Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study.
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| Title: | Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study. |
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| Authors: | Bamer, Alyssa M. (AUTHOR), McMullen, Kara (AUTHOR), Wolf, Steven E. (AUTHOR), Stewart, Barclay T. (AUTHOR), Kazis, Lewis (AUTHOR), Rencken, Camerin A. (AUTHOR), Amtmann, Dagmar (AUTHOR) |
| Source: | Quality of Life Research. Jul2021, Vol. 30 Issue 7, p2071-2080. 10p. 5 Charts, 1 Graph. |
| Subjects: | Quality of life, Burn patients, Independent living, Self-evaluation, Physical mobility, Intraclass correlation, Anger management |
| Abstract: | Purpose: To examine agreement between pediatric burn survivor self- and caregiver proxy-report on multiple PROMIS domains and examine factors associated with differences between self- and proxy-reports. Methods: Children 8–17 years of age and their caregivers completed PROMIS measures (physical function, depression, peer relationships, pain interference, and anger) between 6 months and 15 years after injury. Self- and proxy-report scores were compared using Wilcoxon sign rank test, Cohen's effect size, and intraclass correlation coefficients (ICC) and by agreement across severity of symptoms based on recommended cutoffs. Ordinary least squares regression analyses examined child- (self-report score, age, gender, and ethnicity) and proxy-related (relationship to child) factors associated with score differences. Results: Two hundred and seventy four child-caregiver pairs completed the PROMIS measures. Mean child age was 13.0 (SD:3) years. Caregivers reported significantly worse scores than the child on physical function, pain, and anger (all p ≤ 0.01). The effect sizes were small across all domains except physical function. Similarly, ICCs were all of moderate agreement. The percentage of dyads in agreement by severity groups was high with only 5%-9% of pairs discordant. Only higher self-report score was associated (all p < 0.05) with greater differences across all domains in regression analyses. Conclusions: This study supports the use of pediatric proxy PROMIS depression, physical function, peer relationships, pain interference, and anger scales in pediatric burn patients. Although agreement was moderate to good, assessing proxy-report alone as a surrogate should only be considered when self-report is not possible or practical. Caregivers typically report slightly worse severity of symptoms than children across all domains. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 151083837 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Bamer%2C+Alyssa+M%2E%22">Bamer, Alyssa M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22McMullen%2C+Kara%22">McMullen, Kara</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wolf%2C+Steven+E%2E%22">Wolf, Steven E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Stewart%2C+Barclay+T%2E%22">Stewart, Barclay T.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kazis%2C+Lewis%22">Kazis, Lewis</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rencken%2C+Camerin+A%2E%22">Rencken, Camerin A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Amtmann%2C+Dagmar%22">Amtmann, Dagmar</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Jul2021, Vol. 30 Issue 7, p2071-2080. 10p. 5 Charts, 1 Graph. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Burn+patients%22">Burn patients</searchLink><br /><searchLink fieldCode="DE" term="%22Independent+living%22">Independent living</searchLink><br /><searchLink fieldCode="DE" term="%22Self-evaluation%22">Self-evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Physical+mobility%22">Physical mobility</searchLink><br /><searchLink fieldCode="DE" term="%22Intraclass+correlation%22">Intraclass correlation</searchLink><br /><searchLink fieldCode="DE" term="%22Anger+management%22">Anger management</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: To examine agreement between pediatric burn survivor self- and caregiver proxy-report on multiple PROMIS domains and examine factors associated with differences between self- and proxy-reports. Methods: Children 8–17 years of age and their caregivers completed PROMIS measures (physical function, depression, peer relationships, pain interference, and anger) between 6 months and 15 years after injury. Self- and proxy-report scores were compared using Wilcoxon sign rank test, Cohen's effect size, and intraclass correlation coefficients (ICC) and by agreement across severity of symptoms based on recommended cutoffs. Ordinary least squares regression analyses examined child- (self-report score, age, gender, and ethnicity) and proxy-related (relationship to child) factors associated with score differences. Results: Two hundred and seventy four child-caregiver pairs completed the PROMIS measures. Mean child age was 13.0 (SD:3) years. Caregivers reported significantly worse scores than the child on physical function, pain, and anger (all p ≤ 0.01). The effect sizes were small across all domains except physical function. Similarly, ICCs were all of moderate agreement. The percentage of dyads in agreement by severity groups was high with only 5%-9% of pairs discordant. Only higher self-report score was associated (all p < 0.05) with greater differences across all domains in regression analyses. Conclusions: This study supports the use of pediatric proxy PROMIS depression, physical function, peer relationships, pain interference, and anger scales in pediatric burn patients. Although agreement was moderate to good, assessing proxy-report alone as a surrogate should only be considered when self-report is not possible or practical. Caregivers typically report slightly worse severity of symptoms than children across all domains. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-021-02796-3 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 10 StartPage: 2071 Subjects: – SubjectFull: Quality of life Type: general – SubjectFull: Burn patients Type: general – SubjectFull: Independent living Type: general – SubjectFull: Self-evaluation Type: general – SubjectFull: Physical mobility Type: general – SubjectFull: Intraclass correlation Type: general – SubjectFull: Anger management Type: general Titles: – TitleFull: Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Bamer, Alyssa M. – PersonEntity: Name: NameFull: McMullen, Kara – PersonEntity: Name: NameFull: Wolf, Steven E. – PersonEntity: Name: NameFull: Stewart, Barclay T. – PersonEntity: Name: NameFull: Kazis, Lewis – PersonEntity: Name: NameFull: Rencken, Camerin A. – PersonEntity: Name: NameFull: Amtmann, Dagmar IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 07 Text: Jul2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 30 – Type: issue Value: 7 Titles: – TitleFull: Quality of Life Research Type: main |
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