
          Name:
            NameFull: Stanley, Tracy
      – PersonEntity:
          Name:
            NameFull: Liang, Rachel Pui-Tak
      – PersonEntity:
          Name:
            NameFull: Le Grande, Michael R.
      – PersonEntity:
          Name:
            NameFull: Murphy, Barbara M.
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 12
              Text: Dec2020
              Type: published
              Y: 2020
          Identifiers:
            – Type: issn-print
              Value: 24694193
          Numbering:
            – Type: volume
              Value: 43
            – Type: issue
              Value: 4
          Titles:
            – TitleFull: Comprehensive Child & Adolescent Nursing
              Type: main
ResultId 1